Rory is nominated by his Mum. She says: “Rory’s nystagmus was diagnosed only 6 months ago, so we both still have a lot to learn! We may have further obstacles … Continue reading Rory is a #NystagmusStar
Category: Living with nystagmus
Lexi is a #NystagmusStar
Sometimes Lexi gets upset and wishes she could see better, but she carries on. Her mum says: “Lexi is my star. I’m so proud of her. She makes me want … Continue reading Lexi is a #NystagmusStar
Joshua is a #NystagmusStar
Joshua embraces every opportunity and does not let nystagmus stand in his way. If he had the choice to wake up without nystagmus he wouldn’t choose to do so. He … Continue reading Joshua is a #NystagmusStar
Nystagmus and sleep
Parents often report that their children experience problems sleeping and wonder whether there is any connection with nystagmus. Now a team at University College, London is conducting a research study … Continue reading Nystagmus and sleep
#YouMadeItHappen – Delilah
This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Delilah and her family offered the perfect story … Continue reading #YouMadeItHappen – Delilah
#YouMadeItHappen – Roger
This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Roger inspired us to write a brand new … Continue reading #YouMadeItHappen – Roger
#YouMadeItHappen – Nadine
This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Nadine decided she didn’t want her little daughter … Continue reading #YouMadeItHappen – Nadine
#YouMadeItHappen – Mike
This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Mike is a professional benefits expert who also … Continue reading #YouMadeItHappen – Mike
#YouMadeItHappen – Patsy
This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Patsy is one of our newest volunteers. It’s … Continue reading #YouMadeItHappen – Patsy
Can I tell you about Nystagmus?
Nadine Neckles wrote the book ‘Can I tell you about Nystagmus?’ so that her young daughter, who has nystagmus, could live in a world more nystagmus aware. ‘Can I tell … Continue reading Can I tell you about Nystagmus?