Nystagmus Champions of 2022


A Nystagmus Champion is someone who goes above and beyond to raise awareness of the condition, to raise funds or generally make life better for people living with nystagmus. The Nystagmus Champions of 2022, announced at our virtual Open Day on 1 October are: Lucy Mum to Maisie and partner to Myles, we’re sure it’s … Continue reading Nystagmus Champions of 2022

Notice of the Nystagmus Network AGM


Following the announcement of a further national rail strike on Saturday 1 October, charity trustees have been obliged to take both Open Day and the AGM online. Notice is hereby amended that the Annual General Meeting (the “Meeting”) of THE NYSTAGMUS NETWORK (the “Charitable Incorporated Organisation or CIO”) will be held online on Saturday 1 October … Continue reading Notice of the Nystagmus Network AGM

Open Day 2022 – secure your ticket today!


Booking is now open for the Nystagmus Network Open Day on Saturday 1 October in Sheffield. In the historic grandeur of the Cutlers’ Hall, hear the latest thinking on nystagmus support, research and treatment, meet clinicians face to face and ask anything you like, seek one-to-one advice on education, employment or benefits, hear fabulous speakers … Continue reading Open Day 2022 – secure your ticket today!

Join us for the big lunch


As part of the long weekend 2-5 June, to celebrate the Platinum Jubilee of Her Majesty the Queen, the Nystagmus Network is inviting members of the nystagmus community to join us for our very own virtual big lunch. Let’s all get together! Whether you’re lunching at home in the garden, in your street or a … Continue reading Join us for the big lunch

#Symposium2022


Researchers, clinicians and students working in the field of nystagmus research are invited to attend this free international event, hosted by the Nystagmus Network on Friday 24 June 2022. Abstracts submissions If you would like to deliver a 15 minute presentation on your work in nystagmus, please submit an abstract. We welcome topics leading to … Continue reading #Symposium2022

Parent Power this February


Thanks to a grant from our friends at the Thomas Pocklington Trust, the Nystagmus Network is delighted to be able to offer parents and carers of children and young people with nystagmus the opportunity to attend one of a brand new series of Parent Power webinars. Each webinar, led by Karen, from IPSEA (the Independent Provider of Special … Continue reading Parent Power this February

Parent Power is back!


Thanks to a grant from our friends at the Thomas Pocklington Trust, the Nystagmus Network is delighted to be able to offer parents and carers of children and young people with nystagmus the opportunity to attend one of a brand new series of Parent Power webinars. Each webinar will introduce parents to the special educational … Continue reading Parent Power is back!

The Nystagmus Champions of 2021


Nystagmus Network Vice-chair, Peter Greenwood, was delighted to announce the ‘nystagmus champions’ of 2021 at the end of Open Day party on 25 September. Tyler UrquhartThe Urquhart family are, quite literally, tireless supporters of the Nystagmus Network.This year they walked ran or swam 200km over 30 days. Everyone took part, even the dog!We like to … Continue reading The Nystagmus Champions of 2021

Open Day digital programme – out now


All registered Open Day 2021 delegates are now receiving their copies of the digital event programme. This contains all the links to the pre-recorded presentations and the Zoom invitations to the live workshops, Q+A panels, quiz and networking event. There’s still plenty of time for you to register and take part from 10am on Saturday … Continue reading Open Day digital programme – out now