Charlie’s Nystagmus Network football team


Charlie loves football. He also loves his team. When they were short of money to pay for the under 7s new kit, Charlie had the brilliant idea of asking the local bank. Banks have lots of money, don’t they? Charlie’s letter arrived on Luke’s desk and then Luke also had a brilliant idea. He decided … Continue reading Charlie’s Nystagmus Network football team

Could you help us walk 500 miles?


If 50 people each walked 10 miles and raised £100 in sponsorship, that would be £5,000 for nystagmus research. Why 500 miles? That’s roughly the distance you’d cover if you walked from one UK nystagmus research centre to all the others. Let’s see if we can do it! Starting at University Hospital, Plymouth, calling at The University … Continue reading Could you help us walk 500 miles?

Tips for giving safely to charity


These are some top tips by the Fundraising Regulator to help you give to charity with confidence. Before giving, check the charity’s name and registration number. Check whether a charity is committed to good fundraising practice by looking out for the Fundraising Badge . Be cautious about people collecting for general charitable causes. Look for the charity’s … Continue reading Tips for giving safely to charity

Fancy a skydive for the Nystagmus Network?


Skydiving is an extreme sport and not for the faint hearted, but it’s the perfect opportunity to ask your friends and family to sponsor you! In 2018, Simon raised over £1,000 for the charity watched by friends and family, including his son, Charlie, who has nystagmus. For more information and to set up your skydive … Continue reading Fancy a skydive for the Nystagmus Network?

Thank you to our easyfundraisers


Thank you Fiona, Jackie, Jane, Lyndsay, Rachel, Sofie, Sue, Tim and all our other lovely supporters for raising donations for the Nystagmus Network with easyfundraising! If you haven’t signed up yet, it’s easy and completely FREE. 6,200 shops and sites will donate to us when you use easyfundraising to do your everyday online shopping – … Continue reading Thank you to our easyfundraisers

Join our Easter Challenge and get fit for the summer


Take on a 50 km Ultra or a historic 25km – and make it an active Easter! From the Windsor Racecourse base camp 1500 adventurers will head out on looped routes through the Great Park with fantastic views of the Castle, on to Runnymede, along the Thames Path, and take in some wonderful countryside. You’ll … Continue reading Join our Easter Challenge and get fit for the summer

Run the Royal Parks


The Royal Parks Half Marathon is a spectacular run through central London – the first and only one of its kind. The stunning 13.1 mile route takes in the capital’s world-famous landmarks on closed roads, and four of London’s eight Royal Parks – Hyde Park, The Green Park, St James’s Park and Kensington Gardens. Stephen … Continue reading Run the Royal Parks

Wiggly Walk 2


The amazing Mike Larcombe, nystagmus champion extraordinaire is at it again! You will remember, of course, that in 2019/2020 Mike walked the entire length of New Zealand to raise awareness and funds for nystagmus research. New to Mike’s story? Catch up on the all the highlights here This New Year sees Mike embark on another … Continue reading Wiggly Walk 2

Please nominate us to win a £1,000 donation


For 12 days this Christmas, as part of Ecclesiastical’s movement for good , the company will be making £120,000 in donations to charities to help them deliver their vital work. Please nominate the Nystagmus Network for a chance to help us win £1,000! With that amount of money we could supply a lot of hospital clinics with … Continue reading Please nominate us to win a £1,000 donation