#I’mNotMakingThisUp
Whether you’ve been told to clean your glasses, try a bit harder or stop putting it on, we want to hear your stories about the things about nystagmus you’re definitely not making up
Henry’s story
Henry and the Definitely-Needed Shades
Meet Henry, he’s five, he’s bright as can be,
With a laugh that jumps out like a climbing-tree spree.
He wears super-cool glasses, dark lenses, just so,
Even indoors… even when sunshine is low.
Bryony’s story
How come you don’t drive?
#ImNotMakingThisUp when I say I can’t drive because of my eye condition.
The most challenging aspect of nystagmus for me is not being able to drive. I’m fortunate to have family and friends who understand how nystagmus affects me, but I dread being asked the question by people who haven’t heard of the condition – ‘how come you don’t drive?’
Fairouz’s story
I’m not ‘doing it on purpose’Â
I share my story so that people understand that, behind nystagmus, there are courageous children fighting to succeed. We are not looking for pity, but for respect and understanding. In Algeria, as elsewhere, we exist and we succeed.
Flynn’s story
But you look fine …
Sometimes my world is foggy,
Soft and misty, a little blurry too,
Like someone gently shook the picture
While I was trying to look at you.