James and his little brother, Thomas, are taking on a very special challenge this summer to raise money for two charities very close to the family’s heart.
James (8) and Thomas (5) have decided to challenge themselves to walk 118 miles throughout August to raise money for Chromosome 18 Registry and Research Society Europe and the Nystagmus Network. This means an average of 3.8 miles per day consciously walked to get to their target.
Why these charities?
When James was 10 months old he was diagnosed with Nystagmus. He is registered visually impaired as a result.
James was later diagnosed with a very rare genetic disorder called Chromosome 18q-23 distal deletion syndrome.
At least 1 in 1,000 babies are born with nystagmus.
Chromosome 18q- effects 1 in 55,000 births.
Having both is super rare!
So that Chromosome 18 Registry and Research Society Europe and the Nystagmus Network, two tiny charities, can continue to offer support to families just like James’s, please sponsor the boys today.
CLICK THIS LINK TO SPONSOR JAMES. Thank you!
