Volunteers
Meet the Nystagmus Network volunteers
Mike Hughes
Mike is our volunteer benefits adviser. He also has nystagmus.
- Role: Volunteer
- Email: info@nystagmusnet.org
Harshal Kubavat
Harshal is a father of a child with nystagmus and supports our work in the research space.
- Role: Volunteer
- Email: info@nystagmusnet.org
Patsy Holden
Patsy leads our virtual support group for people living with Acquired Nystagmus.
- Role: Volunteer
- Email: info@nystagmusnet.org
Ahrian Taylor
Ahrian is working on design and development and was instrumental in setting up our new Instagram account @NystagmusYouth for teens and young people living with nystagmus.
- Role: Volunteer
- Email: info@nystagmusnet.org
Tim Ricketts
Tim is a nystagmus Dad with a wealth of experience in customer relationship management
- Role: Volunteer
- Email: info@nystagmusnet.org
Ann-Marie Mitchell
Ann-Marie is Mum to Oliver who has congenital nystagmus.
- Role: Volunteer fundraiser
- Email: info@nystagmusnet.org
Jenny Rose
Jenny is one of our volunteers who has acquired nystagmus and wants to help support our community.
- Role: Volunteer
- Email: info@nystagmusnet.org
Rachel Thomas
Rachel is married and is a mum to two wonderful children. Whilst being a full time mum she is also working as a qualified Beauty and Holistic Therapist and Lecturer.
- Role: Volunteer
- Email: info@nystagmusnet.org
Jen Martin
Jen is based in Canada and will help the charity signpost families from North America to the appropriate support services.
- Role: Volunteer
- Email: info@nystagmusnet.org