Yorkshire 3 Peaks – completed!

Steph and her team completed the Yorkshire 3 Peaks Challenge on Saturday in 11 hours 45 minutes. Well done, team! They were doing this in honour of Steph’s young son, Henry, who has nystagmus and they’ve so far raised over £1,000 for the Nystagmus Network! Thank you from everyone at the charity. You can still … Continue reading Yorkshire 3 Peaks – completed!

They did it!

Although the Team Nystagmus Network / Moorfields Eye Charity fundraising abseil at the ArcelorMittal Orbit couldn’t go ahead on Sunday morning as planned due to heavy rain and high winds, Vicki and Tom took advantage of some available slots on Saturday morning and took their leap for nystagmus research then. Congratulations, Vicki and Tom! You’re … Continue reading They did it!

Sign up to the Nystagmus Network lottery

Did you know that for just £1 per week you could be in with a chance to win £25,000? You could, if you signed up to the Nystagmus Network lottery. The even better news is that, once all the prizes are paid for, all profits come directly to the Nystagmus Network as a donation. If … Continue reading Sign up to the Nystagmus Network lottery

The abseil is this weekend!

This Sunday morning Claire A, Claire B, Glen, Matt, Richard B, Richard P, Tom, Vanessa, Vicki and Vicky will be scaling down the UK’s tallest piece of public art, the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park to raise money for nystagmus research at Moorfields and University College, London. Our 10 intrepid Team Nystagmus Network … Continue reading The abseil is this weekend!

Another Nystagmus Network first!

Thanks to Paul Bowry and his family, the Nystagmus Network will be enjoying our first ever fundraising Car Boot Sale on Tuesday 18 September. Paul has been running boot fairs at the site in Essex for some time. Following his grandson’s nystagmus diagnosis, Paul decided to negotiate a charity collection with the organisers at one … Continue reading Another Nystagmus Network first!


Here’s a fundraising opportunity with a difference! You can choose to cycle a 50k or 100k route around London, Bristol, Glasgow or Liverpool AT NIGHT with Nightrider 2019. Provided you book your own place before 31 December, the registration fee is just £75. Then, simply set up your Justgiving page linked to the Nystagmus Network as … Continue reading #notyourusualnightout

Matt is joining the abseil

Matthew Dawson will be abseiling down the UK’s allest piece of public art on 23 September to raise much needed funding for nystagmus research at Moorfields and UCL. He is joining Team Nystagmus Network Abseil at the suggestion of his wife and for his young son, Owen, who has nystagmus. Apparently, some of Matt’s sponsors … Continue reading Matt is joining the abseil

Vicky and Claire show amazing support

Vicky and Claire are both trustees of the Nystagmus Network. That’s not all they have in common! On 23 September they will both be scaling down the Olympic Park Orbit alongside their Team Nystagmus Network Abseil team mates. They’re doing it to raise funding for nystagmus research. Every penny they raise will go directly into … Continue reading Vicky and Claire show amazing support