We’ve just heard that James and his little brother, Thomas, have successfully completed their summer fundraising challenge to raise a phenomenal £677 for two charities.
James (8) and Thomas (5) have spent their summer holidays walking 118 miles in aid of Chromosome 18 Registry and Research Society Europe and the Nystagmus Network.
Why these charities?
When James was 10 months old he was diagnosed with Nystagmus. He is registered visually impaired as a result.
James was later diagnosed with a very rare genetic disorder called Chromosome 18q-23 distal deletion syndrome.
At least 1 in 1,000 babies are born with nystagmus.
Chromosome 18q- affects 1 in 55,000 births.
So James is a very rare young man! He’s also very determined to succeed!
HUGE THANKS to both boys and congratulations on your brilliant achievement, from everyone at Nystagmus Network.
You can still CLICK THIS LINK TO SPONSOR JAMES. Thank you!
