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Tag: #NystagmusStars

Marsha wears a floral top and a denim jacket. She is standing in a garden by a hedge.

Marsha’s message for Nystagmus Awareness Day 2024


Thank you to Marsha de Cordova for taking a few moments out of her busy schedule to celebrate with us Nystagmus Awareness Day 2024 in our Ruby Year. Watch Marsha’s … Continue reading Marsha’s message for Nystagmus Awareness Day 2024

Posted on June 19, 2024Author Sue RickettsCategories Charity highlights, Information and Support, Living with nystagmus, Nystagmus Awareness Day, Nystagmus heroes, Ruby StoriesTags #NystagmusStars, Marsha de Cordova, nystagmus, Nystagmus Awareness Day, nystagmus network

Thomas and Ben are #NystagmusStars


Today we have 2 #NystagmusStars for the price of 1! Their Mum says: “These are my two nystagmus stars, Thomas and Ben, who are confident, happy and loving boys.”  To … Continue reading Thomas and Ben are #NystagmusStars

Posted on December 22, 2019December 20, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Phoenix is a #NystagmusStar


Phoenix is 12. He has nystagmus and albinism. At a recent parents’ evening his teachers said he is exceeding most of his targets and they had nothing but praise for … Continue reading Phoenix is a #NystagmusStar

Posted on December 21, 2019December 20, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Ryan is a #NystagmusStar


Following a difficult birth, Ryan has nystagmus and is severely partially sighted. According to his Mum, he’s the funniest, most sensitive little man ever and whoever meets Ryan falls instantly … Continue reading Ryan is a #NystagmusStar

Posted on December 20, 2019December 20, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Harley is a #NystagmusStar


Harley may have nystagmus, but her inner strength and courage mean she can achieve anything. To nominate your #NystagmusStar or to make a donation to help the Nystagmus Network support … Continue reading Harley is a #NystagmusStar

Posted on December 18, 2019December 18, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Tommy is a #NystagmusStar


No matter how difficult life gets for Tommy, he’s always happy. He has nystagmus and another medical condition, but he never lets life get him down. To nominate your #NystagmusStar … Continue reading Tommy is a #NystagmusStar

Posted on December 18, 2019December 18, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Sarah is a #NystagmusStar


Sarah is an accomplished sports woman, mother and soon to be driver! She has never let nystagmus prevent her from trying anything she has wanted to do. Sarah is nominated … Continue reading Sarah is a #NystagmusStar

Posted on December 15, 2019December 15, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Oscar is a #NystagmusStar


Oscar sometimes finds it hard to understand why his nystagmus makes it so hard for him to do things, but he’s completely undaunted. He’s a keen fundraiser and always ready … Continue reading Oscar is a #NystagmusStar

Posted on December 14, 2019December 14, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Lyla is a #NystagmusStar


Nystagmus hasn’t stopped Lyla doing anything! She has just learnt to walk and loves saying Hiya! Her Mum says: “She’s the most fearless child who never gives up and I … Continue reading Lyla is a #NystagmusStar

Posted on December 14, 2019December 14, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

Taylan is a #NystagmusStar


“Taylan is amazing”, says his Mum. “He struggles with his balance and sight but every day he tries his hardest at school and at home. He is kind and friendly … Continue reading Taylan is a #NystagmusStar

Posted on December 12, 2019December 12, 2019Author Sue RickettsCategories Fundraising, Living with nystagmusTags #NystagmusStars, Christmas stars

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