Quality of Life Research


Acumen are currently organising research in the UK on behalf of a national sight loss charity to test a quality of life measure that is currently being developed. For the survey they are looking to blind and partially sighted people. The quality of life measure will help the charity assess the ongoing wellbeing of people … Continue reading Quality of Life Research

Open Day digital programme – out now


All registered Open Day 2021 delegates are now receiving their copies of the digital event programme. This contains all the links to the pre-recorded presentations and the Zoom invitations to the live workshops, Q+A panels, quiz and networking event. There’s still plenty of time for you to register and take part from 10am on Saturday … Continue reading Open Day digital programme – out now

Take part in research at Cardiff University


Professor Jon Erichsen and his team from the School of Optometry and Vision Sciences, Cardiff University, Nikita Thomas, Katherine Ward and Onyeka Amiebenomo invite you to take part in nystagmus research. Following their demonstrations at virtual Open Day 2021 of various nystagmus and eye tracking studies currently being carried out, you are warmly invited to … Continue reading Take part in research at Cardiff University

Frances Lilley


Frances Lilley has decided to stand down after 5 years as a Trustee of Nystagmus Network.  During this time, she has been performing the role of volunteer education advocate and has provided invaluable advice to countless parents to guide them through the complex and, quite often, challenging world of EHC plans and the support that … Continue reading Frances Lilley

Register now for Open Day 2021


Nystagmus Network Open Day – Saturday 25 September  We promise a packed programme of presentations, inspirational speakers, research updates, videos, workshops, forums, competitions and so much more – all available wherever you are. Plus, you’re warmly invited to join a fabulous live and interactive networking event. The theme for this year is ‘How amazing are you?‘. We’ll be celebrating … Continue reading Register now for Open Day 2021

Free iPads or iPhones for children with a vision impairment aged 3-18


Guide Dogs this week launch a new service, Tech for All, to help children with a vision impairment access their own devices at home – to support learning, or simply to have fun and explore the interests and activities they enjoy.  Tech for All will provide iPads to visually impaired children aged 3-18 across the … Continue reading Free iPads or iPhones for children with a vision impairment aged 3-18

Seeing Beyond The Eyes


New CET e-learning enhances skills and accessibility when assisting patients with sight loss A new CET e-learning course for optical professionals to develop practical skills when dealing with patients with a visual impairment has been launched by award-winning social businessman and Nystagmus Network trustee, Dan Williams of Visualise Training and Consultancy. ‘Seeing Beyond the Eyes’ … Continue reading Seeing Beyond The Eyes

New e-learning course enhances skills when assisting people with sight loss


A new e-learning course to develop knowledge, skills and confidence when assisting people with a visual impairment has been launched by award-winning social businessman and Nystagmus Network trustee, Dan Williams of Visualise Training and Consultancy. ‘Visual Impairment Awareness for All’ is ideal for anyone who regularly interacts with people living with visual impairment as it … Continue reading New e-learning course enhances skills when assisting people with sight loss

The Nystagmus Care Pathway


Why we need a pathway Getting a diagnosis of nystagmus for a small baby is an anxious time if you’ve never heard of the condition before. It’s even harder if all the medical information seems a bit bewildering and you don’t know where else to turn for support. That’s why NUKE (the Nystagmus UK research … Continue reading The Nystagmus Care Pathway