Training eye care practitioners


FREE interactive CET webinars with the Nystagmus Network for Optometrists and Dispensing Opticians This December the Nystagmus Network hosted a further series of three interactive training webinars for eye care practitioners. Investigating and managing nystagmus in the orthoptic clinic was delivered by Gemma Arblaster, Orthoptist at Sheffield Teaching Hospitals NHS Foundation Trust and Lecturer in … Continue reading Training eye care practitioners

Wiggly Walk 2


The amazing Mike Larcombe, nystagmus champion extraordinaire is at it again! You will remember, of course, that in 2019/2020 Mike walked the entire length of New Zealand to raise awareness and funds for nystagmus research. New to Mike’s story? Catch up on the all the highlights here This New Year sees Mike embark on another … Continue reading Wiggly Walk 2

The Nystagmus Champions of 2021


Nystagmus Network Vice-chair, Peter Greenwood, was delighted to announce the ‘nystagmus champions’ of 2021 at the end of Open Day party on 25 September. Tyler UrquhartThe Urquhart family are, quite literally, tireless supporters of the Nystagmus Network.This year they walked ran or swam 200km over 30 days. Everyone took part, even the dog!We like to … Continue reading The Nystagmus Champions of 2021

Open Day digital programme – out now


All registered Open Day 2021 delegates are now receiving their copies of the digital event programme. This contains all the links to the pre-recorded presentations and the Zoom invitations to the live workshops, Q+A panels, quiz and networking event. There’s still plenty of time for you to register and take part from 10am on Saturday … Continue reading Open Day digital programme – out now

Register now for Open Day 2021


Nystagmus Network Open Day – Saturday 25 September  We promise a packed programme of presentations, inspirational speakers, research updates, videos, workshops, forums, competitions and so much more – all available wherever you are. Plus, you’re warmly invited to join a fabulous live and interactive networking event. The theme for this year is ‘How amazing are you?‘. We’ll be celebrating … Continue reading Register now for Open Day 2021

The Nystagmus Care Pathway


Why we need a pathway Getting a diagnosis of nystagmus for a small baby is an anxious time if you’ve never heard of the condition before. It’s even harder if all the medical information seems a bit bewildering and you don’t know where else to turn for support. That’s why NUKE (the Nystagmus UK research … Continue reading The Nystagmus Care Pathway

Nystagmus Network wins £1,000 Movement for Good award


Nystagmus Network wins £1,000 Movement for Good award The Nystagmus Network has won a £1,000 Movement for Good award from Ecclesiastical Insurance Group thanks to nominations from the public. The Nystagmus Network is one of 500 winners in specialist insurer Ecclesiastical’s Movement for Good awards, which is giving £1million to charities this summer. Although at … Continue reading Nystagmus Network wins £1,000 Movement for Good award

Two new nystagmus research projects funded


Fight for Sight and Nystagmus Network are funding research into the impact of glare in infantile nystagmus and albinism in the hope of improving outcomes for people with the condition. People with nystagmus often experience glare, but until now this has not been researched thoroughly. The team at University of Leicester, led by Dr Frank … Continue reading Two new nystagmus research projects funded

Trustees publish their annual review


The Annual Report 2020 by trustees of the Nystagmus Network is now lodged with the Charity Commission and available to the public to read. 2020 was undoubtedly a most challenging year for the nystagmus community, the Nystagmus Network, people and services everywhere. Despite the challenges of Covid-19, however, Chair of Trustees, Tim Cuddeford is pleased … Continue reading Trustees publish their annual review

Thank you, Tim


Children’s author, Tim Pearce who modestly describes himself as ‘the favourite children’s author you’ve never heard of’ joined the Nystagmus Network earlier this week to lead a fun and inspiring story writing workshop for children. Tim began by sharing his journey to publishing his first book ‘Secret Agent Striker’ and then gave us a sneaky … Continue reading Thank you, Tim