nystagmus network – Nystagmus Network

Richard stands at a podium with his arms held aloft in celebration.

Our Richard Wilson essay prize winners

Since 2024 the Nystagmus Network has held a competition in honour of our late former chair of trustees, Richard. The purpose is to encourage students to pursue a career in … Continue reading Our Richard Wilson essay prize winners

What 100,000 genomes taught us about nystagmus

Thanks to a team at the University of Leicester, families living with nystagmus were included in the 100,000 genome project. In an article by our Head of Research, read how … Continue reading What 100,000 genomes taught us about nystagmus

We’re nominated!

The Nystagmus Network is proud to have been nominated for a Visionary Eye Health Award 2026 for our project creating the family friendly guide, ‘How nystagmus is diagnosed’. Turning clinical … Continue reading We’re nominated!

A close up of a table with laptops, pads and pens and the hands of people sitting around it.

We’re Hiring! Join the Nystagmus Network Team

We’re thrilled to announce that we’re recruiting for not one but two exciting roles at the Nystagmus Network and we want to hear from you! We’re seeking a natural community-builder and … Continue reading We’re Hiring! Join the Nystagmus Network Team

A flyer for the big nystagmus meet up in Leicester on 20 June.

Join us in Leicester for Nystagmus Awareness Day

The Nystagmus Network team will be celebrating Nystagmus Awareness Day 2026 in style with an in-person event in the heart of Leicester on Saturday 20 June. Among our guests will … Continue reading Join us in Leicester for Nystagmus Awareness Day

Annual General Meeting (AGM) 2025

Notice is hereby given that the AGM of the Nystagmus Network will take place online on Monday 1 June at 6pm. Members are invited to exercise their right to vote. Please note: The … Continue reading Annual General Meeting (AGM) 2025

Kim wearing her Nystagmus Network running vest and a black cap.

Thank you, Kim!

When Kim applied to the Nystagmus Network for a place in the TCS London Marathon 2026, we didn’t hesitate to award her our charity ballot place. Kim’s daughter, Maya, has … Continue reading Thank you, Kim!

Ryan, wearing his Nystagmus Network running vest and Victoria hold up their finishers' medals.

Congratulations Ryan!

After unexpectedly winning a place for the TCS London Marathon 2026 in the public ballot, Ryan became a (very) accidental first time marathon trainee. He set himself the ‘couch to … Continue reading Congratulations Ryan!

A young child wearing dark glasses is standing in a garden beside her father.

Trustees publish their annual report 2025

Trustees of the Nystagmus Network have lodged their annual accounts and report of charitable activities with the Charity Commission. 2025 was a strong and encouraging financial year, building on the … Continue reading Trustees publish their annual report 2025

The front cover of the report which is bright orange with white print.

Employment matters

One year on from the publication of Changing Attitudes, Changing Lives, the All Party Parliamentary Group (APPG) on Eye Health and Vision Impairment has published a new report assessing progress … Continue reading Employment matters