Living with nystagmus – Page 15

Lexi is a #NystagmusStar

Sometimes Lexi gets upset and wishes she could see better, but she carries on. Her mum says: “Lexi is my star. I’m so proud of her. She makes me want … Continue reading Lexi is a #NystagmusStar

Joshua embraces every opportunity and does not let nystagmus stand in his way. If he had the choice to wake up without nystagmus he wouldn’t choose to do so. He … Continue reading Joshua is a #NystagmusStar

Nystagmus and sleep

Parents often report that their children experience problems sleeping and wonder whether there is any connection with nystagmus. Now a team at University College, London is conducting a research study … Continue reading Nystagmus and sleep

#YouMadeItHappen – Delilah

This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Delilah and her family offered the perfect story … Continue reading #YouMadeItHappen – Delilah

#YouMadeItHappen – Roger

This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Roger inspired us to write a brand new … Continue reading #YouMadeItHappen – Roger

#YouMadeItHappen – Nadine

This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Nadine decided she didn’t want her little daughter … Continue reading #YouMadeItHappen – Nadine

Mike explains nystagmus and benefits at Open Day.

#YouMadeItHappen – Mike

This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Mike is a professional benefits expert who also … Continue reading #YouMadeItHappen – Mike

#YouMadeItHappen – Patsy

This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Patsy is one of our newest volunteers. It’s … Continue reading #YouMadeItHappen – Patsy

Can I tell you about Nystagmus?

Nadine Neckles wrote the book ‘Can I tell you about Nystagmus?’ so that her young daughter, who has nystagmus, could live in a world more nystagmus aware. ‘Can I tell … Continue reading Can I tell you about Nystagmus?

Front cover of the booklet nystagmus and benefits.

Publication update

Thanks go to Mike Hughes, our volunteer benefits adviser and all round expert on everything to do with benefits and nystagmus. Mike has updated his booklet on DLA, PIP and … Continue reading Publication update