Sue’s 2.6 challenge – complete!


Sue has finished her 2.6 challenge ahead of schedule. She has knitted 2.6 special edition Nystagmus Network mascots in less than 26 days! Each mascot wears running kit to signify that the 2.6 challenge was intended to replace this year’s London Marathon, cancelled due to the pandemic. So far, Sue has raised £315 in sponsorship … Continue reading Sue’s 2.6 challenge – complete!

Join our virtual quiz night


Every Saturday at 7pm Please join us for our virtual quiz night every Saturday at 7pm. Get everyone together in one room, sign up, log in and away you go. It’s great fun! There are cash prizes for 1st, 2nd and 3rd placed players. Thank you for your support. Taking part in the quiz is … Continue reading Join our virtual quiz night

Your nystagmus research questions answered


We asked a group of Nystagmus Network supporters what questions they would most like to put to nystagmus researchers. Then we found researchers to answer them. Your questions were answered by Question 1: Will there ever be a cure for nystagmus? Answer: (JS) Nystagmus is the result of a lot of different things going wrong. … Continue reading Your nystagmus research questions answered

#DeclutterAndDonate


Are you taking some time during lockdown to declutter your cupboards and shelves? Now you can turn your unwanted items into donations! The Nystagmus Network is inviting you to join in with national #DeclutterAndDonate as part of the global #GivingTuesdayNow initiative. It’s a totally safe and fun way to support our work in the nystagmus … Continue reading #DeclutterAndDonate

Sue’s still knitting!


From now until 26 May, this is Sue’s daily schedule: 45 minutes yoga 8 hours working at the Nystagmus Network 1 hour walking her dogs Then carry on with her Two Point Six Challenge for the Nystagmus Network: knitting 26 mascots by 26 May. You can sponsor Sue here. To pre-order your nystagmus 2.6 challenge … Continue reading Sue’s still knitting!

How amazing are you?


In the run up to Nystagmus Awareness Day on 20 June 2020, we are once again asking you to share your amazing nystagmus success stories. Not only do these stories help raise awareness of nystagmus, but they also bring hope to so many parents whose children have just been diagnosed. In previous years we’ve heard … Continue reading How amazing are you?

Sue’s Two Point Six Challenge


Sunday 26 April 2020 was to have been the date of the London Marathon with runners raising £millions for UK charities. The Nystagmus Network’s runner, Adam, is still training to run in the postponed race in October. Meanwhile, the organisers have launched The Two Point Six Challenge to help save the UK’s charities by giving … Continue reading Sue’s Two Point Six Challenge

Nystagmus Network staff under lockdown


Nystagmus Network staff team members, Sue, Sara and Debbie are all adjusting to the current pandemic and a slightly different way of doing things. Though they all usually work from home, some things have changed. Debbie is currently furloughed and spending important time at home looking after her family and home schooling her daughters. Sara … Continue reading Nystagmus Network staff under lockdown

Nystagmus Awareness Day 2020


We may all be staying at home, but we can still mark national and international Nystagmus Awareness Day. Here are just some of the ways you can get involved. How amazing are you? In the run up to Nystagmus Awareness Day 2020, we are once again asking you to share your amazing nystagmus success stories. Not only … Continue reading Nystagmus Awareness Day 2020

Sara on the NHS front line


Sara works hard part time as Information Support Officer with the Nystagmus Network, but did you know she also works on the NHS front line? She’s even working today on her son’s birthday. Her role is with a busy doctors’ practice. Sara says: “I manage a team of 10 receptionists and support all the clinicians … Continue reading Sara on the NHS front line