The Nystagmus Network is offering a free bungee jump to anyone who can guarantee to raise at least £100 in sponsorship for the charity. Your jump can take place at any one of 8 locations across the UK. To apply, please email us at firstname.lastname@example.org.
Please remember to tick the Gift Aid box when donating to charity. It makes such a difference to small charities like us, with an extra 25p coming our way for every £1 you give. This includes membership subscriptions. Please CLICK HERE to complete your Gift Aid declaration. Thank you
In 2019 20 Nystagmus Network supporters, their friends and family members raised £11,500 for nystagmus research by taking part in the Eye to Eye walk. We’re doing it all once more in 2020, but we need your help to raise even more money for nystagmus research at Moorfields Eye Hospital and University College, London. You … Continue reading Could you walk eye to eye for nystagmus research?
Nystagmus Network Christmas cards are now on sale in our online shop. Choose from two great designs: Tis the Season to be Jolly and Let it Snow. The cards come in packs of 10 with envelopes and feature the charity logo on the back. The greeting inside the card is Happy Christmas. The cards are … Continue reading Christmas cards
For your chance to win up to £25,000 each week for just £1, why not join our weather lottery. Every penny of the profits comes directly back to the Nystagmus Network to help us continue our important work. Sign up to the Nystagmus Network weather lottery today! Thank you
Delilah’s story: Delilah is helping to raise awareness of children’s genetic disorders with the UK children’s charity Genetic Disorders UK and their annual fundraising day, Jeans for Genes Day. This year, Jeans for Genes Day runs from Mon 16 – Fri 20 September and invites everyone to wear their jeans to work or school in … Continue reading Jeans for Nystagmus Genes: Delilah’s story
Huge thanks go to Aly for organising some very special Tai Chi sessions to help raise money for the Nystagmus Network. Tai Chi is amazing if you have nystagmus. It can help with spacial awareness, balance, co-ordination and so much more. Even if you don’t have nystagmus yourself, please go along to this fabulous fundraiser … Continue reading Special Tai Chi sessions for the Nystagmus Network
Any school can take part in Jeans for Genes Day. Pupils and staff can wear their jeans to school for a day and make a donation to charity. How to get your school involved Check they haven’t held a Jeans for Genes Day in the last 3 years. Ask the headteacher or other member of … Continue reading Jeans for nystagmus Genes
Mike has nystagmus and so does his young nephew, Archie. Later this year and well into 2020, Mike will be walking the length of New Zealand to help find a cure for nystagmus. The route he’s following is the Te Araroa pathway, taking in both the north and south islands, on foot and sometimes in … Continue reading Mike’s wiggly walk – video update
Nystagmus Network supporter, Phil Morris organised a charity cricket match on Sunday 30th June 2019. The teams were Phil’s own Hendrefoilan Hedgehogs versus an Invitational 11 from a number of other teams around the west of Swansea. A great game was had by all with a post match BBQ, cake stall and raffle. Due to … Continue reading Howzat?