At 11am on Sunday 10 March 2019 we’re planning the biggest nystagmus community get together of the year. Team Nystagmus Network will be taking part in the Eye to Eye Walk between the iconic London Eye on London’s South Bank to the equally famous and symbolic eye sign outside Moorfields Eye Hospital.
Please join us.
We’re doing this to raise much needed funding for ground breaking research into nystagmus at Moorfields and University College, London.
You can choose to take the 4 mile or the 14 mile walk. It’s up to you.
To walk with Team Nystagmus you need to set off at 11am.
Bring the family, bring the dog and help the nystagmus cause by raising lots of lovely sponsorship.
Please set up a Justgiving page for your sponsors and link it to the Nystagmus Network.
Registration is now open. It’s free for accompanied children under 16 and is just £20 for the 14 mile route and £15 for the four mile route. We suggest a minimum sponsorship of £100 for every participating adult.
Moorfields will supply:
- Route maps
- T-shirts for every participant
- Fundraising support
- Refreshments, medal, goodie bag and celebration at the end of the walk at their brand new Ect Venue, (Belvedere Road, London, SE1 7PB) next to the London Eye!
Please sign up today!
Here’s a fundraising opportunity with a difference!
You can choose to cycle a 50k or 100k route around London, Bristol, Glasgow or Liverpool AT NIGHT with Nightrider 2019.
Provided you book your own place before 31 December, the registration fee is just £75. Then, simply set up your Justgiving page linked to the Nystagmus Network as usual and every penny you raise in sponsorship after that will come directly to the charity.
Let us know when you’ve secured your place. We’re here to support you!
If you would like to take part in a family event especially for children and young people who have a visual impairment, Nystagmus Network is offering you the opportunity to join a special London theatre experience for families.
The Little Match Girl and other happier tales
For adults and brave children alike, expect music, puppetry, dark magic… and perhaps some modern truths that we would all rather remain hidden.
- Sam Wanamaker Playhouse, 21 New Globe Walk, Bankside, London SE1 9DT
- Sat 7 April, 10.00am to 3.40pm
- £10 for young people (18 and Under), £12.50 per adult
- Age 9+
These tickets are offered to family groups where one or more of the children in the family have a visual impairment, and their sighted siblings. Maximum of 6 tickets per family.
For full details and how to book, please click the link to Mousetrap Theatre Projects.
The Nystagmus Network is considering organising a theatre experience for children and young people with nystagmus and their families, in partnership with Mousetrap Theatre Projects.
The day would include a drama workshop, touch tour of the theatre (where children get to see costumes and props up close) and tickets for a London show. It would also be a great opportunity to meet up with other nystagmus families.
To find out what it might be like, please watch this video or visit Mousetrap’s website.
If you would be interested in taking part, please complete the contact form:
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