Parent Power and networking lunch in Southampton


Parent Power, funded by the National Lottery Community Fund The Nystagmus Network invites parents and carers to attend the first of our Parent Power education workshops. Venue:      Southampton Sight, 3 Bassett Avenue, Southampton, SO16 7DP Date:          Saturday 12 October Time:         10am to 2pm The aim of the project is to empower parents and carers with legally based information … Continue reading Parent Power and networking lunch in Southampton

Manchester meet up


The next meeting of our new North West nystagmus network will take place on Saturday 7 September in central Manchester, 10am to 12 noon. Nystagmus Network trustee, Marie Turnbull will once again be your host . We look forward to welcoming back the families and adults who came along last time and to seeing some … Continue reading Manchester meet up

Special Tai Chi sessions for the Nystagmus Network


Huge thanks go to Aly for organising some very special Tai Chi sessions to help raise money for the Nystagmus Network. Tai Chi is amazing if you have nystagmus. It can help with spacial awareness, balance, co-ordination and so much more. Even if you don’t have nystagmus yourself, please go along to this fabulous fundraiser … Continue reading Special Tai Chi sessions for the Nystagmus Network

Jeans for nystagmus Genes


Any school can take part in Jeans for Genes Day. Pupils and staff can wear their jeans to school for a day and make a donation to charity. How to get your school involved Check they haven’t held a Jeans for Genes Day in the last 3 years. Ask the headteacher or other member of … Continue reading Jeans for nystagmus Genes

Free Open Day places for Cardiff families


The Nystagmus Network has been awarded a small grant by the Millennium Stadium Charitable Trust to sponsor a number of free places at Open Day 2019 for Cardiff families. The event takes place on Saturday 28 September at the Principality Stadium, Cardiff. If you or someone you know would benefit from attending this event, please … Continue reading Free Open Day places for Cardiff families

Parent Power comes to Southampton


Parent Power, funded by the National Lottery Community Fund The Nystagmus Network is now inviting parents and carers to attend the first of our Parent Power education workshops. Location:      Southampton Date:            Saturday 12 October Time:            10am to 2pm Lunch will be provided. This is an adults only event. The aim of the project … Continue reading Parent Power comes to Southampton

In celebration of Irene


Today Nystagmus Network’s Sue and Sara are travelling to Leicester University to attend a day of celebrations. We shall be marking 20 years of ophthalmology in Leicester and, in particular, the work of Professor Irene Gottlob. The programme for the day, at the Ulverscroft Eye Unit, includes a range of presentations on various eye conditions, … Continue reading In celebration of Irene