Nystagmus Network launches Nystagmus Youth


As part of the Nystagmus Network virtual Open day 2020 and as a new initiative to get younger people involved with the Network, the charity is creating a new online community for young people living with nystagmus.  This community begins on Instagram and is a place for young adults and teens to share their stories, … Continue reading Nystagmus Network launches Nystagmus Youth

Come along to the forum


As part of the Nystagmus Network virtual Open Day 2020 we will be hosting a series of zoom chats on Saturday 3 October. For parents There will be a virtual parents’ forum at 2pm. Share experiences, make new friends. This session will be led by Marie Travers, herself the parent of a child with nystagmus.  Please contact … Continue reading Come along to the forum

Visiting a High Street Optometrist


What happens when you’re discharged from the hospital eye clinic and need to visit an optician’s on the High Street? Can staff on the High Street really support you with your sight if you have nystagmus? Can they prescribe the right glasses or contact lenses for you? In their presentation for the Nystagmus Network virtual … Continue reading Visiting a High Street Optometrist

Sometimes we all need more marshmallows


In her presentation for the Nystagmus Network virtual Open Day 2020, Alison Blackman QTVI will talk about resilience and how to boost it. Resilience is the ability to overcome adversity, reduce stress and bounce back from setbacks. In her presentation, Alison explains how to boost resilience in young people with nystagmus. She talks about the … Continue reading Sometimes we all need more marshmallows

An interview with Joanne


Violinist, soprano, opera impresario and Nystagmus Network member, Joanne Roughton-Arnold chats with Nystagmus Network’s Sue on Saturday 3 October as part of the Nystagmus Network virtual Open Day 2020. Hear Joanne talk about her experiences of her childhood and offer inspiration to young people with nystagmus dreaming of a career in the performing arts. Register … Continue reading An interview with Joanne

Sam’s challenge of a lifetime


In June 2021 Sam will embark on the challenge of his lifetime as he cycles 500 miles in 8 days on the North Coast 500 Cycle Ride for the Nystagmus Network. But who is Sam? Find out all about Sam and his challenge at the Nystagmus Network virtual Open Day. Please register here to join … Continue reading Sam’s challenge of a lifetime

Nothing will stop us!


The theme of the Nystagmus Network virtual Open Day 2020 is the phrase ‘Nothing will stop us!” That’s because we believe that nystagmus needn’t stop you from doing (almost) anything you want to do. So today we’re launching our Open Day 2020 COMPETITION! To enter, all you have to do is show us what nystagmus … Continue reading Nothing will stop us!

Chris addresses Acquired Nystagmus and Oscillopsia


Nystagmus researcher and clinician from the Royal Eye Infirmary, Plymouth, Professor Chris Harris, will be talking about the causes, potential treatment and his further research into Acquired Nystagmus and Oscillopsia at the Nystagmus Network virtual Open Day 2020. You can hear this and all the other presentations by registering now for the Nystagmus Network virtual … Continue reading Chris addresses Acquired Nystagmus and Oscillopsia

Night in with the Nystagmus Network


Virtual Open Day 2020, on Saturday 3 October, will close with A Night in with the Nystagmus Network, a virtual supper party for members and invited VIP guests.  This is a fabulous opportunity to meet, chat and network with nystagmus experts, guest speakers and presenters, supporters and members of the Nystagmus Network whilst enjoying a relaxed … Continue reading Night in with the Nystagmus Network

Booking now for Open Day 2020


The Nystagmus Network has a huge variety of presentations lined up for you at virtual Open Day 2020 on Saturday 3 October. Enjoy inspirational presentations, research updates and find all the support and information you need, all from the comfort of wherever you are. Everyone welcome! Due to social distancing rules still in place, we … Continue reading Booking now for Open Day 2020