Nystagmus Network research investment 2020 – 2021


An update of our post doctoral award For those of you eagerly awaiting news, alongside charity trustees, of the outcome of 2019/2020 applications for the new post doctoral research project into nystagmus, jointly funded by the Nystagmus Network and Fight for Sight, we can now share with you the somewhat disappointing news that the project … Continue reading Nystagmus Network research investment 2020 – 2021

2020 Year of Vision


The Nystagmus Network has signed up to the Vision UK 2020 Year of Vision 5 priorities. Vision UK is the independent partnership organisation which works for the benefit of blind and partially sighted people, their communities and the general population, including those at risk of sight loss. They work with national and regional organisations in … Continue reading 2020 Year of Vision

Does size really matter? Making it as a small charity.


What Charity asked the Nystagmus Network for tips on how a small charity can make a big impact. 1.What encouraged you to start your charity?  The Nystagmus Network was founded in the early 1980s, by Vivien Jones, a young mum with a baby boy called Sam who was diagnosed with nystagmus when he was 3 … Continue reading Does size really matter? Making it as a small charity.

Alison joins the Nystagmus Network


We are delighted to announce that Professor Alison Leary MBE has joined the Nystagmus Network as a trustee. After spending 10 years in science Prof. Leary undertook an RN diploma at The Nightingale School at St Thomas Hospital (now Kings College London). She attained a Masters in Biomedical Science (Haematology) and worked in acute Haematology … Continue reading Alison joins the Nystagmus Network

Daniel joins the Nystagmus Network


The Nystagmus Network has appointed Daniel Williams, sight loss campaigner and founder of Visualise Training and Consultancy, to its committee of Trustees. Chair of the charity’s trustees, Tim Cuddeford said: “We are delighted to welcome Daniel to the committee as he brings a comprehensive overview of the sight loss and optical sectors and first-hand knowledge … Continue reading Daniel joins the Nystagmus Network

Our #NystagmusStars


This festive season the Nystagmus Network is celebrating the children and adults with nystagmus who fill the lives of their families and friends with twinkling light, love and laughter. We’re asking you to tell us about your nystagmus stars – the adults and children who fill your life with light and make you proud of … Continue reading Our #NystagmusStars

Open Day 2019 – the highlights


Over 200 people gathered together on Saturday 28 September at the spectacular Principality Stadium, Cardiff for the Nystagmus Network Open Day 2019. To the strains of Sospan Fach, by Cerys Matthews, Chairman of the Nystagmus Network, Richard Wilson OBE took to the stage to welcome everyone. Up next, Nystagmus Network Founder and Honorary President, Vivien … Continue reading Open Day 2019 – the highlights