Nystagmus Network visits pioneering research in London The Nystagmus Network is committed to supporting groundbreaking research, from understanding the root causes of nystagmus through to managing and […]

Our Facebook group for grandparents When your child becomes a parent your relationship with them moves into an exciting new phase. Alongside that, you have an entirely new little […]

New date for the Nystagmus Network AGM 2023 The Annual General Meeting 2023 (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organisation or CIO”) will be held online […]

Marsha's message for Nystagmus Awareness Day 2024 Thank you to Marsha de Cordova for taking a few moments out of her busy schedule to celebrate with us Nystagmus Awareness Day 2024 in our Ruby Year. Watch Marsha’s message on our YouTube channel here

Angela's StoryI am in my 50s and in my generation, there was little awareness or support for people with nystagmus or their parents. Growing up, I was always a […]

It's nearly Nystagmus Awareness Day 2024 Make sure you’re ready to take part in Nystagmus Awareness Day 2024 on 20 June. Your FREE digital programme has all the information and links you […]

Calling people living with nystagmus in Scotland who are over 65 Are you an older adult living with visual impairment? We are a team of researchers at the University of Strathclyde who want to explore your […]

Take part in research at Charing Cross Hospital, London Sarah Hösli, Honorary Senior Research Fellow with the Brain and Vestibular Group at Imperial College London, part of Dr Barry Seemungal’s team, in […]

Nystagmus Network trustees publish their annual report for 2023 Through 2023 the charity has gone from strength to strength in delivering support, funding research, and raising awareness. As we enter our Ruby […]

Notice of the Nystagmus Network AGM 2023 Notice is hereby given that the Annual General Meeting 2023 (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organ […]

Mike's Southampton family send off As Mike takes on his latest Walk for Wiggly Eyes 4 challenge in Croatia, his Mum, Karen, tells us about an amazing party she hosted for Mike, his […]

Booking is now open for our London event Our next big nystagmus meet up takes place in London on Saturday 13 July, from 11am to 4pm. This is your chance to hear all the latest nystagmus […]

Walk with us On 18 and 19 May we’re encouraging all our followers and supporters to get out for a walk. The weekend falls during Mental Health Awareness Week. […]

Join our virtual Easter Egg Hunt 🐰🌷 Ready to hop into some Easter fun? Join our virtual Easter Egg Hunt through our website to find hidden eggs🥚each with a letter on it to be di […]

Take part in the Cascade project A research team at Anglia Ruskin University is recruiting parents to take part in their latest research project. Here’s the team to introduce […]

Join us for a flipping fantastic celebration Calling all pancake enthusiasts and creative cooks! It’s time to dust off your spatulas and put your culinary skills to the test because the […]

George gives his oral evidence to the APPG George has not yet completed his first month as an intern Information Support Officer with the Nystagmus Network. This week he was given a very […]

Have a brain scan for research – recruiting now! Aged 18-55? Diagnosed with infantile nystagmus? Within travelling distance of Cardiff? Researchers at Cardiff University invite you to take […]

Celebrating Women and Girls in Science To celebrate this year’s International Day of Women and Girls in Science, let’s come together to learn more about the incredible achievements of […]

Take part in research – Isle of Man residents only Calling Isle of Man residents Take part in a research study conducted by Adam Melvin, PhD student at the University of Chester The purpose of this […]