Mike’s a Nystagmus Super Hero


In case you haven’t heard yet, Southampton born, Mike Larcombe, who has CN, set off on his Walk for Wiggly Eyes on 16 December. Mike is walking the entire length of both islands of New Zealand to raise awareness of nystagmus and funding for nystagmus research. The Nystagmus Network is one of Mike’s 3 chosen beneficiary charities. The others … Continue reading Mike’s a Nystagmus Super Hero

Thomas and Ben are #NystagmusStars


Today we have 2 #NystagmusStars for the price of 1! Their Mum says: “These are my two nystagmus stars, Thomas and Ben, who are confident, happy and loving boys.”  To nominate your #NystagmusStar or to make a donation to help the Nystagmus Network support lots more people to reach their potential, please click here. Thank … Continue reading Thomas and Ben are #NystagmusStars

Phoenix is a #NystagmusStar


Phoenix is 12. He has nystagmus and albinism. At a recent parents’ evening his teachers said he is exceeding most of his targets and they had nothing but praise for him. His Mum is very proud of him, too. To nominate your #NystagmusStar or to make a donation to help the Nystagmus Network support lots … Continue reading Phoenix is a #NystagmusStar

Ryan is a #NystagmusStar


Following a difficult birth, Ryan has nystagmus and is severely partially sighted. According to his Mum, he’s the funniest, most sensitive little man ever and whoever meets Ryan falls instantly in love with him, because he smiles from the start of the day to the end. She calls him “my number one star, my boy, … Continue reading Ryan is a #NystagmusStar

Sarah is a #NystagmusStar


Sarah is an accomplished sports woman, mother and soon to be driver! She has never let nystagmus prevent her from trying anything she has wanted to do. Sarah is nominated by John who says: “She is my star.” To nominate your #NystagmusStar or to make a donation to help the Nystagmus Network support lots more … Continue reading Sarah is a #NystagmusStar

Oscar is a #NystagmusStar


Oscar sometimes finds it hard to understand why his nystagmus makes it so hard for him to do things, but he’s completely undaunted. He’s a keen fundraiser and always ready to help raise awareness, too. His Mum nominated him because she wants the world to know how amazing he is and, she says “for Oscar … Continue reading Oscar is a #NystagmusStar