We are absolutely thrilled to announce we have received a grant from Jeans for Genes. This incredible support will enable us to create and distribute a vital, parent-friendly resource to … Continue reading Our Jeans for Genes grant success
Category: Thank yous
International Nystagmus Symposium 2024
The Nystagmus Network was once again proud to host the International Nystagmus Symposium online on Friday 25 October 2024. The schedule included presentations from seven eminent speakers including actor and … Continue reading International Nystagmus Symposium 2024
Thank you, Richard
We are sorry to share the sad news that Richard Wilson, Chairman of the Nystagmus Network from 2011 to 2019, passed away over the Easter weekend. Richard’s contribution to the … Continue reading Thank you, Richard
Nystagmus Champions of 2022
A Nystagmus Champion is someone who goes above and beyond to raise awareness of the condition, to raise funds or generally make life better for people living with nystagmus. The … Continue reading Nystagmus Champions of 2022
Thank you, Zoe
It’s fitting that our final nystagmus hero of 2020 is someone who has been working tirelessly all year looking after some of our most vulnerable people. Zoe is a care … Continue reading Thank you, Zoe
Thank you, Nikita
On World Sight Day 2020, Nikita was named an Eye Health Hero by the IAPB (the International Agency for the Prevention of Blindness). Nominated for her innovative work in perimetry, … Continue reading Thank you, Nikita
Thank you, Nadine
Thanks to her book ‘Can I tell you about nystagmus?’, children and their parents feel better able to explain nystagmus to others. In 2020, with the country in lockdown and … Continue reading Thank you, Nadine
Thank you, Mike
What can we say about Mike that hasn’t been said already? He endured so much for the nystagmus cause this year – including very wet feet, a constantly rumbling tummy … Continue reading Thank you, Mike
Thank you, Mervyn
Nystagmus can be challenging to diagnose in children and often the level of sight loss a newly diagnosed child will experience is unclear, leading to significant anxiety for parents who … Continue reading Thank you, Mervyn
Thank you, Libby
Inspired by her 2 younger sisters, who both have nystagmus, final year geography student, Libby chose to explore the experiences of young visually impaired adults in their local space and … Continue reading Thank you, Libby