Annual General Meeting (AGM) 2025 Notice is hereby given that the AGM of the Nystagmus Network will take place online on Monday 1 June at 6pm. Members are invited to exercise th […]

Thank you, Kim! When Kim applied to the Nystagmus Network for a place in the TCS London Marathon 2026, we didn’t hesitate to award her our charity ballot […]

Congratulations Ryan! After unexpectedly winning a place for the TCS London Marathon 2026 in the public ballot, Ryan became a (very) accidental first time marathon […]

Trustees publish their annual report 2025 Trustees of the Nystagmus Network have lodged their annual accounts and report of charitable activities with the Charity Commission. 2025 was a […]

Employment matters One year on from the publication of Changing Attitudes, Changing Lives, the All Party Parliamentary Group (APPG) on Eye Health and Vision Impairment […]

Participants wanted for nystagmus research This is your opportunity to take part in research by a team at the University of Sheffield to understand how people with nystagmus focus on objects. […]

International Nystagmus Symposium 2026 Early bird registration is now open for the International Nystagmus Symposium online on Friday 6 November 2026. Co-chaired once again this year […]

Our January sale is on! Pick up a bargain in our January Sale with up to 50% off a range of charity merchandise. T shirts, caps, teddies, Christmas cards, books and […]

Nystagmus Network Christmas eCards Did you know you can send a festive eCard in aid of the Nystagmus Network? There are lots of designs to choose from. Send your friends and family a last minute card to show how much you care. Send your eCard here

Richard Wilson Essay Prize winners – 2025 Following the 2025 Richard Wilson Essay Prize competition, we are delighted to announce our winners. First Prize:  Yasaman Salari, Academic […]

Giving Tuesday 2025 Whether you’re visiting the Nystagmus Network website for the very first time today or you’ve been with us for a while, you are now part of a huge […]

Christmas card competition Nystagmus Network Children’s Christmas Card Competition 2025 with SALT Projects Ltd 💫 It’s that time again! 👀Are you a child living in the UK […]

What's your challenge for 2026? Take on a challenge at your pace and fundraise for the Nystagmus Network! Choose your distance and your pace. Your challenge your way with Ultra […]

Lee investigates visual acuity in infantile nystagmus Dr Lee Mcilreavy (Cardiff University) is investigating visual acuity in infantile nystagmus “The Nystagmus Network is delighted to be […]

Ellie investigates a potential treatment for Oculocutaneous Albinism Dr Eloise Keeling (University of Southampton): Investigating a potential treatment for Oculocutaneous Albinism type 1 (OCA1) “The Nystagmus […]

What's so great about big nystagmus meet ups? If you’ve never been to a big nystagmus meet up before, you really should try it. The Nystagmus Network has been hosting the meet ups in […]

Sue is Cause4's Charity Leader of the Month! Welcome to August’s Pick of the Month!  Cause4 are excited to feature individuals who are making a real impact in the charity world. From […]

Nystagmus Network triumphs in UK Charity Governance Awards 2025 The Nystagmus Network has won a top prize at the UK Charity Governance Awards 2025. The charity was one of five big winners and took home a prize of […]

Vivien receives her honours Following the announcement that Vivien Jones, Founder and Honorary President of the Nystagmus Network, had been awarded an MBE in His Majesty’s New […]

Our Jeans for Genes grant success We are absolutely thrilled to announce we have received a grant from Jeans for Genes. This incredible support will enable us to create and […]