Nystagmus, the way we see it


If you’ve ever wondered how a person with nystagmus sees or how the condition affects their sight, listen to Richard, Harriet and Will explain in our video. You can show our video to anyone or use it, completely free of charge, for training purposes. All we ask is that you let us know. Nystagmus, the … Continue reading Nystagmus, the way we see it

Nystagmus question on Fifteen to One


If you happened to be watching popular Channel 4 TV quiz show, Fifteen to One on Wednesday 19th December and were paying very close attention you will have heard a question about nystagmus. Quiz master, Sandi Toksvig asked “Which sensory organs are affected by the medical condition nystagmus?” The contestant clearly knew his stuff as … Continue reading Nystagmus question on Fifteen to One

Free run places


Would you like to take up a FREE run place for the Nystagmus Network? We have places in the London Vitality 10k on Monday 27 May (Bank Holiday Monday) and are about to purchase places in the Royal Parks Half Marathon on Sunday 13 October. Due to the relatively high cost of the places for a small charity like … Continue reading Free run places

Nystagmus Patient Information Day


The Nystagmus Network is delighted to be supporting a Nystagmus Patient Information Day, running at Moorfields, London on Saturday 24 November. Moorfields Eye Hospital is holding an information day for adults with nystagmus since childhood. The day will allow you the opportunity to directly influence the patient pathway from diagnosis to treatment and the support … Continue reading Nystagmus Patient Information Day

Education Resource HUB – launch


At Open Day 2018 the Nystagmus Network’s volunteer Education Advocate, Frances Lilley, officially launched the charity’s Education Resource HUB. The HUB is the result of years of research and experience and brings together in one place the resources parents and carers need to navigate their way through mainstream education support for a child with nystagmus, … Continue reading Education Resource HUB – launch

Yorkshire 3 Peaks – completed!


Steph and her team completed the Yorkshire 3 Peaks Challenge on Saturday in 11 hours 45 minutes. Well done, team! They were doing this in honour of Steph’s young son, Henry, who has nystagmus and they’ve so far raised over £1,000 for the Nystagmus Network! Thank you from everyone at the charity. You can still … Continue reading Yorkshire 3 Peaks – completed!

The abseil is this weekend!


This Sunday morning Claire A, Claire B, Glen, Matt, Richard B, Richard P, Tom, Vanessa, Vicki and Vicky will be scaling down the UK’s tallest piece of public art, the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park to raise money for nystagmus research at Moorfields and University College, London. Our 10 intrepid Team Nystagmus Network … Continue reading The abseil is this weekend!

Don’t forget us, please!


As national ‘Remember a Charity Week’ begins, the Nystagmus Network would like to make a plea to all our members and supporters to consider remembering us in your wills. We understand that your family and friends must always come first. All we ask is that, once you have looked after those closest to you, you … Continue reading Don’t forget us, please!