National and international Nystagmus Awareness Day – 20 JUNE
Huge thanks to everyone who helped to make Nystagmus Awareness Day 2019 such a great success.
How amazing are you?
In the run up to Nystagmus Awareness Day 2019, we once again shared your amazing nystagmus success stories. You can read all our amazing stories on our blog, here, on our Facebook Page or on Twitter. Thank you to everyone who shared their amazing story of success or achievement despite, or maybe even because of, having nystagmus.
Our wobbly week competition
We wanted to raise as much awareness of nystagmus as possible and make sure that everyone had a chance to take part, so we ran our wobbly week competition:
Nystagmus is …
All you had to do was tell us what it’s like to have nystagmus to earn the chance to win some fabulous prizes. Over 100 people entered the competition. We’ve now announced the winner, here.
Thank you to everyone who took part. All your entries will be compiled into a new guide to nystagmus for adults which we hop to publish later this year.
parkrun for Nystagmus Awareness Day 2019
This year we encouraged everyone to take part in a parkrun, to get out into your local park and walk or run for nystagmus awareness. Loads of adults and children took part and raised lots of lovely sponsorship. Thank you, everyone.
Why do we need Nystagmus Awareness Day?
Here at the Nystagmus Network we raise awareness of the condition every single day of the year, because we believe that the more people who know about it the better. It means that adults and children who have nystagmus will get the help, support and services they need in education, employment, health, mobility and leisure and everyone affected will enjoy a better quality of life.
Holding a national and international Nystagmus Awareness Day serves as a reminder to everyone that we are here and our voices need to be heard. Every time you invite someone to a Nystagmus Awareness Day event or tell someone what you’re doing and why, that’s one more person who understands what nystagmus is.
Every pound you raise helps the Nystagmus Network support our research teams across the UK to investigate this hugely complex condition, to find better diagnosis, treatments and continue to work towards prevention and cure.