In 2025 the Nystagmus Network will be holding events, competitions, activities, workshops and celebrations for our 25 for ’25 year.
January 2025
25 for ’25 – join the year-long party!
Find out how you can take part here
The Great Winter ‘nystagmus’ Get Together including a fun 25 for ’25 quiz, Wednesday 29 January at 5pm. Please email us at [email protected] to receive the Zoom link.
February 2025
Online get together for people living with Acquired Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for people living with Congenital Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
March 2025
The Big Nystagmus Meet Up – Maidstone, Saturday 15 March, 11am to 4pm. An in person event for everyone living with nystagmus or supporting someone who does.
Book your place for Maidstone here
Online get together for adults living with Congenital or Acquired Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for parents and carers of children and young people living with nystagmus, date and time TBC Please email us at [email protected] for an invitation.
April 2025
Online get together for people living with Acquired Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for people living with Congenital Nystagmus, date and time TBC Please email us at [email protected] for an invitation.
May 2025
Online get together for people living with Acquired Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for people living with Congenital Nystagmus, date and time TBC Please email us at [email protected] for an invitation.
June 2025
Nystagmus Awareness Day 2025 – 20 June
A very special occasion and part of our 25 for ’25 year-long celebrations. A children’s colouring competition, presentations, fundraising and lots of new stories. There’s even bunting!
The Great ‘nystagmus’ Summer Get Together – online at 5pm on Wednesday, 18 June. Whether you have nystagmus yourself or care for someone who does, adults, parents, children – all are welcome to join the party. Please email us at [email protected] for a Zoom invitation.
The Big Nystagmus Meet Up – Birmingham, Saturday 21 June, 11am to 4pm. An in person event for everyone living with nystagmus or supporting someone who does.
Book your place for Birmingham here
July 2025
August 2025
September 2025
The big nystagmus meet up – Leeds takes place, date and time TBC
Book your place for Leeds here
Online get together for people living with Acquired Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for people living with Congenital Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for parents and carers, date and time TBC. Please email us at [email protected] for an invitation.
October 2025
Online get together for people living with Acquired Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for people living with Congenital Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
November 2025
The International Nystagmus Symposium 2025 will take place on Friday 7 November. Registration and abstract submission will open soon.
Please note this is not a patient event.
Online get together for people living with Acquired Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for people living with Congenital Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for parents and carers, date and time TBC. Please email us at [email protected] for an invitation.
December 2025
Online get together for people living with Acquired Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for people living with Congenital Nystagmus, date and time TBC. Please email us at [email protected] for an invitation.
Online get together for parents and carers, date and time TBC. Please email us at [email protected] for an invitation.