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Nystagmus Network

Supporting people living with nystagmus

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Category: Fundraising

Please join us for 25 for ’25


In January 2025 our newest trustee, Hannah celebrated her 25th birthday. Now Hannah wants you to join her party! Let’s celebrate Hannah’s birthday with a year long party! To mark this milestone … Continue reading Please join us for 25 for ’25

Posted on February 12, 2025Author Sue RickettsCategories Charity highlights, FundraisingTags 25 for '25, fundraising, nystagmus, nystagmus network
The official banner for the London Marathon featuring the image of a mass run along The Mall with Buckingham Palace in the background.

The London Marathon – April 2026


The Nystagmus Network has been awarded ONE PLACE in the London Marathon 2026. The place will go to the applicant who makes the most compelling case to us. To apply … Continue reading The London Marathon – April 2026

Posted on January 20, 2025Author Sue RickettsCategories Charity highlights, Fundraising, Nystagmus heroesTags apply, free run places, fundraising, London Marathon 2026, nystagmus, nystagmus network, sponsored run
Florence wears glasses, smiles for the camera and holds up a poster she has designed.

Aunt Rhoda’s gift to nystagmus research


In 2023 the Nystagmus Network received a legacy gift from the late Mrs Rhoda Clarke in the sum of £32,114. 71 The gift was made in the name of Mrs … Continue reading Aunt Rhoda’s gift to nystagmus research

Posted on December 3, 2024Author Sue RickettsCategories Fundraising, Living with nystagmus, Posts, researchTags gifts in wills, grant, legacy giving, nystagmus, nystagmus network, nystagmus research, ocular albinism
The Giving Tuesday logo featuring a red and white heart as the letter 'v' in giving.

Giving Tuesday opportunities for you


On Giving Tuesday 2024, the Nystagmus Network is offering you lots of opportunities to contribute to the work of the charity. On 3 December you can pledge your time and … Continue reading Giving Tuesday opportunities for you

Posted on November 28, 2024Author Sue RickettsCategories FundraisingTags donations, fundraising, membership, nystagmus, nystagmus network, trustee, volunteer, volunteering opportunities
The Giving Tuesday logo.

Giving Tuesday


On Giving Tuesday 2024, the Nystagmus Network is offering you lots of opportunities to contribute to the work of the charity. On 3 December you can pledge your time and … Continue reading Giving Tuesday

Posted on November 12, 2024Author Sue RickettsCategories Fundraising, Vacancies, volunteerTags #GivingTuesday, fundraising, membership, nystagmus, nystagmus network, volunteering opportunities
A child's drawing of Father Christmas with a candy cane and tree in the snow.

Nystagmus Network Christmas cards now available to order


Designed by children who have nystagmus and their siblings, these lovely cards are created for us by our kind friends at Salt Projects Ltd. 50p from the sale of each … Continue reading Nystagmus Network Christmas cards now available to order

Posted on October 29, 2024Author Sue RickettsCategories Charity highlights, FundraisingTags Christmas card competition, Christmas cards, nystagmus, nystagmus network, Salt Projects Ltd
A previous Christmas card design featuring a child's drawing of a tree and Santa and the words 'ho ho ho'.

Christmas card design competition


Children’s Christmas Card Design Competition 2024 with SALT Projects Ltd This competition is open to all children living in the UK with a visual impairment and their siblings. Do you … Continue reading Christmas card design competition

Posted on September 30, 2024Author Sue RickettsCategories Charity highlights, FundraisingTags christmas, Christmas card competition, Christmas cards, nystagmus, nystagmus network, Salt Projects Ltd
Mike and his nephew, both wearing WWE T-shirts, fist bump for the camera.

Mike’s Southampton family send off


As Mike takes on his latest Walk for Wiggly Eyes 4 challenge in Croatia, his Mum, Karen, tells us about an amazing party she hosted for Mike, his family and … Continue reading Mike’s Southampton family send off

Posted on May 13, 2024Author Sue RickettsCategories Charity highlights, Fundraising, Guest posts, Nystagmus heroesTags Croatia, fundraising, Mike Larcombe, nystagmus, nystagmus heroes, nystagmus network, Walk for Wiggly Eyes
A card featuring the Nystagmus Network logo and an ice cream cornet and the text 'please take a moment to nominate us'.

Please nominate us to win a £1,000 donation


Please take a moment to nominate the Nystagmus Network for the chance to win a £1,000 donation. That’s enough to pay for a year’s supply of nystagmus information leaflets for … Continue reading Please nominate us to win a £1,000 donation

Posted on August 11, 2023August 11, 2023Author Sue RickettsCategories Fundraising, Information and SupportTags Benefact Group, donation, nominate, nystagmus, nystagmus network
A flyer promoting PayPal Giving Fund's 'Help a small charity make a big impact' campaign.

#OneTapBigImpact


You can make a difference to the Nystagmus Network by simply selecting us as your favourite charity on Give at Checkout via PayPal. We could win up to £20,000 in … Continue reading #OneTapBigImpact

Posted on July 17, 2023July 17, 2023Author Sue RickettsCategories FundraisingTags #OneTapBigImpact, nystagmus, nystagmus network, PayPal Giving Fund

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