Blog
Stay up to date with all our latest news, stories and features in one place.
Stay up to date with all our latest news, stories and features in one place.
Please join us for our first in person event of 2025 on Saturday 15 March, 11am to 4pm. An in person event for everyone living with nystagmus or supporting someone … Continue reading The big nystagmus meet up – Maidstone
In January 2025 our newest trustee, Hannah celebrated her 25th birthday. Now Hannah wants you to join her party! Let’s celebrate Hannah’s birthday with a year long party! To mark this milestone … Continue reading Please join us for 25 for ’25
Aging in a Disabling Society: Exploring Age, Disability, and Identity Through a Biographical Life-Course Lens. Emma Davis, a student at Durham University would particularly like to invite people living with … Continue reading Take part in research on getting older with impaired vision
The Nystagmus Network has been awarded ONE PLACE in the London Marathon 2026. The place will go to the applicant who makes the most compelling case to us. To apply … Continue reading The London Marathon – April 2026
Dear Parents and Carers The Education Select Committee is seeking evidence on short term actions to stabilise the SEND system which is currently experiencing increased demand, protracted waiting times … Continue reading SEND inquiry – please take our survey
We are delighted to share the wonderful news that our founder, honorary president and Nystagmus Network trustee, Vivien Jones has received the MBE “for services to the nystagmus community” in … Continue reading A New Year honour for Vivien, founder of the Nystagmus Network
Justine Chan, who is currently studying medicine at the University of Cambridge, won the Richard Wilson Essay Prize 2024. Part of her prize was to receive her £500 cheque at … Continue reading Justine receives her prize at the House of Lords
In 2023 the Nystagmus Network received a legacy gift from the late Mrs Rhoda Clarke in the sum of £32,114. 71 The gift was made in the name of Mrs … Continue reading Aunt Rhoda’s gift to nystagmus research
Elliot Judge is a third-year undergraduate student at Nottingham Trent University, studying Graphic Design. For his dissertation, he is investigating how public signage can be better designed to suit the … Continue reading Take part in research on signage
On Giving Tuesday 2024, the Nystagmus Network is offering you lots of opportunities to contribute to the work of the charity. On 3 December you can pledge your time and … Continue reading Giving Tuesday opportunities for you