If you missed Richard Osman presenting the Nystagmus Network charity appeal on BBC Radio 4 at 07.54 this morning you can listen again now. Listen again here Make a donation to the appeal here Huge thanks to Richard and to everyone for donating to the appeal. Your generosity will ensure that the charity can continue … Continue reading Missed the appeal? Listen again!
The Nystagmus Network is delighted to announce that it has been granted a BBC Radio 4 charity appeal. The appeal will be presented by well known TV presenter, broadcaster and author, Richard Osman on Sunday 5 July. Richard has nystagmus himself and says it is his “absolute pleasure” to be able to support the charity … Continue reading Richard Osman to voice Radio 4 appeal
Nystagmus Awareness Day – 20 June 2020 It’s national and international Nystagmus Awareness Day on Saturday 20 June 2020. We may all be staying at home this year, but we can still mark the day and raise awareness to ensure that the 1 in 1,000 adults and children living with nystagmus enjoys a greater understanding … Continue reading Nystagmus Awareness Day 20 June 20
The Nystagmus Network commissioned a YouGov survey in May 2020, ahead of Nystagmus Awareness Day on 20 June, to see how aware the UK population is of nystagmus. The survey was free of charge, thanks to a competition, run by the Small Charities Coalition of which we are a member. The headline results 82% of … Continue reading A YouGov nystagmus awareness survey
The Nystagmus Network is delighted to have been awarded just over £8,000 in National Lottery funding to underpin its work supporting adults with nystagmus. The charity will use the funding to expand our support services to meet the greater needs of the nystagmus community during the pandemic and particularly to reach those who are isolated … Continue reading The Nystagmus Network receives £8,000 from the National Lottery to increase our support services
Calling all nystagmus heroes … You, your family and friends are warmly invited to take part in The 2.6 Challenge from Sunday 26 April to help to save the UK’s charities. The Covid-19 pandemic has had a devastating effect on charities, with the cancellation of 1,000s of events and the loss of £billions in fundraising … Continue reading Join the Nystagmus Network for The 2.6 Challenge
We may all be staying at home, but we can still mark national and international Nystagmus Awareness Day. Here are just some of the ways you can get involved. How amazing are you? In the run up to Nystagmus Awareness Day 2020, we are once again asking you to share your amazing nystagmus success stories. Not only … Continue reading Nystagmus Awareness Day 2020
Sara works hard part time as Information Support Officer with the Nystagmus Network, but did you know she also works on the NHS front line? She’s even working today on her son’s birthday. Her role is with a busy doctors’ practice. Sara says: “I manage a team of 10 receptionists and support all the clinicians … Continue reading Sara on the NHS front line
Applications are now invited for a PhD Studentship to undertake clinical research to address visual impairment associated with nystagmus, focusing on quality of life or causes (including genetic), diagnostic testing / analysis or treatments. Click here for details and to apply The award is jointly funded by the Nystagmus Network and Fight for Sight.
Please sponsor Adam. He’s standing by to run the postponed London Marathon for the Nystagmus Network, as soon as restrictions are lifted.Adam is running the London Marathon this year, for his daughter, Florence and for all of us. Adam says: “I am honoured to be running the 2020 London Marathon on behalf of the Nystagmus … Continue reading Please support Adam