Vivien Jones

Vivien Jones

Vivien founded the Nystagmus Network in 1984. She continues to serve as a trustee and is the Honorary President of the charity.

  • Role: Founder, Honorary President and trustee, chair of research committee
  • Email:

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Tim Cuddeford

Tim Cuddeford

Tim joined the Nystagmus Network as a trustee in 2017. He serves as chair of the finance committee and was elected chair of trustees on 28 September 2019.

  • Role: Chair of Trustees, chair of finance committee
  • Email:

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Vicky Pitman

Vicky Pitman

Vicky became a trustee in September 2017 and treasurer in January 2018, putting her skills as a qualified chartered accountant to good use. 

  • Role: Treasurer and trustee
  • Email:

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Claire Brinn wearing her Nystagmus Network T shirt

Claire Brinn

Claire joined the Nystagmus Network as a trustee in September 2017. She is a commercial lawyer with a background in economics and serves as a volunteer education advocate.

Head shot of John Vekinis

John Vekinis

John is a junior doctor who trained at KCL and Imperial, graduating with an MBBS and iBSc in Surgery and Anaesthesia. He will be starting ophthalmology training in summer 2021 in North London after completing his foundation training, and will be researching and treating conditions associated with nystagmus. John became a trustee in June 2021.

Head shot of Richard Blakemore

Richard Blackmore, Trustee

Richard joined the Nystagmus Network as a trustee in November 2020. He has congenital nystagmus and works as a diversity and inclusion lead and has a background in contract and employment law.

Head shot of Kathryn Swanston

Kathryn Swanston

Kathryn is a former Chief Executive at the Faculty of Pharmaceutical Medicine, a medical education and standard setting membership charity. Before working in the voluntary sector Kathryn trained and worked as an orthoptist.  Kathryn is excited to join the Nystagmus Network and to contribute to its wonderful work.

Headshot of Karen Chu

Karen Chu

Karen joined the Nystagmus Network as a trustee in November 2020. She has a broad global background in the financial markets industry and the voluntary sector.