Our collection of stories


Read lots of nystagmus stories people have generously shared with us here.

Welcome to our collection of personal nystagmus stories.

Carol smiles at the camera.
Read Carol’s story here

I have spent 60+ years thinking this was just a funny and rather unique aspect of being me.

Joel head shot.
Read Joel’s story here

Not many people know what nystagmus is …  it’s a very difficult condition to describe.

Julia and her young daughter smile for the camera. They are at the seaside and the child is holding a toy windmill.
Read Julia’s story here

My daughter is 18 months old and it was clear from early on that her eyesight was better than mine.