Raising nystagmus awareness in 2019


The Nystagmus Network works tirelessly to raise awareness of nystagmus, not only on Nystagmus Awareness Day but throughout the year. Why raise awareness? We firmly believe that the more people who know about nystagmus and understand its effects, the better life will be for the adults and children affected by the condition. New for 2019 We’ve revised … Continue reading Raising nystagmus awareness in 2019

Who’s up for a challenge?


Push Yourself Further – 10 great events in 2019 New for 2019 – the Nystagmus Network has partnered up with Action Challenge to bring you 10 fundraising challenges. Ellie and Laura have already signed up. What’s stopping you?! Are you a regular walker and new to endurance events? Perhaps a seasoned trekker looking for testing … Continue reading Who’s up for a challenge?

Wobbly Eyes in German


The Nystagmus Network UK sends huge congratulations to Hanna and her fellow trustees for the successful launch, at the end of 2018, of the German Nystagmus Netzwerk. Our two organisations are working closely together to ensure that information and support is available for German speakers everywhere, affected by nystagmus. To this end, today we celebrate … Continue reading Wobbly Eyes in German

The Small Charities Coalition advert


97% of charities in the UK are small. The Nystagmus Network is so proud to be a small charity and part of The Small Charities Coalition. We all got together to make a Christmas advert. Together we wanted to show you how small charities keep communities going. So this Christmas, please enjoy our advert and … Continue reading The Small Charities Coalition advert

#YouMadeItHappen – Bronagh and Susan


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Bronagh and Susan – you helped make that happen! Today the whole nystagmus community says thank you to … Continue reading #YouMadeItHappen – Bronagh and Susan

#YouMadeItHappen – James and Thomas


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 James and Thomas – you helped make that happen! Today the whole nystagmus community says thank you to … Continue reading #YouMadeItHappen – James and Thomas

#YouMadeItHappen – Clare


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Clare – you helped make that happen! Today the whole nystagmus community says than you to you.

#YouMadeItHappen – Glen


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Glen and the whole abseil team – you helped make that happen! Today the whole nystagmus community says … Continue reading #YouMadeItHappen – Glen

#YouMadeItHappen – Steph


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Steph – you helped make that happen! Today the whole nystagmus community says thank you to you.

#YouMadeItHappen – Harry


365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals  75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Harry – you helped make that happen! Today the whole nystagmus community says thank you to you.