The Nystagmus Network works closely with the UK nystagmus research and clinical centres to bring you opportunities to take part in research.
Nystagmus and Disorientation
Dr Heiko Rust at the University Hospital in Basel, Switzerland invites you to take part in research by phone. Dr Rust is particularly interested to hear from people living in the UK who have congenital or acquired nystagmus.
More details and how to take part here
Imperial College London
A team at Imperial are recruiting people with infantile nystagmus due to vestibular conditions to help them better understand oscillopsia. Taking part will involve one in person session at Charing Cross Hospital, London.
Information and contacts here
University of Southampton
Mr Jay Self is inviting you to take part in a research project to help cut hospital appointment waiting times for nystagmus patients. Jay and his team have studied the use of a hand-held device (RETeval®) which can help diagnose many eye conditions and, importantly, can be used in any eye department, anywhere in the country meaning shorter waiting times.
Details and contacts here
University of Plymouth
Dr Mahesh Joshi and Dr Asma Zahidi invite anyone who has Infantile (Congenital) Nystagmus aged between 18 and 35 to take part in ‘Perceptual Learning for Nystagmus, a new study jointly funded by the Nystagmus Network and Fight for Sight and run in collaboration with Cardiff University.
Details and contacts here
Anglia Ruskin University
Parents and their primary school aged children are invited to take part in research at home using an App to explore social interaction, creativity, communication and spatial awareness.
Details and contacts here
Also at Anglia Ruskin
Student Natalie Assaf invites you to join her for 60 minutes in Cambridge to take part in her research on the impact of impaired vision on the brain.
Details and contacts here
University of Birmingham
Take part in research to help make university life better for students with impaired vision. You can take part in this study if you are a current or recent university student with a vision impairment.
Details and contacts here
University of Sheffield
Are you aged between 16 and 25?
Have you accessed UK-based eye clinic and low vision services as a child or young adult?
If so, a team at the University of Sheffield would like to invite you to take part in a research project.
They want to understand the impact of paediatric low vision clinical services from the patient’s point of
view. You can talk about your experiences in a Google Meet interview.
The research team is based at the Division of Ophthalmology and Orthoptics, University of Sheffield.
Details and contacts here
University of Cardiff
The Research Unit for Nystagmus at Cardiff University invites anyone who has infantile nystagmus and is interested in hearing about upcoming research participation opportunities to join their participant database by filling out this quick questionnaire.
Take part in research – Isle of Man residents only
We are happy to share an opportunity for residents of the Isle of Man living with congenital or acquired nystagmus to take part in a quality of life study.
More details here
City University of New York and University of Wisconsin-Milwaukee
You are invited to participate in a research study titled “Understanding the Experiences of Individuals with Eye Movement Disorders.” This study aims to explore the lived experiences, challenges, and perspectives of individuals living with eye movement disorders. By sharing your experiences, you can contribute valuable insights that may help improve awareness, treatment options, and overall quality of life for individuals living with these conditions.
More details and consent to take part here
To help us continue to support research studies you can donate to our research fund here