What happens when your health problem just doesn’t seem to tick the boxes?
In her new book, What seems to be the trouble? writer, researcher and practising body psychotherapist, Claire Entwistle describes her one woman quest for a treatment – any treatment – that would help her neurological condition and her nystagmus.
Some people have every reason to be grateful to conventional medicine. It has saved their life, or at least made their life bearable.
Others, with hard to treat conditions that are not easy to classify (perhaps not even easy to spell) have a more complicated relationship with the tests and treatments offered by their doctors and may resort to alternatives, which pose problems of their own.
This unflinching, thoughtful, often witty account of one woman’s experience will be of value to anybody living with a hidden or little understood disability and to those who care for or work with them.
Meet Claire at the Nystagmus Network virtual Open Day on Saturday 3 October or order a copy of her book from the Nystagmus Network online shop.