How amazing is Sonny-John?


In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?” On Nystagmus Awareness Day itself a family shares their son’s amazing nystagmus story … “Our eldest boy, Sonny-John has nystagmus, and from as long as we can remember he has been … Continue reading How amazing is Sonny-John?

Join our Lottery


Please join the Nystagmus Network Lottery for your chance to win £25,000 every week! We receive 100% of the profit which goes to support everyone affected by nystagmus, raises awareness of this complex condition and funds research!  Please join sign up here.

Our fabulous Baker boy!


Steve Baker, who’s Twitter handle is, appropriately, @fabbakerboy, will be running the London marathon this Sunday for nystagmus research at Moorfields. Not content with just one marathon, Steve, who has congenital nystagmus himself, is also taking on this year the QE Marathon in March and the North Downs Way 50 mile ultramarathon in May. Steve … Continue reading Our fabulous Baker boy!

Our biggest ever investment in nystagmus research


Thanks to the generosity of our members, fundraisers and supporters and our longstanding partnership with Fight for Sight, the UK’s leading eye research charity, the Nystagmus Network is delighted to be able to announce our biggest ever funding commitment to nystagmus research. At the Nystagmus Network nystagmus research workshop in September 2018, charity trustees asked … Continue reading Our biggest ever investment in nystagmus research