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Parent Power comes to Bristol

Parent Power, funded by the National Lottery Community Fund

The Nystagmus Network invites parents and carers to attend our next Parent Power education workshop.

Venue:      DoubleTree by Hilton Bristol City Centre

Date:          Saturday 29 February

Time:         9.30m to 3pm

The aim of the project is to empower parents and carers with legally based information on how to advocate for their children with nystagmus to ensure they receive appropriate support across all stages of education.

Led by our 2 IPSEA trained education advocates, Frances Lilley and Claire Brinn, delegates will learn about the rights of their children under law and receive advice on how to access the range of SEN support available to visually impaired children, including an explanation of the EHC plan process.

The workshops will also cover practical information on exam access arrangements, reading resources and transition plans. Content will be tailored to the age and educational stage of your child.


There will be more news about 1 further workshop very soon.

Dark City theatre event – Bristol


Are you interested in stories, theatre and creative technology?

Then join PECo theatre in a monthly event to connect with others and get inspired!

Working with a group of visually impaired core collaborators and others in Bristol, PECo theatre is developing ‘Dark City’an immersive multi-sensory theatre piece exploring visual impairment.

Open to anyone who is visually impaired or connected to the visually impaired community, Dark City sessions are an enjoyable and inspiring way for you to engage with and help develop the project as it evolves.

Each session will include:

  • Live podcast interviews hosted by radio legend Alan Dyte
  • Informal Q + A, with a focus on different causes of sight loss each session
  • Exclusive sharing of the work created by the theatre company so far, with a chance for you to give your feedback and ideas
  • Opportunities to discuss creative activities you would like made accessible in Bristol

Sessions take place at Pervasive Media Studios, Watershed, central Bristol, Friday evenings. First session is Friday 30th November 6.30 – 9pm.

Sandwiches and other light refreshments will be available and we can even contribute to the costs of your travel!

Numbers are limited so to reserve your place and register please contact:[email protected]


Here’s a fundraising opportunity with a difference!

You can choose to cycle a 50k or 100k route around London, Bristol, Glasgow or Liverpool AT NIGHT with Nightrider 2019.

Provided you book your own place before 31 December, the registration fee is just £75. Then, simply set up your Justgiving page linked to the Nystagmus Network as usual and every penny you raise in sponsorship after that will come directly to the charity.

Let us know when you’ve secured your place. We’re here to support you!