Parent Power is back!


Thanks to a grant from our friends at the Thomas Pocklington Trust, the Nystagmus Network is delighted to be able to offer parents of children and young people with nystagmus the opportunity to attend one of a brand new series of Parent Power webinars. Each webinar will introduce parents to the special educational needs support … Continue reading Parent Power is back!

The Nystagmus Champions of 2021


Nystagmus Network Vice-chair, Peter Greenwood, was delighted to announce the ‘nystagmus champions’ of 2021 at the end of Open Day party on 25 September. Tyler UrquhartThe Urquhart family are, quite literally, tireless supporters of the Nystagmus Network.This year they walked ran or swam 200km over 30 days. Everyone took part, even the dog!We like to … Continue reading The Nystagmus Champions of 2021

Elections Bill could weaken protections for blind and partially sighted voters


Urgent update from RNIB:  The Government has put forward a draft law – the Elections Bill – which weakens protection for an independent vote for blind and partially sighted people. But there is still time to stop this from happening.  RNIB need to persuade the Government to maintain the existing law, and need your help to do it.  Will you meet … Continue reading Elections Bill could weaken protections for blind and partially sighted voters

The State of the UK’s Eye Health


A NEW report paints a stark picture of the impact the Covid-19 pandemic has had on eye health in Britain – with experts warning of a ‘ticking timebomb’ and significant fallout for years to come. The State of the UK’s Eye Health 2021 report, commissioned by Specsavers in collaboration with leading eye health experts and charities, … Continue reading The State of the UK’s Eye Health

Quality of Life Research


Acumen are currently organising research in the UK on behalf of a national sight loss charity to test a quality of life measure that is currently being developed. For the survey they are looking to blind and partially sighted people. The quality of life measure will help the charity assess the ongoing wellbeing of people … Continue reading Quality of Life Research

Open Day digital programme – out now


All registered Open Day 2021 delegates are now receiving their copies of the digital event programme. This contains all the links to the pre-recorded presentations and the Zoom invitations to the live workshops, Q+A panels, quiz and networking event. There’s still plenty of time for you to register and take part from 10am on Saturday … Continue reading Open Day digital programme – out now

Take part in research at Cardiff University


Professor Jon Erichsen and his team from the School of Optometry and Vision Sciences, Cardiff University, Nikita Thomas, Katherine Ward and Onyeka Amiebenomo invite you to take part in nystagmus research. Following their demonstrations at virtual Open Day 2021 of various nystagmus and eye tracking studies currently being carried out, you are warmly invited to … Continue reading Take part in research at Cardiff University

Frances Lilley


Frances Lilley has decided to stand down after 5 years as a Trustee of Nystagmus Network.  During this time, she has been performing the role of volunteer education advocate and has provided invaluable advice to countless parents to guide them through the complex and, quite often, challenging world of EHC plans and the support that … Continue reading Frances Lilley

Register now for Open Day 2021


Nystagmus Network Open Day – Saturday 25 September  We promise a packed programme of presentations, inspirational speakers, research updates, videos, workshops, forums, competitions and so much more – all available wherever you are. Plus, you’re warmly invited to join a fabulous live and interactive networking event. The theme for this year is ‘How amazing are you?‘. We’ll be celebrating … Continue reading Register now for Open Day 2021