30 years of nystagmus research – what a difference it has made


When my daughter was 6 weeks old a paediatrician at baby clinic told me she was blind. Just like that. No preamble. It was a devastating experience, a cruel message, bluntly delivered. I went to see my GP, whom I knew well and trusted. She confirmed what I already suspected. My daughter wasn’t blind, but … Continue reading 30 years of nystagmus research – what a difference it has made

Nystagmus Network research investment 2020 – 2021


An update of our post doctoral award For those of you eagerly awaiting news, alongside charity trustees, of the outcome of 2019/2020 applications for the new post doctoral research project into nystagmus, jointly funded by the Nystagmus Network and Fight for Sight, we can now share with you the somewhat disappointing news that the project … Continue reading Nystagmus Network research investment 2020 – 2021

You can still help us from home


From entertainment packages to fitness equipment and more, you can still support the Nystagmus Network from home, by shopping online through #easyfundraising. Signing up is quick and easy and you’ll raise free donations for us every time you shop online.  Please click here to get started THANK YOU!

Quiz Night!


Want to test your general knowledge? Think you’re the brainiest person in the whole nystagmus community? Now’s your chance to prove it! As well as the glory of winning there are cash prizes for 1st, 2nd and 3rd placed players. Good luck, everyone! Join our virtual quiz night this Saturday at 7pm. Sign up NOW.

Take the virtual challenge


Want to make your daily exercise outside a bit more interesting? Then why not sign yourself up for a Local Landmarks Challenge? With marathons, half marathons, 10k and 5k runs postponed, there’s still lots of opportunity to take part in virtual runs and challenges right now. The Local Landmarks Challenge is a solo, virtual run, … Continue reading Take the virtual challenge