Are you a qualified accountant who’d like to use your skills to make a difference? The Nystagmus Network is seeking a new Treasurer to join our friendly Board of Trustees … Continue reading We’re looking for a new Treasurer!
Nystagmus Network Children’s Christmas Card Competition 2025 with SALT Projects Ltd 💫 It’s that time again! 👀Are you a child living in the UK with a visual impairment? Or does … Continue reading Christmas card competition
Take on a challenge at your pace and fundraise for the Nystagmus Network! Choose your distance and your pace. Your challenge your way with Ultra Challenge, the UK’s No 1 … Continue reading What’s your challenge for 2026?
Dr Lee Mcilreavy (Cardiff University) is investigating visual acuity in infantile nystagmus “The Nystagmus Network is delighted to be collaborating with Fight for Sight by co-funding and supporting two 12 … Continue reading Lee investigates visual acuity in infantile nystagmus
Dr Eloise Keeling (University of Southampton):Â Investigating a potential treatment for Oculocutaneous Albinism type 1 (OCA1) “The Nystagmus Network is delighted to be collaborating with Fight for Sight by co-funding and … Continue reading Ellie investigates a potential treatment for Oculocutaneous Albinism
If you’ve never been to a big nystagmus meet up before, you really should try it. The Nystagmus Network has been hosting the meet ups in various towns and cities … Continue reading What’s so great about big nystagmus meet ups?
Welcome to August’s Pick of the Month! Cause4 are excited to feature individuals who are making a real impact in the charity world. From creative social innovators to tireless charity … Continue reading Sue is Cause4’s Charity Leader of the Month!
The Nystagmus Network has won a top prize at the UK Charity Governance Awards 2025. The charity was one of five big winners and took home a prize of £6,000 … Continue reading Nystagmus Network triumphs in UK Charity Governance Awards 2025
Following the announcement that Vivien Jones, Founder and Honorary President of the Nystagmus Network, had been awarded an MBE in His Majesty’s New Year Honours, Vivien and her family travelled … Continue reading Vivien receives her honours
We are absolutely thrilled to announce we have received a grant from Jeans for Genes. This incredible support will enable us to create and distribute a vital, parent-friendly resource to … Continue reading Our Jeans for Genes grant success
