Charity highlights – Nystagmus Network

Vivien holds her MBE with family members beside her.

Vivien receives her honours

Following the announcement that Vivien Jones, Founder and Honorary President of the Nystagmus Network, had been awarded an MBE in His Majesty’s New Year Honours, Vivien and her family travelled … Continue reading Vivien receives her honours

The Nystagmus Network team wearing their charity T-shirts and jeans.

Our Jeans for Genes grant success

We are absolutely thrilled to announce we have received a grant from Jeans for Genes. This incredible support will enable us to create and distribute a vital, parent-friendly resource to … Continue reading Our Jeans for Genes grant success

Nystagmus Network shortlisted for UK Charity Governance Awards 2025

The Nystagmus Network has been shortlisted for the tenth and final Charity Governance Awards. It is in the running for the improving impact in small charities award and a first-place … Continue reading Nystagmus Network shortlisted for UK Charity Governance Awards 2025

A researcher in a white coat adds a note to a clipboard.

Funding opportunity for nystagmus research

The Nystagmus Network is delighted to announce that we have entered a research funding partnership this year with Great Ormond Street Hospital Children’s Charity (GOSH Charity) GOSH Charity National Research … Continue reading Funding opportunity for nystagmus research

Nystagmus Network awards legacy grant for groundbreaking nystagmus research

Sheffield researchers to study focusing ability in people with nystagmus through innovative new project The Nystagmus Network has awarded a Legacy Grant to Dr Gemma Arblaster and Dr Sonia Toor, … Continue reading Nystagmus Network awards legacy grant for groundbreaking nystagmus research

Please join us for 25 for ’25

In January 2025 our newest trustee, Hannah celebrated her 25th birthday. Now Hannah wants you to join her party! Let’s celebrate Hannah’s birthday with a year long party! To mark this milestone … Continue reading Please join us for 25 for ’25

The official banner for the London Marathon featuring the image of a mass run along The Mall with Buckingham Palace in the background.

The London Marathon – April 2026

The Nystagmus Network has been awarded ONE PLACE in the London Marathon 2026. The place will go to the applicant who makes the most compelling case to us. To apply … Continue reading The London Marathon – April 2026

Vivien with her guests at the Ruby Year celebration at the House of Lords in November 2024.

A New Year honour for Vivien, founder of the Nystagmus Network

We are delighted to share the wonderful news that our founder, honorary president and Nystagmus Network trustee, Vivien Jones has received the MBE “for services to the nystagmus community” in … Continue reading A New Year honour for Vivien, founder of the Nystagmus Network

Jackie, Justine and Claire in front of a window showing the London Eye by night.

Justine receives her prize at the House of Lords

Justine Chan, who is currently studying medicine at the University of Cambridge, won the Richard Wilson Essay Prize 2024. Part of her prize was to receive her £500 cheque at … Continue reading Justine receives her prize at the House of Lords

Marsha de Cordova MP sits among members of the Nystagmus Network team.

Marsha de Cordova MP appointed ambassador to the Nystagmus Network

The Nystagmus Network, a UK charity dedicated to supporting individuals and families living with nystagmus for over 40 years, is pleased to announce the appointment of Marsha de Cordova MP … Continue reading Marsha de Cordova MP appointed ambassador to the Nystagmus Network