Our biggest ever investment in nystagmus research


Thanks to the generosity of our members, fundraisers and supporters and our longstanding partnership with Fight for Sight, the UK’s leading eye research charity, the Nystagmus Network is delighted to be able to announce our biggest ever funding commitment to nystagmus research. At the Nystagmus Network nystagmus research workshop in September 2018, charity trustees asked … Continue reading Our biggest ever investment in nystagmus research

Celebrating our loved ones


When a loved one dies, family and friends left behind need the chance to say goodbye, honour their memory and look for meaning in the death by remembering their achievements and celebrating their life. The Nystagmus Network is grateful to those thoughtful families who turn to the charity at these sad times to raise an … Continue reading Celebrating our loved ones

Introducing Neill


Neill Mison is an IT consultant who has recently rediscovered his love of and talent for painting and drawing. Neill now styles himself as ‘the visually impaired artist’ and is enjoying some considerable acclaim for his impressionist style. The subtle colouring and fine detail of his paintings is particularly surprising since Neill has ocular albinism … Continue reading Introducing Neill

April deals on our Ultrachallenges


Push Yourself Further – 10 great events in 2019 Are you a regular walker and new to endurance events? Perhaps a seasoned trekker looking for testing adventures? Or even a marathon runner wanting to ‘up’ your distance? Whether it’s along magnificent coastal scenery, or in stunning open countryside, there’s an Ultra Challenge for you. Walk, Jog or … Continue reading April deals on our Ultrachallenges

Guest post from Anne-Marie


More details about the fabulous Nystagmus Network Ball Sunday 25 August, Birmingham 7pm, drinks upon arrival,  7.15pm, meal to be served, please see menu choices below. Games will be played before and after the meal, with the wonderful Wil Maudsley as our own Games Master (come prepared to laugh!!!). Disco until 11pm-ish The brilliant Richard … Continue reading Guest post from Anne-Marie

parkrun for Nystagmus Awareness Day


This year for Nystagmus Awareness Day and ‘wobbly week’ the Nystagmus Network is joining forces with parkrun UK to offer you the opportunity to get out into your local park and walk or run for nystagmus awareness. You can take part in parkrun just about anywhere in the country, every week of the year. But … Continue reading parkrun for Nystagmus Awareness Day

Eye to Eye – you smashed it!


Huge congratulations and thanks to everyone who turned out on a very blustery Sunday morning to walk 4 or 14 miles around the streets of London to raise money for pioneering nystagmus research at Moorfields and UCL. The final total is still being counted, but we can report that together you have so far raised … Continue reading Eye to Eye – you smashed it!

March Special Offers on Ultra Challenges


Throughout 2019 and across the UK the Nystagmus Network is offering you the opportunity to take on a personal challenge to help raise money for nystagmus research. This March you can take up the challenge of your choice at a special discounted rate. MARCH SPECIAL OFFERS ·        Charity Sponsorship – 33% OFF Registration Fee Use … Continue reading March Special Offers on Ultra Challenges

Regular giving


The Nystagmus network relies entirely on membership subscriptions, fundraising, gifts in wills and donations to be able to continue its important work supporting the nystagmus community, raising awareness of the condition for a better quality of life for everyone affected and funding research. Through CAF Donate our supporters can set up regular giving The Nystagmus … Continue reading Regular giving

Fundraising? It’s a Colson family affair


The Colson family are serious about fundraising for nystagmus research. Sisters Laura and Ellie are taking part in the Peak District Ultra Challenge this summer, their first ever ultra marathon, whilst their brother, Ryan, CEO of the family firm, Colson Skips, is getting his entire workforce right behind them. If you’d like to sponsor Laura … Continue reading Fundraising? It’s a Colson family affair