The Nystagmus Network is delighted to share news of the launch today of a brand new book about nystagmus. Written by Nadine Neckles, the book looks at nystagmus from a child’s point of view and provides insights for parents and professionals alike. Nadine is a friend of the Nystagmus Network and previously contributed an article … Continue reading Can I tell you about nystagmus?
Category: Charity highlights
Fundraising? It’s a Colson family affair
The Colson family are serious about fundraising for nystagmus research. Sisters Laura and Ellie are taking part in the Peak District Ultra Challenge this summer, their first ever ultra marathon, whilst their brother, Ryan, CEO of the family firm, Colson Skips, is getting his entire workforce right behind them. If you’d like to sponsor Laura … Continue reading Fundraising? It’s a Colson family affair
The Nystagmus Network Ball
Nystagmus Network Chairman and Toast Master for the evening, Richard Wilson OBE, and his fellow charity trustees, cordially invite you to the Nystagmus Network Ball. Date: Sunday, 25 AugustTime: 7pm to midnightTickets: £45 per personVenue: The Crowne Plaza Hotel, Birmingham Our wonderful volunteer organiser, Ann-Marie Ann-Marie is a longstanding member of the Nystagmus … Continue reading The Nystagmus Network Ball
Raising nystagmus awareness in 2019
The Nystagmus Network works tirelessly to raise awareness of nystagmus, not only on Nystagmus Awareness Day but throughout the year. Why raise awareness? We firmly believe that the more people who know about nystagmus and understand its effects, the better life will be for the adults and children affected by the condition. New for 2019 We’ve revised … Continue reading Raising nystagmus awareness in 2019
Who’s up for a challenge?
Push Yourself Further – 10 great events in 2019 New for 2019 – the Nystagmus Network has partnered up with Action Challenge to bring you 10 fundraising challenges. Ellie and Laura have already signed up. What’s stopping you?! Are you a regular walker and new to endurance events? Perhaps a seasoned trekker looking for testing … Continue reading Who’s up for a challenge?
Wobbly Eyes in German
The Nystagmus Network UK sends huge congratulations to Hanna and her fellow trustees for the successful launch, at the end of 2018, of the German Nystagmus Netzwerk. Our two organisations are working closely together to ensure that information and support is available for German speakers everywhere, affected by nystagmus. To this end, today we celebrate … Continue reading Wobbly Eyes in German
The Small Charities Coalition advert
97% of charities in the UK are small. The Nystagmus Network is so proud to be a small charity and part of The Small Charities Coalition. We all got together to make a Christmas advert. Together we wanted to show you how small charities keep communities going. So this Christmas, please enjoy our advert and … Continue reading The Small Charities Coalition advert
#YouMadeItHappen – Bronagh and Susan
365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals 75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Bronagh and Susan – you helped make that happen! Today the whole nystagmus community says thank you to … Continue reading #YouMadeItHappen – Bronagh and Susan
#YouMadeItHappen – James and Thomas
365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals 75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 James and Thomas – you helped make that happen! Today the whole nystagmus community says thank you to … Continue reading #YouMadeItHappen – James and Thomas
#YouMadeItHappen – Clare
365 general enquiries answered information and support line available 24/7 5,000 nystagmus leaflets in clinics and hospitals 75 families calling on our education advocacy service 3 research projects funded, with a further £30,000 for research in 2019 Clare – you helped make that happen! Today the whole nystagmus community says than you to you.