In January 2025 our newest trustee, Hannah celebrated her 25th birthday. Now Hannah wants you to join her party! Let’s celebrate Hannah’s birthday with a year long party! To mark this milestone … Continue reading Please join us for 25 for ’25
Category: Charity highlights

The London Marathon – April 2026
The Nystagmus Network has been awarded ONE PLACE in the London Marathon 2026. The place will go to the applicant who makes the most compelling case to us. To apply … Continue reading The London Marathon – April 2026

A New Year honour for Vivien, founder of the Nystagmus Network
We are delighted to share the wonderful news that our founder, honorary president and Nystagmus Network trustee, Vivien Jones has received the MBE “for services to the nystagmus community” in … Continue reading A New Year honour for Vivien, founder of the Nystagmus Network

Justine receives her prize at the House of Lords
Justine Chan, who is currently studying medicine at the University of Cambridge, won the Richard Wilson Essay Prize 2024. Part of her prize was to receive her £500 cheque at … Continue reading Justine receives her prize at the House of Lords

Marsha de Cordova MP appointed ambassador to the Nystagmus Network
The Nystagmus Network, a UK charity dedicated to supporting individuals and families living with nystagmus for over 40 years, is pleased to announce the appointment of Marsha de Cordova MP … Continue reading Marsha de Cordova MP appointed ambassador to the Nystagmus Network

A Ruby Celebration at the House of Lords
Forty years ago this month a young mother sat at her kitchen table with a notepad and pen as her infant son slept. She’d just received the devastating news that … Continue reading A Ruby Celebration at the House of Lords

International Nystagmus Symposium 2024
The Nystagmus Network was once again proud to host the International Nystagmus Symposium online on Friday 25 October 2024. The schedule included presentations from seven eminent speakers including actor and … Continue reading International Nystagmus Symposium 2024

Nystagmus Network Christmas cards now available to order
Designed by children who have nystagmus and their siblings, these lovely cards are created for us by our kind friends at Salt Projects Ltd. 50p from the sale of each … Continue reading Nystagmus Network Christmas cards now available to order

Christmas card design competition
Children’s Christmas Card Design Competition 2024 with SALT Projects Ltd This competition is open to all children living in the UK with a visual impairment and their siblings. Do you … Continue reading Christmas card design competition

Another chance to hear our appeal
If you missed our BBC Radio 4 charity appeal broadcast on Sunday, there’s another chance to hear actor, singer, musician and children’s author, Gerard McDermott, who also happens to have … Continue reading Another chance to hear our appeal