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Supporting people living with nystagmus

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Category: Living with nystagmus

Ryan is a #NystagmusStar


Following a difficult birth, Ryan has nystagmus and is severely partially sighted. According to his Mum, he’s the funniest, most sensitive little man ever and whoever meets Ryan falls instantly … Continue reading Ryan is a #NystagmusStar

Posted on December 20, 2019December 20, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Harley is a #NystagmusStar


Harley may have nystagmus, but her inner strength and courage mean she can achieve anything. To nominate your #NystagmusStar or to make a donation to help the Nystagmus Network support … Continue reading Harley is a #NystagmusStar

Posted on December 18, 2019December 18, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Tommy is a #NystagmusStar


No matter how difficult life gets for Tommy, he’s always happy. He has nystagmus and another medical condition, but he never lets life get him down. To nominate your #NystagmusStar … Continue reading Tommy is a #NystagmusStar

Posted on December 18, 2019December 18, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Sarah is a #NystagmusStar


Sarah is an accomplished sports woman, mother and soon to be driver! She has never let nystagmus prevent her from trying anything she has wanted to do. Sarah is nominated … Continue reading Sarah is a #NystagmusStar

Posted on December 15, 2019December 15, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Oscar is a #NystagmusStar


Oscar sometimes finds it hard to understand why his nystagmus makes it so hard for him to do things, but he’s completely undaunted. He’s a keen fundraiser and always ready … Continue reading Oscar is a #NystagmusStar

Posted on December 14, 2019December 14, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Lyla is a #NystagmusStar


Nystagmus hasn’t stopped Lyla doing anything! She has just learnt to walk and loves saying Hiya! Her Mum says: “She’s the most fearless child who never gives up and I … Continue reading Lyla is a #NystagmusStar

Posted on December 14, 2019December 14, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Would your child like a German pen friend?


Thanks to our partnership with the German Nystagmus Network, we can now offer children and young people, who have nystagmus, living in the UK, the chance to make friends with … Continue reading Would your child like a German pen friend?

Posted on December 12, 2019December 12, 2019Author Sue RickettsCategories Living with nystagmusTags German Nystagmus Netzwerk, pen friends

Taylan is a #NystagmusStar


“Taylan is amazing”, says his Mum. “He struggles with his balance and sight but every day he tries his hardest at school and at home. He is kind and friendly … Continue reading Taylan is a #NystagmusStar

Posted on December 12, 2019December 12, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Serena is a #NystagmusStar


Serena is a remarkable young person. She had a few medical problems early on in life and has very reduced vision, but her positive outlook means she gets on with … Continue reading Serena is a #NystagmusStar

Posted on December 11, 2019December 11, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Rory is a #NystagmusStar


Rory is nominated by his Mum. She says: “Rory’s nystagmus was diagnosed only 6 months ago, so we both still have a lot to learn! We may have further obstacles … Continue reading Rory is a #NystagmusStar

Posted on December 11, 2019December 11, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

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