We run monthly online get togethers for parents and for adults living with acquired or congenital nystagmus. It’s a great way to connect with other members of the nystagmus community.

“What a brilliant idea the get together is and I really enjoyed it – a wide range of people with unique stories – obviously a lot of thought went into it and I can’t wait till the next one.”

“The Nystagmus Network online get together is really good for stress relief.”

We also run local face to face get togethers – that’s just another way to help keep you connected.

Virtual parents’ get together

The Nystagmus Network hosts virtual parent get togethers on Zoom. If you’re the parent, carer or other family member of a child or young person with nystagmus and would like to join in, meet others and make new friends, please email us at [email protected]

Virtual adults’ get together – congenital nystagmus

The Nystagmus Network hosts virtual adult get togethers on Zoom. If you’re an adult living with congenital nystagmus and would like to join in, connect with other people with nystagmus and make new friends, please email us at [email protected]

Acquired nystagmus get together

We run a virtual get together for people living with Acquired Nystagmus, too. Come and join us to chat about every topic imaginable, from diagnosis and symptom management to lifestyle and driving. If you would like to join in, please email us at info@nystagmusnet.org