Serena is a #NystagmusStar


Serena is a remarkable young person. She had a few medical problems early on in life and has very reduced vision, but her positive outlook means she gets on with life, surpassing even her parents’ aspirations and is always thinking of others. They say: “She brightens our day when things get too much. Just her … Continue reading Serena is a #NystagmusStar

Rory is a #NystagmusStar


Rory is nominated by his Mum. She says: “Rory’s nystagmus was diagnosed only 6 months ago, so we both still have a lot to learn! We may have further obstacles in the future, but he is not letting anything hold him back!” To nominate your #NystagmusStar or to make a donation to help the Nystagmus … Continue reading Rory is a #NystagmusStar

Our #NystagmusStars


This festive season the Nystagmus Network is celebrating the children and adults with nystagmus who fill the lives of their families and friends with twinkling light, love and laughter. We’re asking you to tell us about your nystagmus stars – the adults and children who fill your life with light and make you proud of … Continue reading Our #NystagmusStars

Our #GivingTuesday Appeal


Nystagmus Network joins #GivingTuesday 2019, the global day of generosity on 3 December Nystagmus Network is pleased to announce that we’re one of the thousands of organisations taking part in this year’s #GivingTuesday campaign on 3 December. #GivingTuesday began in America in 2012, as a way to give back after all the consumerism of Black … Continue reading Our #GivingTuesday Appeal

Trekking through Middle Earth for nystagmus research


Follow Mike’s wiggly progress on his Facebook page, here and donate to his Nystagmus Network fundraising page, here. A sight-impaired young Englishman, Mike Larcombe, is preparing to trek across New Zealand to raise money for a complex eye condition that blurs his vision. Mike has nystagmus, which he refers to as “wiggly eyes” and so … Continue reading Trekking through Middle Earth for nystagmus research

Our #GivingTuesday Appeal


Please help the Nystagmus Network support more children to access learning at school, by pledging £5 on #GivingTuesday. The Nystagmus Network provides an education advocacy service for parents and carers of children and young people at nursery, school or college to ensure they have equal access to learning. We’d like to train another volunteer education … Continue reading Our #GivingTuesday Appeal

Are you ready for an Ultra Challenge?


Ultra Challenges for 2020WALK, JOG, or RUN25km, 50km, or 100kmYour challenge – your pace Take part in the Ultra Challenge of your choice for the Nystagmus Network. Simply check the charity when you register and choose your fundraising option. We’ll be happy to part fund your place. Walk, Jog or Run at YOUR pace on the … Continue reading Are you ready for an Ultra Challenge?

Your nomination could help us win £25,000!


We could receive a grant of £25,000 but we need your help! SEIB Insurance Brokers will grant a total of £50,000 to charity in 2020 as part of their annual SEIB Giving campaign. The winning charity will receive a grant of £25,000 and another £25,000 will be split between good causes.  As part of this they … Continue reading Your nomination could help us win £25,000!