Sue with a bouquet of flowers.

Sue Ricketts

Sue has served in various volunteer roles with the Nystagmus Network including Parent Adviser and Trustee since 1991, when her baby daughter was diagnosed with congenital nystagmus. She joined the charity’s staff team in 2015, following a 25 year career in adult and community learning. She is passionate about lifelong learning, equal opportunities and improving life for people living with nystagmus.

Hanni Heather

Hanni Heather

Hanni has a BA Hons in Primary Education and for the last 12 years as worked in early years education, most recently as a Managing Director of a Montessori nursery. She is passionate about working with and supporting children with additional needs and has worked as a SENDCo for many years, too. Hanni has lived experience of congenital nystagmus and is registered severely sight impaired. 

Lloyd Sakr headshot.

Lloyd Sakr

Lloyd has recently graduated with a BA Hons in Event Management. Alongside his studies, he also volunteered for various organisations, gaining a variety of experience. He is passionate about raising awareness of the Nystagmus Network, so that more people living with nystagmus can access support. Lloyd has lived experience of congenital nystagmus and was also born with Optic Nerve Hypoplasia.