Trustees
Meet the Nystagmus Network trustees
Vivien Jones
Vivien founded the Nystagmus Network in 1984. She continues to serve as a trustee and is the Honorary President of the charity.
- Role: Founder, Honorary President and trustee, chair of research committee
- Email: [email protected]
Tim Cuddeford
Tim joined the Nystagmus Network as a trustee in 2017. He serves as chair of the finance committee and was elected chair of trustees on 28 September 2019.
- Role: Chair of trustees, chair of finance committee
- Email: [email protected]
Vicky Pitman
Vicky became a trustee in September 2017 and treasurer in January 2018, putting her skills as a qualified chartered accountant to good use.
- Role: Treasurer and trustee
- Email: [email protected]
Peter Greenwood
Peter is a nystagmus parent who joined the Nystagmus Network as a trustee in May 2016.
- Role: Trustee, vice-chair of trustees, chair of awareness committee
- Email: [email protected]
John Vekinis
John is a junior doctor who became a trustee in June 2021. He is now training in ophthalmology.
- Role: Trustee
- Email: [email protected]
Kathryn Swanston
Kathryn became a trustee in November 2020 and serves as secretary to the trustees and acting chair of the support committee.
- Role: Secretary to the trustees, trustee
- Email: [email protected]
Karen Chu
Karen joined the Nystagmus Network as a trustee in November 2020.
- Role: Trustee, chair of funding committee
- Email: [email protected]
Harshal Kubavat
Harshal is the father of a child with nystagmus. He joined the charity as a trustee in November 2021.
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- Role: Trustee
- Email: [email protected]
Sharon Clifford
Sharon joined the Nystagmus Network as a trustee in April 2023
- Role: Trustee
- Email: [email protected]
Andy McFarlane
Andy joined the Nystagmus Network as a trustee in May 2023. Both Andy and his son, Dylan have congenital nystagmus.
- Role: Trustee
- Email: [email protected]
Paul Rose
Paul joined the charity as a trustee in February 2024 and has congenital torsional nystagmus. He hopes to use his people skills in the areas of support and awareness.
- Role: Trustee
- Email: [email protected]
Hannah Donnelly
Hannah joined the charity as a trustee in August 2024 and has congenital nystagmus. With a degree in British politics and legislative studies and experience in policy, Hannah hopes to use her knowledge and experience to support the charity.
- Role: Trustee
- Email: info@nystagmusnet.org