A young child is testing the eyes of an eye doctor using a clinical instrument.

Our vision is a world which welcomes people living with nystagmus, affords them
comprehensive support and the opportunity to reach their full potential.

Our mission is to champion the cause of the community we support, to raise awareness of nystagmus, its impact and the interventions needed.

We seek to change attitudes, break down barriers, build relationships and drive research.

 

Nystagmus and the Nystagmus Network

Nystagmus is a complex eye condition, characterised by wobbling or flickering of the eyes.

A woman kneels on the ground to embrace a child.

Support

We run an information and support line, host regular online and in person events, answer enquiries by email and on social media and provide information guides.

 

Gerard and Sue hold up a Nystagmus Network banner outside Broadcasting House in London.

Awareness

We celebrate Nystagmus Awareness Day on 20 June, deliver training for schools, employers and clinics and post about nystagmus on social media every day.

 

A young child is testing the eyes of an adult.

Research

We host workshops and an annual international Symposium, represent the patient voice as part of NUKE, fund research projects and recruit study participants.

 

We provide support and information, raise awareness and fund research.

Call 01427 718093 

Email [email protected]

A woman undergoing a sight test.

We provide support and information, raise awareness and fund research.

Call 01427 718093 

Email [email protected]

Events

The Nystagmus Network hosts regular in person and online events, workshops, training, competitions and more. Everyone welcome! Please see What’s on.

Membership

The Nystagmus Network is a membership organisation. This means we can truly represent your voice. Please join us as a member today.