Vivien Jones

Vivien Jones


Vivien founded the Nystagmus Network in 1984. She continues to serve as a trustee and is the Honorary President of the charity.

  • Role: Founder, Honorary President and trustee, chair of research committee
  • Email: vivien.jones@nystagmusnet.org

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Tim Cuddeford

Tim Cuddeford


Tim joined the Nystagmus Network as a trustee in 2017. He serves as chair of the finance committee and was elected chair of trustees on 28 September 2019.

  • Role: Chair of Trustees, chair of finance committee
  • Email: tim.cuddeford@nystagmusnet.org

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Vicky Pitman

Vicky Pitman


Vicky became a trustee in September 2017 and treasurer in January 2018, putting her skills as a qualified chartered accountant to good use. 

  • Role: Treasurer and trustee
  • Email: info@nystagmusnet.org

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Claire Brinn wearing her Nystagmus Network T shirt

Claire Brinn


Claire joined the Nystagmus Network as a trustee in September 2017. She is a commercial lawyer with a background in economics and serves as a volunteer education advocate.

Head shot of Richard Blakemore

Richard Blackmore, Trustee


Richard joined the Nystagmus Network as a trustee in November 2020. He has congenital nystagmus and works as a diversity and inclusion lead and has a background in contract and employment law.

Head shot of Kathryn Swanston

Kathryn Swanston


Kathryn is a former Chief Executive at the Faculty of Pharmaceutical Medicine, a medical education and standard setting membership charity. Before working in the voluntary sector Kathryn trained and worked as an orthoptist.  Kathryn is excited to join the Nystagmus Network and to contribute to its wonderful work.

Headshot of Karen Chu

Karen Chu


Karen joined the Nystagmus Network as a trustee in November 2020. She has a broad global background in the financial markets industry and the voluntary sector.