National and international Nystagmus Awareness Day – 20 JUNE
Nystagmus in the open
Wednesday 20 June is the new permanent date for Nystagmus Awareness Day. In 2018 we celebrated the very first Nystagmus Awareness Day in the summer time under the banner ‘nystagmus in the open’.
Thank you to everyone who organised or took part in events, raised money for nystagmus and helped us raise awareness of the condition.
How amazing are you?
In the run up to Nystagmus Awareness Day 2018, we asked you to share your amazing nystagmus success stories. You can read about all the amazing nystagmus adult and children on our blog here.
Why do we need Nystagmus Awareness Day?
Here at the Nystagmus Network we raise awareness of the condition every single day of the year, because we believe that the more people who know about it the better. It means that adults and children who have nystagmus will get the help, support and services they need in education, employment, health, mobility and leisure and everyone affected will enjoy a better quality of life.
Holding a national and international Nystagmus Awareness Day serves as a reminder to everyone that we are here and our voices need to be heard. Every time you invite someone to a Nystagmus Awareness Day event or tell someone what you’re doing and why, that’s one more person who understands what nystagmus is.
Every pound you raise helps the Nystagmus Network support our research teams across the UK to investigate this hugely complex condition, to find better diagnosis, treatments and continue to work towards prevention and cure.
Thank you to everyone who supported Nystagmus Awareness Day 2018