Category: Open Day 2020

Mike wears his Nystagmus Network T short and smiles for the camera

Thank you, Mike

What can we say about Mike that hasn’t been said already? He endured so much for the nystagmus cause this year – including very wet feet, a constantly rumbling tummy and often only the company of chickens!

But Mike still walked 3000 miles to raise £2,500 for the Nystagmus Network. A-m-a-z-i-n-g!

And after all that he even dropped in to our Night in with the Nystagmus Network to entertain us all. Thank you, Mike.

This year has been a difficult year for us all, but Giving makes us feel Good! #GiveBack2020 is your chance to take something positive from 2020 and make a difference at the same time!

Please volunteer, fundraise or make a donation to the Nystagmus Network for #GiveBack2020  

Fundraise for the Nystagmus Network here

Contact us here to volunteer

Please make a donation here

THANK YOU

A postcard to advertise virtual Open Day on 3 October, showing a selection of images of the highlights to come.

Nystagmus doesn’t stop me …

The theme of the Nystagmus Network virtual Open Day 2020 is the phrase ‘Nothing will stop us!”

That’s because we believe that nystagmus needn’t stop you from doing (almost) anything you want to do.

So this month we’re running our Open Day 2020 COMPETITION!

To enter, all you have to do is show us what nystagmus doesn’t stop you from doing. Your competition entry can take any form you like. It can be

a poem

a short story

a photograph

a drawing

a voice recording

a video clip

Send your entry with your name, age (if under 16) and the message “Nystagmus doesn’t stop me …” to [email protected] by no later than Saturday 31 October. The best entries will feature on our website and on our social media.

A screenshot from the website of Geldards LLP and the words SEND with a COVID-19 pandemic

SEND within a COVID-19 pandemic

In his presentation for the Nystagmus Network virtual Open Day 2020, Kevin McManamon, Senior Associate, Educational Team, Geldards LLP sets out the current position of SEND support in schools in England and Wales.

To view Kevin’s and all the other presentations, please register here

A group of parents and Nystagmus Network volunteers.

Come along to the forum

As part of the Nystagmus Network virtual Open Day 2020 we will be hosting a series of zoom chats on Saturday 3 October.

For parents

There will be a virtual parents’ forum at 2pm. Share experiences, make new friends. This session will be led by Marie Travers, herself the parent of a child with nystagmus. 

Please contact us to join. 

For adults with congenital nystagmus

There will be a virtual adults’ forum for people living with congenital nystagmus at 3pm. Meet others, make new friends, share experiences. This session will be led by Daniel Williams, an expert in accessible employment who himself lives with sight loss.

Please contact us to join. 

For adults with acquired nystagmus

Professor Chris Harris from the Royal Eye Infirmary, Plymouth will be answering your questions on Acquired Nystagmus and Oscillopsia at the virtual adults’ forum for people living with acquired nystagmus at 4pm. 

Please contact us to join. 

a screen sot of the presentation by Jayshree and Sarah.

Visiting a High Street Optometrist

What happens when you’re discharged from the hospital eye clinic and need to visit an optician’s on the High Street?

Can staff on the High Street really support you with your sight if you have nystagmus? Can they prescribe the right glasses or contact lenses for you?

In their presentation for the Nystagmus Network virtual Open Day 2020, Optometrist, Sarah Arnold and Dispensing Optician, Jayshree Vasani answer these and many more of your questions about the services available at your local optician’s.

Register here to view all Open Day presentations

A cartoon image of a man made of marshmallow

Sometimes we all need more marshmallows

In her presentation for the Nystagmus Network virtual Open Day 2020, Alison Blackman QTVI will talk about resilience and how to boost it.

Resilience is the ability to overcome adversity, reduce stress and bounce back from setbacks. In her presentation, Alison explains how to boost resilience in young people with nystagmus.

She talks about the need we all feel from time to time to have an extra layer of padding around us to keep us feeling confident and protected.

Find out how you can help a young person with nystagmus feel more like marshmallow man.

Register to see all Open Day presentations here

Joanne smiles at the camera. There is an open piano in the room behind her.

An interview with Joanne

Violinist, soprano, opera impresario and Nystagmus Network member, Joanne Roughton-Arnold chats with Nystagmus Network’s Sue on Saturday 3 October as part of the Nystagmus Network virtual Open Day 2020.

Hear Joanne talk about her experiences of her childhood and offer inspiration to young people with nystagmus dreaming of a career in the performing arts.

Register for all Open Day presentations here

Sam's bike is leaning against railings in a mountainous landscape.

Sam’s challenge of a lifetime

In June 2021 Sam will embark on the challenge of his lifetime as he cycles 500 miles in 8 days on the North Coast 500 Cycle Ride for the Nystagmus Network.

But who is Sam?

Find out all about Sam and his challenge at the Nystagmus Network virtual Open Day.

Please register here to join us for all the presentations

A postcard to advertise virtual Open Day on 3 October, showing a selection of images of the highlights to come.

Nothing will stop us!

The theme of the Nystagmus Network virtual Open Day 2020 is the phrase ‘Nothing will stop us!”

That’s because we believe that nystagmus needn’t stop you from doing (almost) anything you want to do.

So today we’re launching our Open Day 2020 COMPETITION!

To enter, all you have to do is show us what nystagmus doesn’t stop you from doing. Your competition entry can take any form you like. It can be

a poem

a short story

a photograph

a drawing

a voice recording

a video clip

Send your entry with your name, age (if under 16) and the message “Nystagmus doesn’t stop me …” to [email protected] by no later than Saturday 31 October. The best entries will feature on our website and on our social media.

Enter the competition here

Chris Harris sits behind a microphone and prepares to speak.

Chris addresses Acquired Nystagmus and Oscillopsia

Nystagmus researcher and clinician from the Royal Eye Infirmary, Plymouth, Professor Chris Harris, will be talking about the causes, potential treatment and his further research into Acquired Nystagmus and Oscillopsia at the Nystagmus Network virtual Open Day 2020.

You can hear this and all the other presentations by registering now for the Nystagmus Network virtual Open Day 2020.

Please register here to receive the programme