Any school can take part in Jeans for Genes Day. Pupils and staff can wear their jeans to school for a day and make a donation to charity. How to get your school involved Check they haven’t held a Jeans for Genes Day in the last 3 years. Ask the headteacher or other member of … Continue reading Jeans for nystagmus Genes
Mike has nystagmus and so does his young nephew, Archie. Later this year and well into 2020, Mike will be walking the length of New Zealand to help find a cure for nystagmus. The route he’s following is the Te Araroa pathway, taking in both the north and south islands, on foot and sometimes in … Continue reading Mike’s wiggly walk – video update
Nystagmus Network supporter, Phil Morris organised a charity cricket match on Sunday 30th June 2019. The teams were Phil’s own Hendrefoilan Hedgehogs versus an Invitational 11 from a number of other teams around the west of Swansea. A great game was had by all with a post match BBQ, cake stall and raffle. Due to … Continue reading Howzat?
The Nystagmus Network would like to say a huge thank you to Shirley Pennington, her family, friends and local Shropshire community. Shirley recently organised an auction of promises to raise money for the Nystagmus Network. Shirley’s event raised a phenomenal £16,625! The auction was in part a celebration of Shirley’s son, James’s marriage to Rhiann … Continue reading Thank you, Shirley
In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” On Nystagmus Awareness Day itself a family shares their son’s amazing nystagmus story … “Our eldest boy, Sonny-John has nystagmus, and from as long as we can remember he has been … Continue reading How amazing is Sonny-John?
On Nystagmus Awareness Day we are proud and delighted to announce that our newest supporter, Mike plans to walk the length of New Zealand to help find a cure for nystagmus. The route he’s following is the Te Araroa pathway, taking in both the north and south islands, on foot and sometimes in a kayak, … Continue reading Mike’s wiggly walk
Please join the Nystagmus Network Lottery for your chance to win £25,000 every week! We receive 100% of the profit which goes to support everyone affected by nystagmus, raises awareness of this complex condition and funds research! Please join sign up here.
Nystagmus Network trustee, Tim Cuddeford, ran the London Vitality 10 k on Bank Holiday Monday to raise funds for the charity. Tim said: ” “I did it in 00:58:48, not quite catching Sir Mo Farah.” Tremendous effort, Tim. We’re all so proud of you! You can still sponsor Tim by visiting his Justgiving page, here.
Ben is doing a ‘wobbly cycle ride’ this Saturday, 4 May. He’ll be riding 35 miles for his brother, who has nystagmus, to raise money for the Nystagmus Network and to achieve his Duke of Edinburgh award. Here’s what Ben says: “I am Ben and I’m 13 years old. I am doing this cycle ride … Continue reading Ben’s a true nystagmus hero
A big thank you to everyone at St John the Baptist junior school in Hampton Wick (Richmond upon Thames) for nominating Nystagmus Network as their chosen charity for their recent cake sale. Coordinated by Benjy Greenwood and Year 6, the cake sale raised an amazing £316.46 and sold over 300 cakes in a 15 min … Continue reading Benjy’s cake sale