Education resource HUB

At home and in early years settings

SEND within a COVID-19 pandemic

Current roles and responsibilities of parents/carers and local authorities regarding SEND provision and schooling during a COVID-19 pandemic. Contributed by Kevin McManamon at Geldards law firm, October 2020

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Education advocacy

Due to the complexity of SEND Law, the Nystagmus Network offers a one to one service to Nystagmus Network members to discuss a child’s individual education support needs in settings in England. To request a referral, please email us at info@nystagmusnet.org.

Primary School

Starting primary school is a big step for any child. For a child with nystagmus, it’s even more important to be well prepared.

Transition

Moving from primary to secondary school can mean all sorts of changes for the child with nystagmus. The team supporting the child can change and there are lots more things to consider inside the classroom and beyond.

Secondary School

As the number of subjects and teachers increases and public examinations appear just over the horizon, it’s time to establish support and the child’s preferred way of working.

Higher Education

Support and advice for vision impaired young people studying at university or other higher education institutions.

News

New figures show attainment gap remains for vision impaired pupils

Assistive Technology

Assistive technology is a key factor in providing children and young people with equal access to the curriculum. Your QTVI will be able to advise on assistive technology.

Education Health Care Plans (EHCPS)

The Council for Disabled Children provide examples of good practisc for the compilation of EHC plans, including their most recent exemplar guide 2017. Please read on to download.

Emotional Wellbeing

Some children and young people may need some additional help in coming to terms with sight loss or may want to talk about their sight loss to people outside of the family.

Mobility and Habilitation

Families supporting children with nystagmus are often unsure as to whether mobility training or habilitation is for them. It is!

Reading Resources

There is a wealth of adapted reading material, talking and tactile books and accessible libraries available to individuals, families and schools.

Useful Organisations

This is not an exhaustive list. We will add to it and keep it updated.

Low Vision

Low vision is the term used for eyesight that can’t be fully corrected with glasses or contact lenses. When wearing glasses or contact lenses, the child still has a vision impairment.

Disclaimer

This education resource hub is based on information gathered from the experience of parents of children with nystagmus and is designed purely to raise awareness of the support available