Fundraise for the Nystagmus Network

Do It Yourself Fundraising for Nystagmus

Trumpet the knitted scarecrow.

Whether you’d like to help the Nystagmus Network support even more people who have nystagmus to be amazing, contribute to our investment in research or simply help us to continue our important work with the nystagmus community, we have lots of fundraising inspiration for you.

You can run a raffle, hold a cake sale, host a quiz night or whatever you want. We have hints and tips and all you need.

Bungee jump for nystagmus

The Nystagmus Network is offering a free bungee jump to anyone who can guarantee to raise at least £100 in sponsorship for the charity.

Your jump can take place at any one of 8 locations across the UK.

To apply, please email us at

Nystagmus Network on ebay

Are you taking the time at home as an opportunity to clean out some cupboards? Have you been decluttering?

What are you going to do with all your stuff? Sell it on ebay?


Did you know that every time you list an item for sale you can now nominate the Nystagmus Network to receive a percentage of your sale price? You’ll find us in the drop down menu.

It’s so easy to do and can make a big difference to a little charity like ours.

Your listing will carry a blue and yellow ribbon to show everyone it’s a charitable listing. It might even encourage more people to bid.


Virtual Challenges

Make the most of your time outdoors (or inside!) with one of these fabulous fundraising challenges.

  1. choose your challenge
  2. sign yourself up
  3. set up your Justgiving page for sponsorship

Choose from:

Climb Everest – A 12 week challenge perfect for isolation. Complete a climb equivalent to Mount Everest (8,848m) either out and about on your daily exercise, climbing the stairs indoors, or a combination of the two!  

Inca Trail – A virtual challenge to tick off the bucket list.  A 25 mile run, walk or jog to be completed in as many efforts as you can manage.

Team Gotham – Not all Superheros wear capes … some have to fight crime in isolation too! This is a 5k challenge, perfect for families who want to complete it together, or anyone looking to stay fit during lockdown.

The Big Charity Run – The ultimate challenge: pick a 30, 60, 90 or 120 mile distance to complete over a single month.  You can run, walk or cycle so set yourself an ambitious target and stay motivated!

Location Specific Races – If you’re looking for something that’s as close to a road race as physically possible, there are a number of location specific races included so you can take part in a race on a specific date.

Choose your challenge here

Saturday Night Quiz

Saturday night quiz flyer.

We’re running a fun Nystagmus Network virtual quiz night every Saturday night at 7pm.

Test your general knowledge whilst spending some quality ‘together’ time with friends and family. There are cash prizes for the 1st, 2nd and 3rd placed players, too.

Players will also be helping us keep delivering our support and information services. Thank you for your support.

Sign up to play here

Lockdown fundraisers

Nystagmus Network logo.

Lockdown doesn’t stop us! Don’t let it stop you!

We’re still here supporting the 1 in 1,000 people who have congenital or acquired nystagmus, by phone, email and on social media, but we do need your support now more than ever before to carry on.

Release your inner fundraiser during lockdown

With marathons, 10k runs, sky dives and tough mudders all postponed for the summer, there’s still lots of opportunity to take part in virtual runs and challenges right now.

Continue reading “Lockdown fundraisers”

The Two Point Six Challenge

Calling all nystagmus heroes …

The Covid-19 pandemic has had a devastating effect on charities, with the cancellation of 1,000s of events and the loss of £billions in fundraising income.

In response, the organisers of the biggest mass-participation sports events across the country have come together to create a new campaign to raise vital funds to help to save the UK’s charities, including the Nystagmus Network.

Continue reading “The Two Point Six Challenge”

Declutter And Donate for nystagmus

#Declutter and Donate postcard.

Are you taking some time during lockdown to declutter your cupboards and shelves? Now you can turn your unwanted items into donations!

The Nystagmus Network is inviting you to join in with national #DeclutterAndDonate. It’s part of the global #GivingTuesdayNow initiative.

It’s a totally safe and fun way to support our work in the nystagmus community. You’ll have some fabulously tidy cupboards at the end, too!

Thanks to Virgin Money Giving and Ziffit you can now donate your unwanted books, games, CDs and DVDs from your home.

The Nystagmus Network receives the full value, with no fees. You can even add Gift Aid if you’re a UK tax payer.

