Thank you, Richard

We are sorry to share the sad news that Richard Wilson, Chairman of the Nystagmus Network from 2011 to 2019, passed away over the Easter weekend. Richard’s contribution to the work of the charity and the nystagmus cause is immeasurable. His most notable achievements include our first ever clinical training day, the introduction of an … Continue reading Thank you, Richard

Nystagmus Champions of 2022

A Nystagmus Champion is someone who goes above and beyond to raise awareness of the condition, to raise funds or generally make life better for people living with nystagmus. The Nystagmus Champions of 2022, announced at our virtual Open Day on 1 October are: Lucy Mum to Maisie and partner to Myles, we’re sure it’s … Continue reading Nystagmus Champions of 2022

Thank you, Zoe

It’s fitting that our final nystagmus hero of 2020 is someone who has been working tirelessly all year looking after some of our most vulnerable people. Zoe is a care supervisor and head house keeper in a care home, working over 40 hours a week. She was born with nystagmus and optic atrophy. She struggles … Continue reading Thank you, Zoe

Thank you, Nikita

On World Sight Day 2020, Nikita was named an Eye Health Hero by the IAPB (the International Agency for the Prevention of Blindness). Nominated for her innovative work in perimetry, we’re sure that Nikita has a brilliant nystagmus research career ahead of her. And now we’re not the only ones to think so. You can … Continue reading Thank you, Nikita

Thank you, Nadine

Thanks to her book ‘Can I tell you about nystagmus?’, children and their parents feel better able to explain nystagmus to others. In 2020, with the country in lockdown and schools closed, Nadine came up trumps again with advice and tips for parents struggling with homeschooling. Most importantly of all, Nadine allowed us to let … Continue reading Thank you, Nadine

Thank you, Mike

What can we say about Mike that hasn’t been said already? He endured so much for the nystagmus cause this year – including very wet feet, a constantly rumbling tummy and often only the company of chickens! But Mike still walked 3000 miles to raise £2,500 for the Nystagmus Network. A-m-a-z-i-n-g! And after all that … Continue reading Thank you, Mike

Thank you, Mervyn

Nystagmus can be challenging to diagnose in children and often the level of sight loss a newly diagnosed child will experience is unclear, leading to significant anxiety for parents who fear their child will develop severe visual impairment. Thanks to the work of Dr Melvyn Thomas and the research team at the University of Leicester … Continue reading Thank you, Mervyn

Thank you, Libby

Inspired by her 2 younger sisters, who both have nystagmus, final year geography student, Libby chose to explore the experiences of young visually impaired adults in their local space and environment  and the impacts on identity formation for her dissertation. You can read more about Libby’s research here: Thank you for being a great ‘big … Continue reading Thank you, Libby

Thank you, Julia

Living with the triple whammy of nystagmus, myopia and astigmatism, Julia is an accomplished musician. She also sings in choirs, which often happens in poorly lit churches. In her blog post, Julia regaled us with hilarious stories of missing her applause and mistakenly stealing someone else’s limelight all because she cannot see the conductor. She … Continue reading Thank you, Julia

Thank you, Josh

Josh can’t see rain – can you? Josh was born with nystagmus and ocular albinism, but he hasn’t let that hold him back. Josh has been a primary school teacher for 7 years, completed his masters, got grade 8 piano and regularly sings in City of Birmingham Choir at Symphony Hall. Josh has some very … Continue reading Thank you, Josh