Visiting a High Street Optometrist


What happens when you’re discharged from the hospital eye clinic and need to visit an optician’s on the High Street? Can staff on the High Street really support you with your sight if you have nystagmus? Can they prescribe the right glasses or contact lenses for you? In their presentation for the Nystagmus Network virtual … Continue reading Visiting a High Street Optometrist

Sometimes we all need more marshmallows


In her presentation for the Nystagmus Network virtual Open Day 2020, Alison Blackman QTVI will talk about resilience and how to boost it. Resilience is the ability to overcome adversity, reduce stress and bounce back from setbacks. In her presentation, Alison explains how to boost resilience in young people with nystagmus. She talks about the … Continue reading Sometimes we all need more marshmallows

Booking now for Open Day 2020


The Nystagmus Network has a huge variety of presentations lined up for you at virtual Open Day 2020 on Saturday 3 October. Enjoy inspirational presentations, research updates and find all the support and information you need, all from the comfort of wherever you are. Everyone welcome! Due to social distancing rules still in place, we … Continue reading Booking now for Open Day 2020

Joanne sings for the Rising Phoenix


The voice of Nystagmus Network member, acclaimed soprano and Open Day 2020 keynote speaker, Joanne Roughton-Arnold features in the inspirational documentary, Rising Phoenix, a Netflix production charting the history of the Paralympic Games through the personal stories of some of the sports stars themselves.  Described by Daniel Pemberton, the film’s musical director as “an incredibly … Continue reading Joanne sings for the Rising Phoenix

Let’s go for an eye test!


Our next webinar is all about going to a high street optician’s when you have nystagmus. Tuesday 12 May at 3pm You have had an eye test … what now ?  An interactive webinar for the nystagmus community. Jayshree Vasani (Dispensing Optician) and Sarah Arnold (Optometrist) want to dispel the myths around what happens after … Continue reading Let’s go for an eye test!

Free webinars on low vision technology


Together with Sight and Sound Technology, the Nystagmus Network is offering 2 free webinars on low vision technology for adults and children with nystagmus. Thursday 23 April, 6-7pm: Low vision technology for adults with acquired or congenital nystagmus Thursday 7 May, 6-7pm: Low vision technology for children with nystagmus, with particular focus on access to … Continue reading Free webinars on low vision technology

Blind in Business event


“Expectations Exceeded” Parent and family workshop run by Friends of Moorfields and Blind in Business Friday 22 May 2020 2pm to 5pm Kemp House (next to Moorfields Eye Hospital) 152-160 City Road, EC1V 2NX The Boardroom, 4th Floor Parents, carers, young people, friends and family are all welcome to attend! Learn and speak with blind … Continue reading Blind in Business event

Join us at the Manchester meet up


The next meeting of our north west regional Nystagmus Network support group is on Saturday, 25 April from 1 to 3pm in central Manchester Adults with nystagmus, parents of children with nystagmus and anyone supporting someone with nystagmus are all welcome to come along. The meeting is hosted by Nystagmus Network trustee, Marie Turnbull (pictured). … Continue reading Join us at the Manchester meet up

Parent Power comes to Leeds


Parent Power, funded by the National Lottery Community Fund The Nystagmus Network invites parents and carers to attend our final Parent Power education workshop. Venue:      DoubleTree by Hilton, Leeds City Centre Date:          Saturday 14 March Time:         9.30am to 3pm The aim of the project is to empower parents and carers with legally based information on … Continue reading Parent Power comes to Leeds