Free Open Day places for Cardiff families


The Nystagmus Network has been awarded a small grant by the Millennium Stadium Charitable Trust to sponsor a number of free places at Open Day 2019 for Cardiff families. The event takes place on Saturday 28 September at the Principality Stadium, Cardiff. If you or someone you know would benefit from attending this event, please … Continue reading Free Open Day places for Cardiff families

Parent Power comes to Southampton


Parent Power, funded by the National Lottery Community Fund The Nystagmus Network is now inviting parents and carers to attend the first of our Parent Power education workshops. Location:      Southampton Date:            Saturday 12 October Time:            10am to 2pm Lunch will be provided. This is an adults only event. The aim of the project … Continue reading Parent Power comes to Southampton

In celebration of Irene


Today Nystagmus Network’s Sue and Sara are travelling to Leicester University to attend a day of celebrations. We shall be marking 20 years of ophthalmology in Leicester and, in particular, the work of Professor Irene Gottlob. The programme for the day, at the Ulverscroft Eye Unit, includes a range of presentations on various eye conditions, … Continue reading In celebration of Irene

Our Manchester Event


Manchester Royal Eye Hospital is holding a Nystagmus Awarenessafternoon filled with fun activities for children and young people, as well asinformation for parents, carers and families of children with nystagmus.Guests from the Nystagmus Network include the charity’s volunteer benefits adviser, Mike Hughes and trustee, Marie Turnbull who will be available for discussions and to provide … Continue reading Our Manchester Event

QAC Open Days for professionals


Queen Alexandra College A National College for People with Disabilities Information Days for Professionals These events provide you with the opportunity to meet our staff and students and discover more about Queen Alexandra College. FREE OF CHARGE We welcome: Connexions and Careers Advisors DEAs, Work Coaches, Employment Advisors and Social Workers Teachers and Learning Support … Continue reading QAC Open Days for professionals

Let’s talk about driving at Open Day


Following the changes, earlier this year, to requirements around nystagmus and driving in the UK, we have asked a medical expert from the DVLA to come along to Open Day 2019 to answer all your questions. Dr Gareth Rees will join us in Cardiff to lead an informal question and answer session, so whether you’re … Continue reading Let’s talk about driving at Open Day

Join Frances at Open Day


The Nystagmus Network’s volunteer Education Advocate, Frances Lilley has been supporting families with education for many years on behalf of the charity. She became a trustee in May 2016. She has a teenage daughter with congenital idiopathic nystagmus. Trained by IPSEA, Frances gives parents and carers one to one legally-based advice and support on how … Continue reading Join Frances at Open Day

Nystagmus Awareness Day event in Manchester


Manchester Royal Eye hospital are holding a Nystagmus Awareness Day afternoon filled with fun activities for children and young people andinformation for parents, carers and families. The event will take place on Wednesday 19 June. You can drop in from 14.00 to 17.00 in Clinic H. Please register your interest for this event by contacting … Continue reading Nystagmus Awareness Day event in Manchester

Are you going to LOOKfest?


July 26-29 2019 Kentchurch, Herefordshire Fun for all the family! From toddlers to teens, to the truly ancient, there is something for everyone! Parent / Carer ticket: £55.00 Child ticket (3-18 yrs): £35.00 Under 2s go FREE! Welcome to LOOKfest! the first ever VI-accessible summer festival for families with a visually impaired parent or child.  Designed … Continue reading Are you going to LOOKfest?

ANUK conference 2019


Conference 2019 Learn about aniridia and related conditions from each other, and professionals in medical and related fields. Find out how those affected by aniridia deal with it every day. Contribute your experiences, ideas or skills to help others. Expert presentations Dr Simon Hayhoe from Bath University Inclusive Technologies for VI people Dr Ngozi Oluonye from Great … Continue reading ANUK conference 2019