Help create a VI and HI friendly website The University of Strathclyde are recruiting participants for a study on assistive technologies for older people with Deafness or Visual […]

Christmas card design competition Children’s Christmas Card Design Competition 2024 with SALT Projects Ltd This competition is open to all children living in the UK with a visual i […]

Another chance to hear our appeal If you missed our BBC Radio 4 charity appeal broadcast on Sunday, there’s another chance to hear actor, singer, musician and children’s author, […]

Justine wins the Richard Wilson Prize 2024 The Nystagmus Network is delighted to announce that Justine Chan, who is currently studying medicine at the University of Cambridge, has won the […]

Did you miss our appeal broadcast? Actor, singer, musician and children’s author, Gerard McDermott, who also happens to have nystagmus, presented a BBC Radio 4 charity appeal on […]

Listen to our BBC Radio 4 charity appeal Actor, singer, musician and children’s author, Gerard McDermott presents a BBC Radio 4 charity appeal on behalf of the Nystagmus Network […]

Gerard presents the Nystagmus Network our BBC Radio 4 charity appeal Actor, singer, musician and children’s author, Gerard McDermott will present the BBC Radio 4 charity appeal on behalf of the Nystagmus Network on […]

Take part in research on disorientation A team of researchers led by Dr Heiko Rust, based at the University of Basel Hospital in Switzerland, are inviting members of the UK nystagmus […]

Nystagmus Network visits pioneering research in London The Nystagmus Network is committed to supporting groundbreaking research, from understanding the root causes of nystagmus through to managing and […]

Our Facebook group for grandparents When your child becomes a parent your relationship with them moves into an exciting new phase. Alongside that, you have an entirely new little […]

New date for the Nystagmus Network AGM 2023 The Annual General Meeting 2023 (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organisation or CIO”) will be held online […]

Marsha's message for Nystagmus Awareness Day 2024 Thank you to Marsha de Cordova for taking a few moments out of her busy schedule to celebrate with us Nystagmus Awareness Day 2024 in our Ruby Year. Watch Marsha’s message on our YouTube channel here

Angela's StoryI am in my 50s and in my generation, there was little awareness or support for people with nystagmus or their parents. Growing up, I was always a […]

It's nearly Nystagmus Awareness Day 2024 Make sure you’re ready to take part in Nystagmus Awareness Day 2024 on 20 June. Your FREE digital programme has all the information and links you […]

Calling people living with nystagmus in Scotland who are over 65 Are you an older adult living with visual impairment? We are a team of researchers at the University of Strathclyde who want to explore your […]

Take part in research at Charing Cross Hospital, London Sarah Hösli, Honorary Senior Research Fellow with the Brain and Vestibular Group at Imperial College London, part of Dr Barry Seemungal’s team, in […]

Nystagmus Network trustees publish their annual report for 2023 Through 2023 the charity has gone from strength to strength in delivering support, funding research, and raising awareness. As we enter our Ruby […]

Notice of the Nystagmus Network AGM 2023 Notice is hereby given that the Annual General Meeting 2023 (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organ […]

Mike's Southampton family send off As Mike takes on his latest Walk for Wiggly Eyes 4 challenge in Croatia, his Mum, Karen, tells us about an amazing party she hosted for Mike, his […]

Booking is now open for our London event Our next big nystagmus meet up takes place in London on Saturday 13 July, from 11am to 4pm. This is your chance to hear all the latest nystagmus […]