Parent Power comes to Cambridge


Parent Power, funded by the National Lottery Community Fund The Nystagmus Network invites parents and carers to attend our next Parent Power education workshop. Venue:      DoubleTree by Hilton, Cambridge City Centre Date:          Saturday 25 January Time:         10am to 2pm The aim of the project is to empower parents and carers with legally based information on … Continue reading Parent Power comes to Cambridge

Parent Power comes to London


Parent Power, funded by the National Lottery Community Fund The Nystagmus Network invites parents and carers to attend our next Parent Power education workshop. Venue:      Can Mezzanine, Borough, London Date:          Saturday 23 November Time:         9.30am to 1pm The aim of the project is to empower parents and carers with legally based information on how to … Continue reading Parent Power comes to London

Open Day 2019 – the highlights


Over 200 people gathered together on Saturday 28 September at the spectacular Principality Stadium, Cardiff for the Nystagmus Network Open Day 2019. To the strains of Sospan Fach, by Cerys Matthews, Chairman of the Nystagmus Network, Richard Wilson OBE took to the stage to welcome everyone. Up next, Nystagmus Network Founder and Honorary President, Vivien … Continue reading Open Day 2019 – the highlights

UK Nystagmus Research Workshop


The Nystagmus Network is today hosting the UK Nystagmus Research Workshop 2019 at the School of Optometry and Vision Sciences, Cardiff University. Delegates are joining us from the 6 UK centres of nystagmus research excellence. These are: The School of Optometry and Vision Sciences, Cardiff University The Ulverscroft Eye Unit, University of Leicester Moorfields Eye … Continue reading UK Nystagmus Research Workshop

Parent Power and networking lunch in Southampton


Parent Power, funded by the National Lottery Community Fund PLEASE NOTE – BOOKING NOW CLOSED The Nystagmus Network invites parents and carers to attend the first of our Parent Power education workshops. Venue:      Southampton Sight, 3 Bassett Avenue, Southampton, SO16 7DP Date:          Saturday 12 October Time:         10am to 2pm The aim of the project is to empower parents … Continue reading Parent Power and networking lunch in Southampton

Manchester meet up


The next meeting of our new North West nystagmus network will take place on Saturday 7 September in central Manchester, 10am to 12 noon. Nystagmus Network trustee, Marie Turnbull will once again be your host . We look forward to welcoming back the families and adults who came along last time and to seeing some … Continue reading Manchester meet up

Special Tai Chi sessions for the Nystagmus Network


Huge thanks go to Aly for organising some very special Tai Chi sessions to help raise money for the Nystagmus Network. Tai Chi is amazing if you have nystagmus. It can help with spacial awareness, balance, co-ordination and so much more. Even if you don’t have nystagmus yourself, please go along to this fabulous fundraiser … Continue reading Special Tai Chi sessions for the Nystagmus Network

Jeans for nystagmus Genes


Any school can take part in Jeans for Genes Day. Pupils and staff can wear their jeans to school for a day and make a donation to charity. How to get your school involved Check they haven’t held a Jeans for Genes Day in the last 3 years. Ask the headteacher or other member of … Continue reading Jeans for nystagmus Genes