Nystagmus Awareness Day


National and international Nystagmus Awareness Day – 20 JUNE

How amazing are you?

In the run up to Nystagmus Awareness Day 2019, we’re once again sharing your amazing nystagmus success stories. You can read all our amazing stories on our blog, here, on our Facebook Page or on Twitter. If you’d like us to share your amazing story of success or achievement despite, or maybe even because of, having nystagmus, please send a few words and a photo to info@nystagmusnet.org

Our wobbly week competition

We want to raise as much awareness of nystagmus as possible and make sure that everyone has a chance to take part, so today we’re running our wobbly week competition:

Nystagmus is 

All you have to do is tell us what it’s like to have nystagmus to earn the chance to win some fabulous prizes. Enter the competition here.

parkrun for Nystagmus Awareness Day 2019

This year we’re encouraging everyone to take part in a parkrun, to get out into your local park and walk or run for nystagmus awareness.

You can take part in parkrun just about anywhere in the country, every week of the year. But what better way to raise awareness of nystagmus than to do your parkrun during “wobbly week”?

On Saturday 22 June you can take part in a full parkrun. That’s 5k

CLICK HERE to find your parkrun

On Sunday 23 June children 4-14 years and their families can take part in junior parkrun. That’s 2k

CLICK HERE to find your junior parkrun

parkrun is fully accessible to people with vision impairment.

Nystagmus Awareness Day events

If you prefer, you can organise your own event on Nystagmus Awareness Day itself, Thursday 20 June, or during ‘Wobbly Week’ which runs from 17 to 23 June, including good old “wobbly Wednesday” on 19 June.

Get your Nystagmus Awareness Day inspiration here.

FREE resources

We have free to download posters, PowerPoint presentations, lesson plans, bunting and loads more!

FIND EVERYTHING YOU NEED in our online shop today.

Why do we need Nystagmus Awareness Day?

Here at the Nystagmus Network we raise awareness of the condition every single day of the year, because we believe that the more people who know about it the better. It means that adults and children who have nystagmus will get the help, support and services they need in education, employment, health, mobility and leisure and everyone affected will enjoy a better quality of life.

Holding a national and international Nystagmus Awareness Day serves as a reminder to everyone that we are here and our voices need to be heard. Every time you invite someone to a Nystagmus Awareness Day event or tell someone what you’re doing and why, that’s one more person who understands what nystagmus is.

Every pound you raise helps the Nystagmus Network support our research teams across the UK to investigate this hugely complex condition, to find better diagnosis, treatments and continue to work towards prevention and cure.

Let’s make Nystagmus Awareness Day 2019 the biggest and best ever!