Marsha de Cordova MP appointed ambassador to the Nystagmus Network The Nystagmus Network, a UK charity dedicated to supporting individuals and families living with nystagmus for over 40 years, is pleased to announce […]

Cascade Project – updated criteria A research team at Anglia Ruskin University is recruiting parents to take part in their latest research project. Here’s the team to introduce […]

A Ruby Celebration at the House of Lords Forty years ago this month a young mother sat at her kitchen table with a notepad and pen as her infant son slept. She’d just received the d […]

Trustee vacancies Are you looking for a new opportunity to put your energy, time, skills and talent to good use? Do you have the passion to support the nystagmus […]

Giving Tuesday On Giving Tuesday 2024, the Nystagmus Network is offering you lots of opportunities to contribute to the work of the charity. On 3 December you […]

International Nystagmus Symposium 2024 The Nystagmus Network was once again proud to host the International Nystagmus Symposium online on Friday 25 October 2024. The schedule included […]

Nystagmus Network Christmas cards now available to order Designed by children who have nystagmus and their siblings, these lovely cards are created for us by our kind friends at Salt Projects Ltd. 50p […]

Help create a VI and HI friendly website The University of Strathclyde are recruiting participants for a study on assistive technologies for older people with Deafness or Visual […]

Christmas card design competition Children’s Christmas Card Design Competition 2024 with SALT Projects Ltd This competition is open to all children living in the UK with a visual i […]

Another chance to hear our appeal If you missed our BBC Radio 4 charity appeal broadcast on Sunday, there’s another chance to hear actor, singer, musician and children’s author, […]

Justine wins the Richard Wilson Prize 2024 The Nystagmus Network is delighted to announce that Justine Chan, who is currently studying medicine at the University of Cambridge, has won the […]

Did you miss our appeal broadcast? Actor, singer, musician and children’s author, Gerard McDermott, who also happens to have nystagmus, presented a BBC Radio 4 charity appeal on […]

Listen to our BBC Radio 4 charity appeal Actor, singer, musician and children’s author, Gerard McDermott presents a BBC Radio 4 charity appeal on behalf of the Nystagmus Network […]

Gerard presents the Nystagmus Network our BBC Radio 4 charity appeal Actor, singer, musician and children’s author, Gerard McDermott will present the BBC Radio 4 charity appeal on behalf of the Nystagmus Network on […]

Take part in research on disorientation A team of researchers led by Dr Heiko Rust, based at the University of Basel Hospital in Switzerland, are inviting members of the UK nystagmus […]

Nystagmus Network visits pioneering research in London The Nystagmus Network is committed to supporting groundbreaking research, from understanding the root causes of nystagmus through to managing and […]

Our Facebook group for grandparents When your child becomes a parent your relationship with them moves into an exciting new phase. Alongside that, you have an entirely new little […]

New date for the Nystagmus Network AGM 2023 The Annual General Meeting 2023 (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organisation or CIO”) will be held online […]

Marsha's message for Nystagmus Awareness Day 2024 Thank you to Marsha de Cordova for taking a few moments out of her busy schedule to celebrate with us Nystagmus Awareness Day 2024 in our Ruby Year. Watch Marsha’s message on our YouTube channel here

Angela's StoryI am in my 50s and in my generation, there was little awareness or support for people with nystagmus or their parents. Growing up, I was always a […]