Here’s how:

Download the Ziffit App

Scan your unwanted stuff

Box it up

Print your label

Contact free collection

Fundraising Opportunities

Simon in Nystagmus Network T shirt.

The Nystagmus Network relies entirely on fundraising, donations, membership subscriptions and gifts in wills to continue our work. Whether you’re running a marathon, holding a cake sale, or anything in between, we’ll be here every step of the way to support you to raise as much money and awareness of nystagmus as possible.
Continue reading “Fundraising Opportunities”

The Nystagmus Network relies entirely on fundraising, donations, membership subscriptions and gifts in wills to continue our work. Whether you’re running a marathon, holding a cake sale, or anything in between, we’ll be here every step of the way to support you to raise as much money and awareness of nystagmus as possible.
Continue reading “Fundraising Opportunities”

Virtual runs

It’s still possible to run a marathon this year. You’ve been keeping fit during lockdown. Your training continued on your daily time outside. All the big runs are cancelled, but … you can still run – on a virtual track with Strava.

Your run, how, where and when you want it – you can even take your time!

Want to run the virtual Great North Run for the Nystagmus Network?

You can! Here’s how:

Virtual Great North Run

Want to run the Edinburgh Festival Virtual Marathon Challenge for the Nystagmus Network?

You can! Here’s how:

Edinburgh Festival Virtual Marathon Challenge

Want to run the virtual 40th London Marathon for the Nystagmus Network?

You can! Here’s how:

London Marathon

Want to run the Brighton Marathon 2020 for the Nystagmus Network?

You can! Find out how, here:

Brighton Marathon 2020

Want to raise some sponsorship for the Nystagmus Network?

You can with Justgiving.

Set up your Justgiving page here

Ultra Challenge Series 2020

Take part in the Ultra Challenge of your choice for the Nystagmus Network. Simply check the charity when you register and choose your fundraising option. We’ll be happy to part fund your place.

Walk, Jog or Run at YOUR pace on the Ultra Challenge Series event of your choice. Join 20,000 others in 2020 of all ages and experience for an unforgettable Challenge. It will be rewarding, fun, and absolutely achievable with your resolve and determination alongside first class support.

Continue reading “Ultra Challenge Series 2020”

Skydive for nystagmus research

We’ve signed up with UK Skydiving Adventures so you can take part in a charity tandem skydive at loads of locations around the country.

Simply click the link to the website and get yourself signed up. you’ll find Nystagmus Network listed as a charity.

So what’s stopping you? It’s just one brave leap from a plane, but it could be a huge step forward for nystagmus research!

Lottery sign up

A postcard advertising the Nystagmus Network weather lottery.

Sign up for the Nystagmus Network Lottery and you’ll be in with the chance to win £25,000 for just £1 per week. There are lots of smaller weekly prizes, too.

All profits, after prizes have been paid, come directly to the Nystagmus Network. This means we can continue our important work providing support and information, raising awareness and funding research.

Please sign up here

Thank you

Run for nystagmus

Run for us!

The Nystagmus Network is inviting runners from all over the UK to run for us to help raise much needed funding for research and education support.

Visit Run for Charity to register your interest and choose the run or other event you’d like to take part in.

Run for nystagmus here.


Children sit around a mat interacting with their teacher.

Leaving a legacy gift will make a lasting difference for people with nystagmus.
Continue reading “Legacies”


You could be raising donations for the Nystagmus Network every time you shop online, simply by signing up with 

Every time you do your big weekly shop online, book your holiday or order your next good read you could be raising a few pence, or even a few pounds, for your favourite charity. And it won’t cost you a penny.

From entertainment packages to fitness equipment and more, you can still support the Nystagmus Network from home, by shopping online through #easyfundraising.

Signing up is quick and easy.  Find out how it works here.

So please sign up with today

Online fundraising

The Nystagmus Network encourages our fundraisers to get online and set up a Justgiving page to manage their sponsorship. It’s quick and easy to do. Your sponsors will be confident that it’s a well-recognised online fundraising platform, you won’t have to do anything else as the funds you raise will get transferred directly to us and we can collect 25% Giftaid automatically on all eligible donations, which means the total you raise for nystagmus will grow even bigger.

Continue reading “Online fundraising”