Another Nystagmus Network first!


Thanks to Paul Bowry and his family, the Nystagmus Network will be enjoying our first ever fundraising Car Boot Sale on Tuesday 18 September. Paul has been running boot fairs at the site in Essex for some time. Following his grandson’s nystagmus diagnosis, Paul decided to negotiate a charity collection with the organisers at one … Continue reading Another Nystagmus Network first!

Roselle is coming to Open Day


Because there is such a close link between albinism and nystagmus, the Nystagmus Network works closely with Albinism Fellowship UK. Chair of AFUK, Roselle Potts, will be joining us this year at Open Day to speak with researchers, to find out more about our education advocacy service and chat with families affected by ocular or oculocutaneous … Continue reading Roselle is coming to Open Day

VI skiing this Bank Holiday weekend!


We’re delighted to confirm another opportunity to ski with the Nystagmus Network and the Outspan Rebels VI ski team. On Sunday 26th August we will be running a two-hour ski lesson at £20 per person at Snozone, Milton Keynes. From 2:30pm to 4:30pm we will have a beginners’ session on the starter slope and intermediates’ on … Continue reading VI skiing this Bank Holiday weekend!

Did you come to Snow Camp?


It was a fantastic event. There were so many amazing people there to inspire adults and children to get out on the slopes and enjoy the snow. David Katz was there, sharing stories of his amazing photography career, despite having ocular albinism and nystagmus. The Outspan Rebels VI ski team were there, with their amazing … Continue reading Did you come to Snow Camp?

Menna and Jen are coming to Snow Camp!


The first Nystagmus Network Snow Camp of 2018 takes place this Sunday, 17 June, at Snozone Milton Keynes. Lots of families have signed up to enjoy a day of sledging and skiing alongside the famous Outspan Rebels VI ski team. Their chief coach, Charlotte Evans MBE, will be on hand with training hints and tips … Continue reading Menna and Jen are coming to Snow Camp!

Open Day tickets for members – available soon


Tickets to the biggest UK nystagmus event of the year will soon be available to book. Subscribed members of the charity will be able to book their priority free tickets to our annual Open Day from 12.00 midday on Thursday 26 June. Members will be notified with details of how to book their places by … Continue reading Open Day tickets for members – available soon

Guest post from Marcus at Tate Britain


This is a message from Marcus at Tate in which I tell you about our forthcoming Audio Description events at Tate Britain, this month and next. Tate Britain, Monday 18th June 2018 at 10.30 am for refreshments and 11.00 am – 12.15 pm tour. Aftermath: Art in the Wake of World War One Join Marcus and … Continue reading Guest post from Marcus at Tate Britain