If you missed Richard Osman presenting the Nystagmus Network charity appeal on BBC Radio 4 at 07.54 this morning you can listen again now. Listen again here Make a donation to the appeal here Huge thanks to Richard and to everyone for donating to the appeal. Your generosity will ensure that the charity can continue … Continue reading Missed the appeal? Listen again!
The Nystagmus Network is delighted to announce that it has been granted a BBC Radio 4 charity appeal. The appeal will be presented by well known TV presenter, broadcaster and author, Richard Osman on Sunday 5 July. Richard has nystagmus himself and says it is his “absolute pleasure” to be able to support the charity … Continue reading Richard Osman to voice Radio 4 appeal
Nystagmus Awareness Day – 20 June 2020 It’s national and international Nystagmus Awareness Day on Saturday 20 June 2020. We may all be staying at home this year, but we can still mark the day and raise awareness to ensure that the 1 in 1,000 adults and children living with nystagmus enjoys a greater understanding … Continue reading Nystagmus Awareness Day 20 June 20
Thank you to everyone who sponsored Sue to knit 26 nystagmus mascots wearing running kit for her recent 2.6 challenge. Thank you, too, to everyone who ordered a mascot. All 26 mascots have now been sold, but Sue has promised to make some more as soon as she can. Meanwhile, you can still order a … Continue reading Sold out
The Nystagmus Network commissioned a YouGov survey in May 2020, ahead of Nystagmus Awareness Day on 20 June, to see how aware the UK population is of nystagmus. The survey was free of charge, thanks to a competition, run by the Small Charities Coalition of which we are a member. The headline results 82% of … Continue reading A YouGov nystagmus awareness survey
WALK, JOG, or RUN Anywhere – Anytime… THROUGHOUT JUNE From 50 km up to 500 km… You choose Your challenge Sign Up Now… With relaxation of the restrictions on travel and exercise, June is ideal to enjoy the great outdoors, push yourself further, and get into shape for the summer! Join our virtual event – You choose Your challenge from 50km up … Continue reading Boost it for June
The Nystagmus Network is delighted to have been awarded just over £8,000 in National Lottery funding to underpin its work supporting adults with nystagmus. The charity will use the funding to expand our support services to meet the greater needs of the nystagmus community during the pandemic and particularly to reach those who are isolated … Continue reading The Nystagmus Network receives £8,000 from the National Lottery to increase our support services
Sue has finished her 2.6 challenge ahead of schedule. She has knitted 2.6 special edition Nystagmus Network mascots in less than 26 days! Each mascot wears running kit to signify that the 2.6 challenge was intended to replace this year’s London Marathon, cancelled due to the pandemic. So far, Sue has raised £315 in sponsorship … Continue reading Sue’s 2.6 challenge – complete!
Every Saturday at 7pm Please join us for our virtual quiz night every Saturday at 7pm. Get everyone together in one room, sign up, log in and away you go. It’s great fun! There are cash prizes for 1st, 2nd and 3rd placed players. Thank you for your support. Taking part in the quiz is … Continue reading Join our virtual quiz night
We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered by Question 1: Will there ever be a cure for nystagmus? Answer: (JS) Nystagmus is the result of a lot of different things going wrong. … Continue reading Your nystagmus research questions answered