How amazing are you?

Share your nystagmus success stories with us

It wouldn’t be Nystagmus Awareness Day without your amazing nystagmus stories. So once again we’re asking you to celebrate your achievements, despite of, or maybe even because of having nystagmus.

Not only do these stories help raise awareness of nystagmus, but they also bring hope to so many parents whose children have just been diagnosed. In previous years we’ve heard some truly amazing stories of success. We want to celebrate your achievements with you and make Nystagmus Awareness Day 2021 even more amazing!

We will feature all your amazing stories here and on our Facebook page

Send your amazing nystagmus story to

How amazing is Doug?

Doug wears a wet suit and goggles.

Earlier this year Doug completed the Royal Parks Half Marathon for the Nystagmus Network.

Doug says: 13.1 miles. 25,000 steps, a step for every time someone has told me I need to have my glasses checked.

Read Doug’s amazing nystagmus story here

How amazing is Tim?

Tim holding an award

Tim has a whole clutch of awards for his work.

He says: I ain’t done bad for a lad that can’t see too well.

Read Tim’s amazing nystagmus story here

How amazing is Katrina

Katrina in her Girl Power T shirt

Katrina did well at school, has worked hard throughout the pandemic and keeps herself fit with clubbercise.

She says: I have had congenital nystagmus all my life and I have never let it hold me back.

Read Katrina’s amazing nystagmus story here