Nystagmus Network supporters invited to celebrate Captain Sir Tom’s achievements in special fundraising event


New fundraising initiative over Captain Tom’s birthday weekend of Friday 30 April to Bank Holiday Monday 3 May to celebrate his life and amazing achievements   Captain Tom 100 invites people all over the world to take on a challengebased around the number 100 to raise funds for charity  Following the outpouring of heartfelt messages since … Continue reading Nystagmus Network supporters invited to celebrate Captain Sir Tom’s achievements in special fundraising event

Nystagmus Network runners to be part of world’s first 100,000 person marathon


50,000 runners to take on world’s biggest virtual marathon on Sunday 3 October with 50,000 runners to tackle the traditional London Marathon route on the same day With the results of the 2021 Virgin Money London Marathon Ballot announced recently, the Nystagmus Network has 3 places for anyone who wants to raise crucial funds while … Continue reading Nystagmus Network runners to be part of world’s first 100,000 person marathon

Free run places available


Would you like a FREE RUN PLACE in the Royal Parks Half Marathon? On Sunday 11 April 2021 the Royal Parks Half takes place for runners in their community. Track your 13.1 miles in your local area. This will be an unparalleled digital experience which mirrors as much of the in-person race as possible, including … Continue reading Free run places available

We’re back!


Nystagmus Network woolly nystagmus mascots are now back in stock in our online shop. Dressed in warm woolly hats and scarves, each mascot has its own individual skin and hair colour, nystagmus and a null point. Thank you to our wonderful volunteer knitter, Lynda. Order your nystagmus mascot here Or, if you prefer, you can … Continue reading We’re back!

Sam’s challenge of a lifetime


Nystagmus Network Trustee, Sam Jones will be cycling 500 miles around the North Coast of Scotland in June this year to raise money for the Nystagmus Network. It’s the ultimate road trip and the challenge of a lifetime. What people may not realise is that Sam has nystagmus himself and is acually the reason the … Continue reading Sam’s challenge of a lifetime

Thank you for donating to our BBC Radio 4 appeal


Thank you to everyone who gave to our BBC Radio 4 charity appeal in June this year. The appeal raised £9, 230. You can read what a difference the appeal has made to the charity and the nystagmus community on the BBC website here where you can also listen again to Richard Osman presenting the … Continue reading Thank you for donating to our BBC Radio 4 appeal

Thank you, Emma


For Halloween 2020 Emma and her very determined family held a coffee, cake and crafts fundraiser for the Nystagmus Network. All COVID-19 restrictions were followed and the family raised £400. An amazing effort! Thank you so much! At Halloween 2020 Emma and her very determined family held a coffee, cake and crafts fundraiser (remember those?) … Continue reading Thank you, Emma

Thank you, Claire


Both Claire and her young son, Zac have nystagmus. In 2019 Claire decided she was going to do a sky dive for the Nystagmus Network. Postponements because of the weather and then again this year because of lockdown, meant Claire was waiting nervously nearly a whole year before she could make her leap. But she … Continue reading Thank you, Claire