The Nystagmus Network is hugely grateful to King Cross Surgery in Halifax for their amazing support on Nystagmus Awareness Day 2018.
Practice Manager, Heather, whose 8 year old son has nystagmus, says:
“The Network was and is an invaluable resource to us as new parents, to understand his condition and how it may affect him as he grows.
At the start of 2018, the Practice’s Patient Participation Group (PPG) agreed a number of charities it would support throughout the year. They agreed that Nystagmus Awareness Day on 20 June would be the first.
Members of the PPG drummed up support from local businesses to donate raffle prizes and we held a bake sale for the Wednesday itself. We had 15 raffle prizes ranging from a £30 Tesco voucher, pamper hamper and produce hamper to jewellery, wine and chocolates. Staff and patients alike bought tickets for the raffle (£1 each) and this was drawn last Friday.
The Bake Sale was very successful. We used the resources sent from the Network to promote awareness of the condition and I spoke to patients about it when they visited the stall. We raised £247!
We put up a small display opposite the reception desk to promote the raffle and the Network. A patient who has nystagmus was so impressed with this he took a picture and said it was the first time he’d seen anything about nystagmus in a health care setting! The need for raised awareness is clearly there.
Other practice managers around Calderdale contributed to the raffle and a couple of them will be holding similar events in their practices to raise more awareness and funds to support the great work the Network does.”
THANK YOU, Heather and everyone involved!
