Fancy a stroll through London?


At 11am on Sunday 10 March 2019 we’re planning the biggest nystagmus community get together of the year. Team Nystagmus Network will be taking part in the Eye to Eye Walk between the iconic London Eye on London’s South Bank to the equally famous and symbolic eye sign outside Moorfields Eye Hospital. Please join us. We’re doing … Continue reading Fancy a stroll through London?

Who’s up for a challenge?


Push Yourself Further – 10 great events in 2019 New for 2019 – the Nystagmus Network has partnered up with Action Challenge to bring you 10 fundraising challenges. Ellie and Laura have already signed up. What’s stopping you?! Are you a regular walker and new to endurance events? Perhaps a seasoned trekker looking for testing … Continue reading Who’s up for a challenge?

Manchester nystagmus network


The next meeting of our new North West regional group will take place on Saturday 26 January in Manchester. Nystagmus Network trustee, Marie Turnbull will once again be your host and this time she will be joined by our volunteer Education Advocate, Frances Lilley. We look forward to welcoming back the families and adults who … Continue reading Manchester nystagmus network

Guest post: Audio described tours at Tate


Dear Friends, This is a message from Marcus at Tate in which I would like to wish you a very happy new year, and to tell you about Tate’s Audio Description tours for Blind and Partially Sighted visitors in January and February. Our first tour of the year is at Tate Modern, and takes place … Continue reading Guest post: Audio described tours at Tate

Join our Manchester group


The first meeting of our brand new North West regional group took place on Saturday 17 November in Manchester. Huge thanks to Nystagmus Network trustee, Marie Turnbull for hosting, to Mike and Lindsi for their professional input and to the families and adults who came along. The next meeting of this group is on Saturday 26 … Continue reading Join our Manchester group

Dark City theatre event – Bristol


DARK CITY SESSIONS Are you interested in stories, theatre and creative technology? Then join PECo theatre in a monthly event to connect with others and get inspired! Working with a group of visually impaired core collaborators and others in Bristol, PECo theatre is developing ‘Dark City’an immersive multi-sensory theatre piece exploring visual impairment. Open to anyone … Continue reading Dark City theatre event – Bristol

Patient Information Day – Moorfields


Moorfields Eye Hospital is holding an information day for adults with nystagmus since childhood. The day will allow you the opportunity to directly influence the patient pathway from diagnosis to treatment and the support services available. There will be talks and lots of discussion about the way forward for nystagmus patient care and treatment. The … Continue reading Patient Information Day – Moorfields

David’s amazing Open Day film


We were so lucky to have the inspirational David Katz as our guest speaker at Open Day 2018. Not only did he deliver an amazing presentation, but he was around all day chatting with delegates and supporting Maayan with her Movement and Spirit workshop for the children. If you weren’t able to come to Open … Continue reading David’s amazing Open Day film