The Nystagmus Network works closely with the UK nystagmus research and clinical centres to bring you opportunities to take part in research.
NystagME
A team of nystagmus researchers have created some games with the aim of testing vision in a novel way. They need your help to decide which one is best. If you can spare 5 minutes, please follow the link below and have fun – it will help them a lot!
The games are for people of any age, with and without nystagmus. They need to be done on a desktop computer with a mouse and not an iPad or phone.
Enjoy!
Try the games here
Nystagmus and Disorientation
Dr Heiko Rust at the University Hospital in Basel, Switzerland invites you to take part in research by phone. Dr Rust is particularly interested to hear from people living in the UK who have congenital or acquired nystagmus.
More details and how to take part here
Imperial College London
A team at Imperial are recruiting people with infantile nystagmus due to vestibular conditions to help them better understand oscillopsia. Taking part will involve one in person session at Charing Cross Hospital, London.
Information and contacts here
University of Southampton
Mr Jay Self is inviting you to take part in a research project to help cut hospital appointment waiting times for nystagmus patients. Jay and his team have studied the use of a hand-held device (RETeval®) which can help diagnose many eye conditions and, importantly, can be used in any eye department, anywhere in the country meaning shorter waiting times.
Details and contacts here
University of Plymouth
Dr Mahesh Joshi and Dr Asma Zahidi invite anyone who has Infantile (Congenital) Nystagmus aged between 18 and 35 to take part in ‘Perceptual Learning for Nystagmus, a new study jointly funded by the Nystagmus Network and Fight for Sight and run in collaboration with Cardiff University.
Details and contacts here
Anglia Ruskin University
Parents and their primary school aged children are invited to take part in research at home using an App to explore social interaction, creativity, communication and spatial awareness.
Details and contacts here
University of Cardiff
The Research Unit for Nystagmus at Cardiff University invites anyone who has infantile nystagmus and is interested in hearing about upcoming research participation opportunities to join their participant database by filling out this quick questionnaire.
To help us continue to support research studies you can donate to our research fund here