Nystagmus Network Chairman, Tim Cuddeford has sent a Christmas message to members of the Nystagmus Network. Tim spoke of the challenges that 2020 has brought for everyone, not least the nystagmus community, but also highlighted the successes the charity has been able to achieve, thanks to the support of our intrepid fundraisers and donors and … Continue reading A Christmas message from Tim
Category: Charity highlights
Thank you for donating to our BBC Radio 4 appeal
Thank you to everyone who gave to our BBC Radio 4 charity appeal in June this year. The appeal raised £9, 230. You can read what a difference the appeal has made to the charity and the nystagmus community on the BBC website here where you can also listen again to Richard Osman presenting the … Continue reading Thank you for donating to our BBC Radio 4 appeal
Thank you, Zoe
It’s fitting that our final nystagmus hero of 2020 is someone who has been working tirelessly all year looking after some of our most vulnerable people. Zoe is a care supervisor and head house keeper in a care home, working over 40 hours a week. She was born with nystagmus and optic atrophy. She struggles … Continue reading Thank you, Zoe
Thank you, Mike
What can we say about Mike that hasn’t been said already? He endured so much for the nystagmus cause this year – including very wet feet, a constantly rumbling tummy and often only the company of chickens! But Mike still walked 3000 miles to raise £2,500 for the Nystagmus Network. A-m-a-z-i-n-g! And after all that … Continue reading Thank you, Mike
Sold out!
Thank you to everyone who has ordered a woolly nystagmus mascot this year. We are now officially sold out. Together you have raised £360 and given new homes to 72 mascots. THANK YOU! Huge thanks, too, to our volunteers, Lynda and Sue, for all the knitting.
Digital Nystagmus Network Christmas cards
Bring a little joy to far away friends and family this festive season with a Nystagmus Network digital Christmas card. 6 designs to choose from. Digital Christmas cards here
Thank you, Ahrian
In 2020 Ahrian offered the Nystagmus Network her services as a volunteer. So far she has designed the logo for the @NystagmusYouth Instagram account and the new T-shirt for our 19-21 challenge. Ahrian has nystagmus herself and wanted to give back something to the nystagmus community. She says: “I was born with nystagmus and grew … Continue reading Thank you, Ahrian
#GiveBack2020
We’ve all had to give up so much this year and we’ll all be pleased to make it to the end of 2020. But before we do, the Nystagmus Network is celebrating 12 people who’ve given back so much to the nystagmus community in 2020. We’ll be telling their 12 stories in the run up … Continue reading #GiveBack2020
Gene Vision launches
Gene Vision launched to support those diagnosed with genetic eye diseases London, 01 December 2020 A new website, Gene Vision, has launched today, developed by Professor Mariya Moosajee and Dr Alex Yeong, supported by Dr Peter Thomas (Director of Digital Innovation at Moorfields Eye Hospital). The new site is intended for adults, children and their … Continue reading Gene Vision launches
Thank you to National Lottery players
Thanks to the generosity of National Lottery players, the Nystagmus Network is in receipt of a further grant to support the work of the charity. This welcome additional funding is enabling us to continue delivering support and information services to the nystagmus community, albeit virtually. Charity staff are busier than ever answering enquiries by phone, … Continue reading Thank you to National Lottery players