Nystagmus Network trustees and staff would like to say a huge thank you to everyone who helped make Open Day 2018 such an amazing day.
Thank you to all our members and other delegates for supporting Open Day, especially those who travelled long distances and had to get up ridiculously early on a Saturday to be with us. Thank you for your positivity, for your unfailing interest and appreciation.
Thank you to the children for taking part in the workshops, for helping their parents with the table activities and, especially, for designing a Christmas card. Much more about that later!
Thank you to our wonderful keynote speaker, Marsha De Cordova MP, who shared her personal nystagmus story and had parents gasping at her experience of being excluded from story time at nursery. Today she champions the rights of every adult and child with vision impairment.
Thank you to the inspirational David Katz, who, having rubbed shoulders with the rich and famous throughout his stellar photography career, was humbled to finally meet so many people who have nystagmus just like him.
Thank you to our researchers and clinicians who brought us right up to date with their work and, mostly, achieved this in language we could all understand!
Thank you to Jennie from Guide Dogs and Ben from RNIB for their informative presentations and for their valuable time and expertise answering delegates’ questions during the day.
Thank you to Roselle from Albinism Fellowship UK for her pop up presentation and for her offers of support to families affected by albinism.
Thank you to Wil, who inspired us all never to let nystagmus hold us back in anything we do.
Thank you to Mike, the fount of all knowledge when it comes to benefits and nystagmus, for his DLA and PIP workshops and for his patience in dealing with enquiries throughout the lunch break.
Thank you to Adventure Plus and Maayan for providing the children with such engaging workshops to take part in. We have some wonderful photographs to share!
Thank you to Wendy and Hazel from Guide Dogs and Tim from Royal National College for chatting with delegates and sharing so much invaluable information.
Thank you to James for the lovely guitar recital at lunch time.
Thank you to our exhibitors: Graham from Aspire, Dave from Dolphin, Rebecca from Humanware and Malcolm from Orcam for introducing us all to the latest technologies to support vision impairment.
Thank you to Jay, Neil and the Istead team for their professionalism in supplying the sound and music and, as always, for their total unflappability.
Thank you to Matt for the stunning photography which we will begin sharing on our website and elsewhere shortly.
THANK YOU EVERYONE! Open Day would not happen without you.