Nystagmus doesn’t stop me …


The theme of the Nystagmus Network virtual Open Day 2020 is the phrase ‘Nothing will stop us!” That’s because we believe that nystagmus needn’t stop you from doing (almost) anything you want to do. So this month we’re running our Open Day 2020 COMPETITION! To enter, all you have to do is show us what nystagmus doesn’t stop you from … Continue reading Nystagmus doesn’t stop me …

SEND within a COVID-19 pandemic


In his presentation for the Nystagmus Network virtual Open Day 2020, Kevin McManamon, Senior Associate, Educational Team, Geldards LLP sets out the current position of SEND support in schools in England and Wales. To view Kevin’s and all the other presentations, please register here

Come along to the forum


As part of the Nystagmus Network virtual Open Day 2020 we will be hosting a series of zoom chats on Saturday 3 October. For parents There will be a virtual parents’ forum at 2pm. Share experiences, make new friends. This session will be led by Marie Travers, herself the parent of a child with nystagmus.  Please contact … Continue reading Come along to the forum

Visiting a High Street Optometrist


What happens when you’re discharged from the hospital eye clinic and need to visit an optician’s on the High Street? Can staff on the High Street really support you with your sight if you have nystagmus? Can they prescribe the right glasses or contact lenses for you? In their presentation for the Nystagmus Network virtual … Continue reading Visiting a High Street Optometrist

Sometimes we all need more marshmallows


In her presentation for the Nystagmus Network virtual Open Day 2020, Alison Blackman QTVI will talk about resilience and how to boost it. Resilience is the ability to overcome adversity, reduce stress and bounce back from setbacks. In her presentation, Alison explains how to boost resilience in young people with nystagmus. She talks about the … Continue reading Sometimes we all need more marshmallows

An interview with Joanne


Violinist, soprano, opera impresario and Nystagmus Network member, Joanne Roughton-Arnold chats with Nystagmus Network’s Sue on Saturday 3 October as part of the Nystagmus Network virtual Open Day 2020. Hear Joanne talk about her experiences of her childhood and offer inspiration to young people with nystagmus dreaming of a career in the performing arts. Register … Continue reading An interview with Joanne

Sam’s challenge of a lifetime


In June 2021 Sam will embark on the challenge of his lifetime as he cycles 500 miles in 8 days on the North Coast 500 Cycle Ride for the Nystagmus Network. But who is Sam? Find out all about Sam and his challenge at the Nystagmus Network virtual Open Day. Please register here to join … Continue reading Sam’s challenge of a lifetime

Nothing will stop us!


The theme of the Nystagmus Network virtual Open Day 2020 is the phrase ‘Nothing will stop us!” That’s because we believe that nystagmus needn’t stop you from doing (almost) anything you want to do. So today we’re launching our Open Day 2020 COMPETITION! To enter, all you have to do is show us what nystagmus … Continue reading Nothing will stop us!

Chris addresses Acquired Nystagmus and Oscillopsia


Nystagmus researcher and clinician from the Royal Eye Infirmary, Plymouth, Professor Chris Harris, will be talking about the causes, potential treatment and his further research into Acquired Nystagmus and Oscillopsia at the Nystagmus Network virtual Open Day 2020. You can hear this and all the other presentations by registering now for the Nystagmus Network virtual … Continue reading Chris addresses Acquired Nystagmus and Oscillopsia

Can I tell you about nystagmus?


Can I tell you about Nystagmus? is a guide for friends, family and professionals by Nadine Neckles (illustrated By Vikas Upadhyay). Sue from the Nystagmus Network talks about Nadine’s book here. In this friendly guide, a girl called Amber explains all about her ‘dancing eyes,’ or nystagmus. Amber explains how children with nystagmus might need … Continue reading Can I tell you about nystagmus?