But you look fine …
Sometimes my world is foggy,
Soft and misty, a little blurry too,
Like someone gently shook the picture
While I was trying to look at you.
It can be wobbly, vibrating,
Sometimes even seeing double
I might go falling over, tripping,
Walking into bits of trouble.
My eyes can twitch and move about,
Horizontal, up and down,
Even spinning round in circles —
They never really settle down.
Bright lights can feel stinging,
The sunshine makes me squint,
With photophobia glaring bright,
Too strong to barely hint.
I get dizzy, I get tired,
My head finds a null point place,
Where things are just a little clearer
If I tilt my face.
There are hospitals, there are glasses,
There’s equipment that I use,
There’s feeling different, sometimes shy,
With worries I can’t choose.
Sometimes I want to hide away,
Feel embarrassed , small and blue,
With bumps and bruises on my knees
From things I didn’t see through.
But that’s not all my story —
That’s not all of me.
Because I am resilient,
Stronger than you know,
Full of charm and laughter,
With a special kind of glow.
I am happy, I have friends,
I adapt, I learn, I try,
Even when my world feels shaky,
I still reach for the sky.
A poem by Terri, Flynn’s Mum