Fundraise for the Nystagmus Network

Do It Yourself Fundraising

Whether you’d like to help the Nystagmus Network support even more people who have nystagmus to be amazing, contribute to our investment in research or simply help us to continue our important work with the nystagmus community, we have lots of fundraising inspiration for you.

You can run a raffle, hold a cake sale, host a quiz night or whatever you want. We have hints and tips and all you need.

Bungee jump for nystagmus

The Nystagmus Network is offering a free bungee jump to anyone who can guarantee to raise at least £100 in sponsorship for the charity.

Your jump can take place at any one of 8 locations across the UK.

To apply, please email us at

Ultra Challenge Series 2020

Take part in the Ultra Challenge of your choice for the Nystagmus Network. Simply check the charity when you register and choose your fundraising option. We’ll be happy to part fund your place.

Walk, Jog or Run at YOUR pace on the Ultra Challenge Series event of your choice. Join 20,000 others in 2020 of all ages and experience for an unforgettable Challenge. It will be rewarding, fun, and absolutely achievable with your resolve and determination alongside first class support.

New Year discounts end on 29 February:

Charity sponsorship: 25%

Mixed-funding: 10%

 Self-funding: 10%

Are you a regular walker and new to endurance events? Perhaps a seasoned trekker looking for testing adventures? Or even a marathon runner wanting to ‘up’ your distance? Push yourself further – 100km Full Challenge, with Half and Quarter options also available. Whether it’s along magnificent coastal scenery, or in stunning open countryside, there’s an Ultra Challenge for you.

Easter 50 Challenge 11 April- information here

Isle of Wight Challenge 2/3 May – information here

London 2 Brighton Challenge 23/24 May – information here

Jurassic Coast Challenge 16/17 May – information here

Lake District Challenge 13/14 June – information here

Cotswold Way Challenge 27/28 June – information here

Peak District Challenge 4/5 July – information here

S West Coast 2 Coast Challenge 25/26 July – information here

South Coast Challenge 29/30 August – information here

Thames Bridges Trek 12 September – information here

Thames Path Challenge 12/13 September – information here

Chiltern 50 Challenge 26 September – information here

You’ll get full support and hospitality all the way, leaving you to focus on your challenge!

  • Rest stops – free food
  • Half or 1/4 Challenge options
  • 100km Challenge · Join as Individual or Team
  • Walk it, Jog it, or Run it · Pre-event training support + app
  • Camping options available
  • 2 Day Full ‘Daylight’ option
  • Run or Jog – set a New Goal!
  • Walk at Your Pace – 24 hours+
  • Medal, T shirt, glass of bubbly!
  • Medics, massage, and pace walkers
  • ALL meals/ food and drink included!
  • It’s Your Challenge – Your Way


Charity Sponsorship – pay a small registration fee and do lots of fundraising!

  • Full Challenge – £15 reg fee + £595 in fundraising
  • Half Challenge – £10 reg fee + £395 in fundraising
  • Quarter Challenge – £5 reg fee + £245 in fundraising

Mixed Funding – pay a higher contribution to the cost of your place and fundraise to a more achievable target.

  • Full Challenge – £99 reg fee + £299 in fundraising
  • Half Challenge – £64.50 reg fee + £199 in fundraising
  • Quarter Challenge – £39.50 reg fee + £119 in fundraising

Find out more about the route, support, hospitality and choose your Challenge at

Skydive for nystagmus research

We’ve signed up with UK Skydiving Adventures so you can take part in a charity tandem skydive at loads of locations around the country.

Simply click the link to the website and get yourself signed up. you’ll find Nystagmus Network listed as a charity.

So what’s stopping you? It’s just one brave leap from a plane, but it could be a huge step forward for nystagmus research!

Lottery sign up

Sign up for the Nystagmus Network Lottery and you could be in with the chance to win £25,000 for just £1 per week. There are lots of smaller weekly prizes, too.

All profits, after prizes have been paid, come directly to the Nystagmus Network.

Please sign up today. Thank you


Leaving a legacy gift will make a lasting difference for people with nystagmus.
Continue reading “Legacies”


You could be raising donations for the Nystagmus Network every time you shop online, simply by signing up with 

Every time you do your big weekly shop online, book your holiday or order your next good read you could be raising a few pence, or even a few pounds, for your favourite charity. And it won’t cost you a penny. Find out how it works here.

So please sign up with today.

Online fundraising

The Nystagmus Network encourages our fundraisers to get online and set up a Justgiving page to manage their sponsorship. It’s quick and easy to do. Your sponsors will be confident that it’s a well-recognised online fundraising platform, you won’t have to do anything else as the funds you raise will get transferred directly to us and we can collect 25% Giftaid automatically on all eligible donations, which means the total you raise for nystagmus will grow even bigger.

Continue reading “Online fundraising”