Sam’s challenge of a lifetime


Nystagmus Network Trustee, Sam Jones will be cycling 500 miles around the North Coast of Scotland in June this year to raise money for the Nystagmus Network. It’s the ultimate road trip and the challenge of a lifetime. What people may not realise is that Sam has nystagmus himself and is acually the reason the … Continue reading Sam’s challenge of a lifetime

Thank you for donating to our BBC Radio 4 appeal


Thank you to everyone who gave to our BBC Radio 4 charity appeal in June this year. The appeal raised £9, 230. You can read what a difference the appeal has made to the charity and the nystagmus community on the BBC website here where you can also listen again to Richard Osman presenting the … Continue reading Thank you for donating to our BBC Radio 4 appeal

Thank you, Emma


For Halloween 2020 Emma and her very determined family held a coffee, cake and crafts fundraiser for the Nystagmus Network. All COVID-19 restrictions were followed and the family raised £400. An amazing effort! Thank you so much! At Halloween 2020 Emma and her very determined family held a coffee, cake and crafts fundraiser (remember those?) … Continue reading Thank you, Emma

Thank you, Claire


Both Claire and her young son, Zac have nystagmus. In 2019 Claire decided she was going to do a sky dive for the Nystagmus Network. Postponements because of the weather and then again this year because of lockdown, meant Claire was waiting nervously nearly a whole year before she could make her leap. But she … Continue reading Thank you, Claire

Thank you, Ahrian


In 2020 Ahrian offered the Nystagmus Network her services as a volunteer. So far she has designed the logo for the @NystagmusYouth Instagram account and the new T-shirt for our 19-21 challenge. Ahrian has nystagmus herself and wanted to give back something to the nystagmus community. She says: “I was born with nystagmus and grew … Continue reading Thank you, Ahrian

Thank you to National Lottery players


Thanks to the generosity of National Lottery players, the Nystagmus Network is in receipt of a further grant to support the work of the charity. This welcome additional funding is enabling us to continue delivering support and information services to the nystagmus community, albeit virtually. Charity staff are busier than ever answering enquiries by phone, … Continue reading Thank you to National Lottery players

Please nominate the Nystagmus Network


Please nominate the Nystagmus Network to win a £1,000 Christmas bonus as part of Ecclesiastical Insurance’s annual 12 days of giving festive campaign. Ecclesiastical will be awarding £1,000 to 12 charities in 12 days this December. Please help us be one of them. Nominations are open now until 21 December. £1,000 would pay for nystagmus … Continue reading Please nominate the Nystagmus Network