Run the Royal Parks


The Royal Parks Half Marathon is a spectacular run through central London – the first and only one of its kind. The stunning 13.1 mile route takes in the capital’s world-famous landmarks on closed roads, and four of London’s eight Royal Parks – Hyde Park, The Green Park, St James’s Park and Kensington Gardens. Stephen … Continue reading Run the Royal Parks

Training eye care practitioners


FREE interactive CET webinars with the Nystagmus Network for Optometrists and Dispensing Opticians This December the Nystagmus Network hosted a further series of three interactive training webinars for eye care practitioners. Investigating and managing nystagmus in the orthoptic clinic was delivered by Gemma Arblaster, Orthoptist at Sheffield Teaching Hospitals NHS Foundation Trust and Lecturer in … Continue reading Training eye care practitioners

Take part in research


Division of Optometry and Visual Sciences, School of Health Sciences, City, University of London People with a visual impairment needed for research into the effect of the pandemic on people living with a visual impairment We are looking for volunteers, aged 18 or over, who are living with a visual impairment in the UK to take … Continue reading Take part in research

Wiggly Walk 2


The amazing Mike Larcombe, nystagmus champion extraordinaire is at it again! You will remember, of course, that in 2019/2020 Mike walked the entire length of New Zealand to raise awareness and funds for nystagmus research. New to Mike’s story? Catch up on the all the highlights here This New Year sees Mike embark on another … Continue reading Wiggly Walk 2

Please nominate us to win a £1,000 donation


For 12 days this Christmas, as part of Ecclesiastical’s movement for good , the company will be making £120,000 in donations to charities to help them deliver their vital work. Please nominate the Nystagmus Network for a chance to help us win £1,000! With that amount of money we could supply a lot of hospital clinics with … Continue reading Please nominate us to win a £1,000 donation

What do we see?


In answer to the question ‘What does a visually impaired child see?’ the Thomas Pocklington Trust has produced a new video simulating the 5 most commonly seen forms of vision impairment in children and young people, including nystagmus. The film, What do we see? 2, shows what it’s like to have nystagmus, retinitis pigmentosa, infantile … Continue reading What do we see?

Parent Power is back!


Thanks to a grant from our friends at the Thomas Pocklington Trust, the Nystagmus Network is delighted to be able to offer parents and carers of children and young people with nystagmus the opportunity to attend one of a brand new series of Parent Power webinars. Each webinar will introduce parents to the special educational … Continue reading Parent Power is back!

The Nystagmus Champions of 2021


Nystagmus Network Vice-chair, Peter Greenwood, was delighted to announce the ‘nystagmus champions’ of 2021 at the end of Open Day party on 25 September. Tyler UrquhartThe Urquhart family are, quite literally, tireless supporters of the Nystagmus Network.This year they walked ran or swam 200km over 30 days. Everyone took part, even the dog!We like to … Continue reading The Nystagmus Champions of 2021

Elections Bill could weaken protections for blind and partially sighted voters


Urgent update from RNIB:  The Government has put forward a draft law – the Elections Bill – which weakens protection for an independent vote for blind and partially sighted people. But there is still time to stop this from happening.  RNIB need to persuade the Government to maintain the existing law, and need your help to do it.  Will you meet … Continue reading Elections Bill could weaken protections for blind and partially sighted voters

The State of the UK’s Eye Health


A NEW report paints a stark picture of the impact the Covid-19 pandemic has had on eye health in Britain – with experts warning of a ‘ticking timebomb’ and significant fallout for years to come. The State of the UK’s Eye Health 2021 report, commissioned by Specsavers in collaboration with leading eye health experts and charities, … Continue reading The State of the UK’s Eye Health