The Nystagmus Network is delighted to reveal the destination and spectacular venue for this year’s Open Day on Saturday 28 September. We shall once again be coming to Wales. Space has been reserved at the iconic Principality Stadium, Cardiff. Join us in the Millennium Lounge for this year’s inspirational talks and presentations and meet up … Continue reading Just say yes to Cardiff!
Vision impaired singer songwriter, Ben Haynes, will be headlining at the Nystagmus Network Open Day 2019 on Saturday 28 September. Meet Ben. Hear him talk about his early days as a young person with nystagmus, playing drums in the garage until his big break into music. Ben will also play a live acoustic set for … Continue reading Only Ben can make this world right
Daniel Williams is our keynote speaker at Open Day 2019. Daniel is the founder of Visualise Training and Consultancy, a company which delivers sight loss awareness to employers. Daniel, who is gradually losing his own sight due to Retinitis Pigmentosa, says: “I am passionate about disability rights and making mainstream services accessible to all, enabling … Continue reading Introducing Daniel
Author of the 2019 book ‘Can I tell you about Nystagmus?’ will be at the Nystagmus Network Open Day on Saturday 28 September. Amber, the leading character in Nadine’s book, was inspired by her daughter, who has nystagmus. At Open Day Nadine will be happy to chat with parents and share experiences of parenting a … Continue reading Meet Nadine at Open Day
Huge congratulations and thanks to everyone who turned out on a very blustery Sunday morning to walk 4 or 14 miles around the streets of London to raise money for pioneering nystagmus research at Moorfields and UCL. The final total is still being counted, but we can report that together you have so far raised … Continue reading Eye to Eye – you smashed it!
Sue represented the charity once again this year at the annual VIEW conference in Birmingham on 14 and 15 March. VIEW represents qualified teachers supporting visually children and young people in schools across the UK. Sue says: “The Nystagmus Network stand was very busy this year and I spoke to lots of newly qualified and … Continue reading Sue attends VIEW 2019
The Nystagmus Network’s Sue will be hosting an informal meet up for everyone affected by nystagmus on Wednesday 20 March at The Partially Sighted Society, Doncaster. Everyone welcome.
The Nystagmus Network’s Sue will be at a patient information day in south east London on Saturday 30 March alongside lots of VI service providers, other charities and support groups. Please come along and say hello.
There’s still time to register to join Team Nystagmus Network to walk Eye to Eye at 11am on Sunday 10th March. You can choose to walk the 4 or 14 mile route. Team Nystagmus Network sets off at 11am. Who’s on the team? Join Ella and Sam, Andy and Heidi, Andrew, Orla, Nikki and Tremaine, … Continue reading Walk with us!
Nystagmus Network Chairman and Toast Master for the evening, Richard Wilson OBE, and his fellow charity trustees, cordially invite you to the Nystagmus Network Ball. Date: Sunday, 25 AugustTime: 7pm to midnightTickets: £45 per personVenue: The Crowne Plaza Hotel, Birmingham Our wonderful volunteer organiser, Ann-Marie Ann-Marie is a longstanding member of the Nystagmus … Continue reading The Nystagmus Network Ball