Trustees
Meet the Nystagmus Network trustees
Meet the Nystagmus Network trustees
Vivien founded the Nystagmus Network in 1984. She continues to serve as a trustee and is the Honorary President of the charity.
Tim joined the Nystagmus Network as a trustee in 2017. He serves as chair of the finance committee and was elected chair of trustees on 28 September 2019.
Vicky became a trustee in September 2017 and treasurer in January 2018, putting her skills as a qualified chartered accountant to good use.
Peter is a nystagmus parent who joined the Nystagmus Network as a trustee in May 2016.
John is a junior doctor who became a trustee in June 2021. He is now training in ophthalmology.
Kathryn became a trustee in November 2020 and serves as secretary to the trustees and acting chair of the support committee.
Karen joined the Nystagmus Network as a trustee in November 2020.
Harshal is the father of a child with nystagmus. He joined the charity as a trustee in November 2021.
David joined the Nystagmus Network as a trustee in August 2022.
Miriam has congenital nystagmus and joined the Nystagmus Network as a trustee in August 2022.
Sharon joined the Nystagmus Network as a trustee in April 2023
Andy joined the Nystagmus Network as a trustee in May 2023. Both Andy and his son, Dylan have congenital nystagmus.