The first meeting of our brand new North West regional group took place on Saturday 17 November in Manchester. Huge thanks to Nystagmus Network trustee, Marie Turnbull for hosting, to Mike and Lindsi for their professional input and to the families and adults who came along. The next meeting of this group is on Saturday 26 … Continue reading Join our Manchester group
DARK CITY SESSIONS Are you interested in stories, theatre and creative technology? Then join PECo theatre in a monthly event to connect with others and get inspired! Working with a group of visually impaired core collaborators and others in Bristol, PECo theatre is developing ‘Dark City’an immersive multi-sensory theatre piece exploring visual impairment. Open to anyone … Continue reading Dark City theatre event – Bristol
Moorfields Eye Hospital is holding an information day for adults with nystagmus since childhood. The day will allow you the opportunity to directly influence the patient pathway from diagnosis to treatment and the support services available. There will be talks and lots of discussion about the way forward for nystagmus patient care and treatment. The … Continue reading Patient Information Day – Moorfields
We were so lucky to have the inspirational David Katz as our guest speaker at Open Day 2018. Not only did he deliver an amazing presentation, but he was around all day chatting with delegates and supporting Maayan with her Movement and Spirit workshop for the children. If you weren’t able to come to Open … Continue reading David’s amazing Open Day film
We’re about to launch our very first local nystagmus network in Manchester. Your host, Nystagmus Network trustee, Marie Turnbull, is arranging a date, time and venue for your first get together. We’d like as many people as possible to be involved. If you’d like to come along, please contact us by email and we’ll send … Continue reading Calling Manchester!
At 11am on Sunday 10 March 2019 we’re planning the biggest nystagmus community get together of the year. Team Nystagmus Network will be taking part in the Eye to Eye Walk between the iconic London Eye on London’s South Bank to the equally famous and symbolic eye sign outside Moorfields Eye Hospital. Please join us. … Continue reading Could you walk from Eye to Eye for nystagmus?
The Nystagmus Network is delighted to be supporting a Nystagmus Patient Information Day, running at Moorfields, London on Saturday 24 November. Moorfields Eye Hospital is holding an information day for adults with nystagmus since childhood. The day will allow you the opportunity to directly influence the patient pathway from diagnosis to treatment and the support … Continue reading Nystagmus Patient Information Day
In partnership with Moorfields Eye Charity, the Nystagmus Network is recruiting a team to take part in the Eye2Eye walk from the London Eye to the iconic eye on the front of the Moorfields Eye Hospital building. The walk takes place on Sunday 10 March 2019 and you can choose to walk 4 or 14 … Continue reading The Eye2Eye walk for nystagmus research
Researchers and clinicians from Cardiff, London, Plymouth, Sheffield and Southampton are meeting today to plan the way ahead for nystagmus research. Our medical experts are joined by charity trustees and our funding partners, Fight for Sight. The half day conference, hosted by the Nystagmus Network, takes place in Birmingham today ahead of the charity’s Open … Continue reading UK Nystagmus Research Meeting 2018
With thanks to Mike Hughes, our volunteer benefits adviser, who has today supplied a newly updated edition of his booklet on nystagmus and benefits. The new version, taking into account all the latest changes in legislation, is now available free of charge. Download your copy here. Mike will, of course, be at Open Day to … Continue reading Publication update