Fundraise for the Nystagmus Network

Do It Yourself Fundraising

Whether you’d like to help the Nystagmus Network support even more people who have nystagmus to be amazing, contribute to our investment in research or simply help us to continue our important work with the nystagmus community, we have lots of fundraising inspiration for you.

You can run a raffle, hold a cake sale, host a quiz night or whatever you want. We have hints and tips and all you need.

Ultra Challenge Series 2020

Push Yourself Further – 10 great events in 2020

Are you a regular walker and new to endurance events? Perhaps a seasoned trekker looking for testing adventures? Or even a marathon runner wanting to ‘up’ your distance? Whether it’s along magnificent coastal scenery, or in stunning open countryside, there’s an Ultra Challenge for you.

Walk, Jog or Run at YOUR pace on the Ultra Challenge Series event of your choice. Join 20,000 others in 2020 of all ages and experience for an unforgettable Challenge. It will be rewarding, fun, and absolutely achievable with your resolve and determination alongside first class support.

Push yourself further – 100km Full Challenge, with Half and Quarter options also available.

You’ll get full support and hospitality all the way, leaving you to focus on your challenge!

  • Rest stops – free food
  • Half or 1/4 Challenge options
  • 100km Challenge · Join as Individual or Team
  • Walk it, Jog it, or Run it · Pre-event training support + app
  • Camping options available
  • 2 Day Full ‘Daylight’ option
  • Run or Jog – set a New Goal!
  • Walk at Your Pace – 24 hours+
  • Medal, T shirt, glass of bubbly!
  • Medics, massage, and pace walkers
  • ALL meals/ food and drink included!
  • It’s Your Challenge – Your Way


Charity Sponsorship – pay a small registration fee and do lots of fundraising!

  • Full Challenge – £15 reg fee + £595 in fundraising
  • Half Challenge – £10 reg fee + £395 in fundraising
  • Quarter Challenge – £5 reg fee + £245 in fundraising

Mixed Funding – pay a higher contribution to the cost of your place and fundraise to a more achievable target.

  • Full Challenge – £99 reg fee + £299 in fundraising
  • Half Challenge – £64.50 reg fee + £199 in fundraising
  • Quarter Challenge – £39.50 reg fee + £119 in fundraising

Find out more about the route, support, hospitality and choose your Challenge at

Skydive for nystagmus research

We’ve signed up with UK Skydiving Adventures so you can take part in a charity tandem skydive at loads of locations around the country.

Simply click the link to the website and get yourself signed up. you’ll find Nystagmus Network listed as a charity.

So what’s stopping you? It’s just one brave leap from a plane, but it could be a huge step forward for nystagmus research!

Our lottery

Sign up for the Nystagmus Network Lottery and you could be in with the chance to win £25,000 for just £1 per week. There are lots of smaller weekly prizes, too.

All profits, after prizes have been paid, come directly to the Nystagmus Network.

Please sign up today. Thank you


Leaving a legacy gift will make a lasting difference for people with nystagmus.
Continue reading “Legacies”


You could be raising donations for the Nystagmus Network every time you shop online, simply by signing up with 

Every time you do your big weekly shop online, book your holiday or order your next good read you could be raising a few pence, or even a few pounds, for your favourite charity. And it won’t cost you a penny. Find out how it works here.

So please sign up with today.

Online fundraising

The Nystagmus Network encourages our fundraisers to get online and set up a Justgiving page to manage their sponsorship. It’s quick and easy to do. Your sponsors will be confident that it’s a well-recognised online fundraising platform, you won’t have to do anything else as the funds you raise will get transferred directly to us and we can collect 25% Giftaid automatically on all eligible donations, which means the total you raise for nystagmus will grow even bigger.

Continue reading “Online fundraising”

Remembering a loved one

When a loved one dies, family and friends left behind need the chance to say goodbye, honour their memory and look for meaning in the death by remembering their achievements and celebrating their life.

The Nystagmus Network is grateful to those thoughtful families who turn to the charity at these sad times to raise an In Memoriam fund in the name of their loved one to help us continue our important work: providing support and information, raising awareness of the condition and funding research.

If you would like our support to remember your loved one in this way, you can contact us at any time.