The Nystagmus Network has been shortlisted for the tenth and final Charity Governance Awards. It is in the running for the improving impact in small charities award and a first-place … Continue reading Nystagmus Network shortlisted for UK Charity Governance Awards 2025
The Nystagmus Network is delighted to announce that we have entered a research funding partnership this year with Great Ormond Street Hospital Children’s Charity (GOSH Charity) GOSH Charity National Research … Continue reading Funding opportunity for nystagmus research
Sheffield researchers to study focusing ability in people with nystagmus through innovative new project The Nystagmus Network has awarded a Legacy Grant to Dr Gemma Arblaster and Dr Sonia Toor, … Continue reading Nystagmus Network awards legacy grant for groundbreaking nystagmus research
In January 2025 our newest trustee, Hannah celebrated her 25th birthday. Now Hannah wants you to join her party! Let’s celebrate Hannah’s birthday with a year long party! To mark this milestone … Continue reading Please join us for 25 for ’25
The Nystagmus Network has been awarded ONE PLACE in the London Marathon 2026. The place will go to the applicant who makes the most compelling case to us. To apply … Continue reading The London Marathon – April 2026
We are delighted to share the wonderful news that our founder, honorary president and Nystagmus Network trustee, Vivien Jones has received the MBE “for services to the nystagmus community” in … Continue reading A New Year honour for Vivien, founder of the Nystagmus Network
Justine Chan, who is currently studying medicine at the University of Cambridge, won the Richard Wilson Essay Prize 2024. Part of her prize was to receive her £500 cheque at … Continue reading Justine receives her prize at the House of Lords
The Nystagmus Network, a UK charity dedicated to supporting individuals and families living with nystagmus for over 40 years, is pleased to announce the appointment of Marsha de Cordova MP … Continue reading Marsha de Cordova MP appointed ambassador to the Nystagmus Network
Forty years ago this month a young mother sat at her kitchen table with a notepad and pen as her infant son slept. She’d just received the devastating news that … Continue reading A Ruby Celebration at the House of Lords
The Nystagmus Network was once again proud to host the International Nystagmus Symposium online on Friday 25 October 2024. The schedule included presentations from seven eminent speakers including actor and … Continue reading International Nystagmus Symposium 2024
