Share your nystagmus story


Share your nystagmus story for Nystagmus Awareness Day.

Everyone loves a good story and everyone has a story to tell. We’ve been collecting your nystagmus stories since the charity was founded 40 years ago.

These stories bring comfort and hope to families when nystagmus is newly diagnosed.

For Nystagmus Awareness Day 2025 we’re giving you the opportunity once more to share your nystagmus story.

You can share your story in words, pictures, audio, video, or absolutely any medium you choose.

As 20 June draws nearer we’ll start sharing all your stories both here and on our Facebook page.

So get creating your story today!

Share your story with us at [email protected]