Could you walk eye to eye for nystagmus research?


In 2019 20 Nystagmus Network supporters, their friends and family members raised £11,500 for nystagmus research by taking part in the Eye to Eye walk. We’re doing it all once more in 2020, but we need your help to raise even more money for nystagmus research at Moorfields Eye Hospital and University College, London. You … Continue reading Could you walk eye to eye for nystagmus research?

Jeans for Nystagmus Genes: Delilah’s story


Delilah’s story: Delilah is helping to raise awareness of children’s genetic disorders with the UK children’s charity Genetic Disorders UK and their annual fundraising day, Jeans for Genes Day. This year, Jeans for Genes Day runs from Mon 16 – Fri 20 September and invites everyone to wear their jeans to work or school in … Continue reading Jeans for Nystagmus Genes: Delilah’s story

Special Tai Chi sessions for the Nystagmus Network


Huge thanks go to Aly for organising some very special Tai Chi sessions to help raise money for the Nystagmus Network. Tai Chi is amazing if you have nystagmus. It can help with spacial awareness, balance, co-ordination and so much more. Even if you don’t have nystagmus yourself, please go along to this fabulous fundraiser … Continue reading Special Tai Chi sessions for the Nystagmus Network

Jeans for nystagmus Genes


Any school can take part in Jeans for Genes Day. Pupils and staff can wear their jeans to school for a day and make a donation to charity. How to get your school involved Check they haven’t held a Jeans for Genes Day in the last 3 years. Ask the headteacher or other member of … Continue reading Jeans for nystagmus Genes

Mike’s wiggly walk – video update


Mike has nystagmus and so does his young nephew, Archie. Later this year and well into 2020, Mike will be walking the length of New Zealand to help find a cure for nystagmus. The route he’s following is the Te Araroa pathway, taking in both the north and south islands, on foot and sometimes in … Continue reading Mike’s wiggly walk – video update