Sue at the VIEW conference this month Earlier in March the Nystagmus Network’s Sue attended the annual conference of VIEW, the national association of the Vision Impairment Education […]

Nystagmus Network awards legacy grant for groundbreaking nystagmus research Sheffield researchers to study focusing ability in people with nystagmus through innovative new project The Nystagmus Network has awarded a […]

The big nystagmus meet up – Maidstone Please join us for our first in person event of 2025 on Saturday 15 March, 11am to 4pm. An in person event for everyone living with nystagmus or […]

Please join us for 25 for '25 In January 2025 our newest trustee, Hannah celebrated her 25th birthday. Now Hannah wants you to join her party! Let’s celebrate Hannah’s bir […]

Take part in research on getting older with impaired vision Aging in a Disabling Society: Exploring Age, Disability, and Identity Through a Biographical Life-Course Lens. Emma Davis, a student at Durham […]

The London Marathon – April 2026 The Nystagmus Network has been awarded ONE PLACE in the London Marathon 2026. The place will go to the applicant who makes the most compelling case […]

SEND inquiry – please take our survey   Dear Parents and Carers The Education Select Committee is seeking evidence on short term actions to stabilise the SEND system which is […]

A New Year honour for Vivien, founder of the Nystagmus Network We are delighted to share the wonderful news that our founder, honorary president and Nystagmus Network trustee, Vivien Jones has received the MBE […]

Justine receives her prize at the House of Lords Justine Chan, who is currently studying medicine at the University of Cambridge, won the Richard Wilson Essay Prize 2024. Part of her prize was […]

Aunt Rhoda's gift to nystagmus research In 2023 the Nystagmus Network received a legacy gift from the late Mrs Rhoda Clarke in the sum of £32,114. 71 The gift was made in the name of […]

Take part in research on signage Elliot Judge is a third-year undergraduate student at Nottingham Trent University, studying Graphic Design. For his dissertation, he is […]

Giving Tuesday opportunities for you On Giving Tuesday 2024, the Nystagmus Network is offering you lots of opportunities to contribute to the work of the charity. On 3 December you […]

Marsha de Cordova MP appointed ambassador to the Nystagmus Network The Nystagmus Network, a UK charity dedicated to supporting individuals and families living with nystagmus for over 40 years, is pleased to announce […]

Cascade Project – updated criteria A research team at Anglia Ruskin University is recruiting parents to take part in their latest research project. Here’s the team to introduce […]

A Ruby Celebration at the House of Lords Forty years ago this month a young mother sat at her kitchen table with a notepad and pen as her infant son slept. She’d just received the d […]

Trustee vacancies Are you looking for a new opportunity to put your energy, time, skills and talent to good use? Do you have the passion to support the nystagmus […]

Giving Tuesday On Giving Tuesday 2024, the Nystagmus Network is offering you lots of opportunities to contribute to the work of the charity. On 3 December you […]

International Nystagmus Symposium 2024 The Nystagmus Network was once again proud to host the International Nystagmus Symposium online on Friday 25 October 2024. The schedule included […]

Nystagmus Network Christmas cards now available to order Designed by children who have nystagmus and their siblings, these lovely cards are created for us by our kind friends at Salt Projects Ltd. 50p […]

Help create a VI and HI friendly website The University of Strathclyde are recruiting participants for a study on assistive technologies for older people with Deafness or Visual […]