Vivien receives her honours Following the announcement that Vivien Jones, Founder and Honorary President of the Nystagmus Network, had been awarded an MBE in His Majesty’s New […]

Our Jeans for Genes grant success We are absolutely thrilled to announce we have received a grant from Jeans for Genes. This incredible support will enable us to create and […]

Take part in neuroscience research People with impaired vision are invited to take part in Neuroscience Research at Goldsmith’s, University of London. Please see details from the […]

A study of signage for nystagmus and glaucoma A few months ago, a student of Graphic Design from Nottingham Trent University, Elliot Judge contacted the Nystagmus Network for help distributing a […]

Notice of the AGM 2024 Notice is hereby given that the Annual General Meeting 2024 (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organ […]

The influence of Braille literacy – take part in research You are warmly invited to participate in a research study exploring the relationship between braille literacy and the quality of life for people […]

Nystagmus Network shortlisted for UK Charity Governance Awards 2025 The Nystagmus Network has been shortlisted for the tenth and final Charity Governance Awards. It is in the running for the improving impact in small […]

Funding opportunity for nystagmus research The Nystagmus Network is delighted to announce that we have entered a research funding partnership this year with Great Ormond Street Hospital […]

Discover the World of Nystagmus with Gemma Arblaster We’re excited to share our recent interview, featuring the insightful Dr Gemma Arblaster, an Orthoptist and lecturer at the University of Sheffield. […]

Take part in research on kitchen equipment Demet Ozturk, a final year Industrial Design student at Loughborough University is exploring design solutions that can make a positive impact on the […]

Sue at the VIEW conference this month Earlier in March the Nystagmus Network’s Sue attended the annual conference of VIEW, the national association of the Vision Impairment Education […]

Nystagmus Network awards legacy grant for groundbreaking nystagmus research Sheffield researchers to study focusing ability in people with nystagmus through innovative new project The Nystagmus Network has awarded a […]

The big nystagmus meet up – Maidstone Please join us for our first in person event of 2025 on Saturday 15 March, 11am to 4pm. An in person event for everyone living with nystagmus or […]

Please join us for 25 for '25 In January 2025 our newest trustee, Hannah celebrated her 25th birthday. Now Hannah wants you to join her party! Let’s celebrate Hannah’s bir […]

Take part in research on getting older with impaired vision Aging in a Disabling Society: Exploring Age, Disability, and Identity Through a Biographical Life-Course Lens. Emma Davis, a student at Durham […]

The London Marathon – April 2026 The Nystagmus Network has been awarded ONE PLACE in the London Marathon 2026. The place will go to the applicant who makes the most compelling case […]

SEND inquiry – please take our survey   Dear Parents and Carers The Education Select Committee is seeking evidence on short term actions to stabilise the SEND system which is […]

A New Year honour for Vivien, founder of the Nystagmus Network We are delighted to share the wonderful news that our founder, honorary president and Nystagmus Network trustee, Vivien Jones has received the MBE […]

Justine receives her prize at the House of Lords Justine Chan, who is currently studying medicine at the University of Cambridge, won the Richard Wilson Essay Prize 2024. Part of her prize was […]

Aunt Rhoda's gift to nystagmus research In 2023 the Nystagmus Network received a legacy gift from the late Mrs Rhoda Clarke in the sum of £32,114. 71 The gift was made in the name of […]