An update of our post doctoral award For those of you eagerly awaiting news, alongside charity trustees, of the outcome of 2019/2020 applications for the new post doctoral research project into nystagmus, jointly funded by the Nystagmus Network and Fight for Sight, we can now share with you the somewhat disappointing news that the project … Continue reading Nystagmus Network research investment 2020 – 2021
Can you believe that it’s THREE MONTHS TODAY since Mike set off on his crazy ‘wiggly walk’ the entire length of New Zealand to raise money for nystagmus research? And he’s still walking! In case you haven’t been following his progress that closely, he’s currently in the Auckland area and it’s all got a bit … Continue reading Looking good, Mike!
A huge thank you to all our #easyfundraising shoppers for your support. Together, you’ve helped us raise £65.40 in February simply by shopping through easyfundraising. Thank you so much! Sign up to easyfundraising here.
The Nystagmus Network has signed up to the Vision UK 2020 Year of Vision 5 priorities. Vision UK is the independent partnership organisation which works for the benefit of blind and partially sighted people, their communities and the general population, including those at risk of sight loss. They work with national and regional organisations in … Continue reading 2020 Year of Vision
What Charity asked the Nystagmus Network for tips on how a small charity can make a big impact. 1.What encouraged you to start your charity? The Nystagmus Network was founded in the early 1980s, by Vivien Jones, a young mum with a baby boy called Sam who was diagnosed with nystagmus when he was 3 … Continue reading Does size really matter? Making it as a small charity.
We are delighted to announce that Professor Alison Leary MBE has joined the Nystagmus Network as a trustee. After spending 10 years in science Prof. Leary undertook an RN diploma at The Nightingale School at St Thomas Hospital (now Kings College London). She attained a Masters in Biomedical Science (Haematology) and worked in acute Haematology … Continue reading Alison joins the Nystagmus Network
The Nystagmus Network has appointed Daniel Williams, sight loss campaigner and founder of Visualise Training and Consultancy, to its committee of Trustees. Chair of the charity’s trustees, Tim Cuddeford said: “We are delighted to welcome Daniel to the committee as he brings a comprehensive overview of the sight loss and optical sectors and first-hand knowledge … Continue reading Daniel joins the Nystagmus Network
This festive season the Nystagmus Network is celebrating the children and adults with nystagmus who fill the lives of their families and friends with twinkling light, love and laughter. We’re asking you to tell us about your nystagmus stars – the adults and children who fill your life with light and make you proud of … Continue reading Our #NystagmusStars
On Saturday 28 September the Nystagmus Network bid a very fond farewell to its Chairman of 8 years, Richard Wilson OBE Richard joined the charity as a trustee in 2008 and rose to Chairman in June 2011. At the Annual General Meeting Nystagmus Network Founder and Honorary President, Vivien Jones gave a heartfelt speech in … Continue reading Farewell Richard and thank you
Over 200 people gathered together on Saturday 28 September at the spectacular Principality Stadium, Cardiff for the Nystagmus Network Open Day 2019. To the strains of Sospan Fach, by Cerys Matthews, Chairman of the Nystagmus Network, Richard Wilson OBE took to the stage to welcome everyone. Up next, Nystagmus Network Founder and Honorary President, Vivien … Continue reading Open Day 2019 – the highlights