Sam’s challenge of a lifetime

In June 2021 Sam will embark on the challenge of his lifetime as he cycles 500 miles in 8 days on the North Coast 500 Cycle Ride for the Nystagmus Network. But who is Sam? Find out all about Sam and his challenge at the Nystagmus Network virtual Open Day. Please register here to join … Continue reading Sam’s challenge of a lifetime

Want to run a virtual marathon for the Nystagmus Network? You can! Here’s how.

It’s still possible to run a marathon this year. You’ve been keeping fit during lockdown. Your training continued on your daily time outside. All the big runs are cancelled, but … you can still run – on a virtual track with Strava. Your run, how, where and when you want it – you can even … Continue reading Want to run a virtual marathon for the Nystagmus Network? You can! Here’s how.

Training eye care professionals

High street optical staff need to understand the complexities of nystagmus, how to test the sight and how to dispense any corrective glasses or contact lenses. Due to the cancellation of so many routine eye clinic appointments during the current pandemic and the signing off of non-urgent cases, such as patients diagnosed with nystagmus, local … Continue reading Training eye care professionals

Missed the appeal? Listen again!

If you missed Richard Osman presenting the Nystagmus Network charity appeal on BBC Radio 4 at 07.54 this morning you can listen again now. Listen again here Make a donation to the appeal here Huge thanks to Richard and to everyone for donating to the appeal. Your generosity will ensure that the charity can continue … Continue reading Missed the appeal? Listen again!

Richard Osman to voice Radio 4 appeal

The Nystagmus Network is delighted to announce that it has been granted a BBC Radio 4 charity appeal. The appeal will be presented by well known TV presenter, broadcaster and author, Richard Osman on Sunday 5 July. Richard has nystagmus himself and says it is his “absolute pleasure” to be able to support the charity … Continue reading Richard Osman to voice Radio 4 appeal

Boost it for June

WALK, JOG, or RUN Anywhere – Anytime… THROUGHOUT JUNE  From 50 km up to 500 km… You choose Your challenge Sign Up Now… With relaxation of the restrictions on travel and exercise, June is ideal to enjoy the great outdoors, push yourself further, and get into shape for the summer! Join our virtual event – You choose Your challenge from 50km up … Continue reading Boost it for June

Sue’s 2.6 challenge – complete!

Sue has finished her 2.6 challenge ahead of schedule. She has knitted 2.6 special edition Nystagmus Network mascots in less than 26 days! Each mascot wears running kit to signify that the 2.6 challenge was intended to replace this year’s London Marathon, cancelled due to the pandemic. So far, Sue has raised £315 in sponsorship … Continue reading Sue’s 2.6 challenge – complete!

Join our virtual quiz night

Every Saturday at 7pm Please join us for our virtual quiz night every Saturday at 7pm. Get everyone together in one room, sign up, log in and away you go. It’s great fun! There are cash prizes for 1st, 2nd and 3rd placed players. Thank you for your support. Taking part in the quiz is … Continue reading Join our virtual quiz night


Are you taking some time during lockdown to declutter your cupboards and shelves? Now you can turn your unwanted items into donations! The Nystagmus Network is inviting you to join in with national #DeclutterAndDonate as part of the global #GivingTuesdayNow initiative. It’s a totally safe and fun way to support our work in the nystagmus … Continue reading #DeclutterAndDonate