Find lots of nystagmus stories people have generously shared with us here.
Welcome to our collection of personal nystagmus stories, shared to help people understand the condition better.
“Be confident, be proud and hold your head up high.”
“Personally, I don’t know what life with nystagmus is like, but I do know that with the right mindset and determination it can’t stop you from doing what you love.”
“Her friends don’t see her as visually impaired, they just see her as Savannah.”
Gerard has recorded his nystagmus story in the form of a song he wrote for his new musical ‘Painting the Town’ about a visually impaired painter and decorator.
“I found just being confident and proud of my visual impairment helps so much.”
A big brother and sister are raising awareness of nystagmus for their little brother, Jude.
Peter shares his nystagmus story in the form of a poem.
“I have always had barrels of confidence and take pride in how much I have achieved despite my visual impairment.”
“Ella is now 4 years old and will be starting school in September. She is amazing beyond words.”
“I have embraced all the opportunities in life that come my way.”
“Robyn’s love for life and pure determination have shown me I don’t have to be so worried.”
“We are stronger together and shining a greater light on this condition in our own unique ways.”
“I don’t know what your world looks like, but mine probably looks a bit different.”
“I became determined to prove that not being able to drive wouldn’t stop me from being successful.”
“With challenge, comes growth, wisdom and power!”
“She has opened up an entire new way to see the world and its endless possibilities.”
“Our story will continue. Our boys’ journeys will take them which ever way they choose – they just need some extra support and consideration.”
“To say we are proud of our son is an understatement!”
“My hope for the future is that people will understand more about what nystagmus is.”
“If only I had known back then what my daughter would go on to achieve, maybe I wouldn’t have worried so much.”
“This is only the start of our nystagmus story with great things to come.”
“When I look back to that first night nystagmus was mentioned to me I can’t believe how far we’ve come.”
John has sent a letter to his 9-year-old self
“I have spent 60+ years thinking this was just a funny and rather unique aspect of being me.”
“Not many people know what nystagmus is … it’s a very difficult condition to describe.”
“My daughter is 18 months old and it was clear from early on that her eyesight was better than mine.”