Nerves of steel!


Four of our six remaining Nystagmus Network abseilers will finally (fingers crossed!) make their leap for nystagmus research this Sunday, 21 October, from the viewing platform at the top of the ArcelorMittal Orbit at the Queen Elizabeth Olympic Park. Vicky, Tom, Vanessa and Richard B managed to complete their abseil last month. For the remaining … Continue reading Nerves of steel!

Walk Eye to Eye for nystagmus research


Supporters of the Nystagmus Network and anyone keen to raise money for nystagmus research at Moorfields Eye Hospital and University College, London can now sign up to walk Eye to Eye in March 2019. The Eye to Eye walk takes a route (you can choose either 4 or 14 miles) from the London Eye on … Continue reading Walk Eye to Eye for nystagmus research

UK Nystagmus Research Meeting takes place


Researchers and clinicians representing nystagmus centres of excellence from Cardiff, London, Plymouth, Sheffield and Southampton gathered in Birmingham on Friday 28 September as guests of the Nystagmus Network ahead of the charity’s annual Open Day to plan the way ahead for collaborative nystagmus research. Jon Erichsen and Matt Dunn from Cardiff University, Maria Theodorou from … Continue reading UK Nystagmus Research Meeting takes place

Design our Christmas card


At Open Day we announced our competition for children to design the Nystagmus Network 2018 Christmas card. Cards will be available to purchase from early November and will help us raise much needed funding for the charity. Ben and Charlotte, Lilly, Jack and Rowan are our current front runners, but there’s still time for you … Continue reading Design our Christmas card

Education Resource HUB – launch


At Open Day 2018 the Nystagmus Network’s volunteer Education Advocate, Frances Lilley, officially launched the charity’s Education Resource HUB. The HUB is the result of years of research and experience and brings together in one place the resources parents and carers need to navigate their way through mainstream education support for a child with nystagmus, … Continue reading Education Resource HUB – launch

Thank you! You were amazing!


Nystagmus Network trustees and staff would like to say a huge thank you to everyone who helped make Open Day 2018 such an amazing day. Thank you to all our members and other delegates for supporting Open Day, especially those who travelled long distances and had to get up ridiculously early on a Saturday to … Continue reading Thank you! You were amazing!

Research funding will use iPads to identify the best method to manage nystagmus


Fight for Sight and The Nystagmus Network have announced funding for three exciting nystagmus research projects at the Nystagmus Network Conference, which is taking place today during National Eye Health Week 2018. In total £30,000 in funding will be used for projects bringing benefits to children and adults living with the condition, which is characterised … Continue reading Research funding will use iPads to identify the best method to manage nystagmus

UK Nystagmus Research Meeting 2018


Researchers and clinicians from Cardiff, London, Plymouth, Sheffield and Southampton are meeting today to plan the way ahead for nystagmus research. Our medical experts are joined by charity trustees and our funding partners, Fight for Sight. The half day conference, hosted by the Nystagmus Network, takes place in Birmingham today ahead of the charity’s Open … Continue reading UK Nystagmus Research Meeting 2018

A research focus for Open Day


This year’s Open Day has a huge emphasis on nystagmus research. Throughout the day delegates will be able to visit our Research Hub and speak with researchers and clinicians from Moorfields, London, the School of Optometry and Vision Sciences at Cardiff University, the School of Ophthalmology and Orthoptics at the University of Sheffield and the … Continue reading A research focus for Open Day

Yorkshire 3 Peaks – completed!


Steph and her team completed the Yorkshire 3 Peaks Challenge on Saturday in 11 hours 45 minutes. Well done, team! They were doing this in honour of Steph’s young son, Henry, who has nystagmus and they’ve so far raised over £1,000 for the Nystagmus Network! Thank you from everyone at the charity. You can still … Continue reading Yorkshire 3 Peaks – completed!