A guest post. A couple of years ago, I wrote a piece about being a parent with nystagmus of a child without. That child is now old enough to tell … Continue reading Julia’s musical adventures
Category: Living with nystagmus
Our new Facebook groups
The Nystagmus Network has launched 3 brand new official Facebook groups this week to help members of the nystagmus community come together to share their experiences, their problems and their … Continue reading Our new Facebook groups
Nystagmus researchers need your help
Common misconceptions about nystagmus A team of nystagmus researchers in the UK have recently shown that there is significant variation in the way people with nystagmus are supported and given … Continue reading Nystagmus researchers need your help
Fight for Sight survey on eye conditions and sight loss
Fight for Sight needs your help as part of a ground-breaking survey into the experience of living with sight loss or an eye condition. By taking part in the survey … Continue reading Fight for Sight survey on eye conditions and sight loss
Are you going to LookFest 2020?
LookFest is an accessible family festival outdoors and under canvas for families where there are children and young people with impaired vision.After the huge success of LookFest 19, they’re doing … Continue reading Are you going to LookFest 2020?
Reading an optician’s prescription
Although glasses cannot stop nystagmus they can correct refractive errors, such as long or short sight and astigmatism, to make the sight as clear as it can be. Do you … Continue reading Reading an optician’s prescription
Into employment with VI
Latest study shows improvements for young people with vision impairment entering employment but more needs to be done The latest results of a Longitudinal Transition Study published by the Vision … Continue reading Into employment with VI
Our New Year resolutions
… and our promises to you, the nystagmus community Thanks to your support and generosity throughout 2019, the Nystagmus Network can confidently resolve and promise that in 2020 we will … Continue reading Our New Year resolutions
Thomas and Ben are #NystagmusStars
Today we have 2 #NystagmusStars for the price of 1! Their Mum says: “These are my two nystagmus stars, Thomas and Ben, who are confident, happy and loving boys.” To … Continue reading Thomas and Ben are #NystagmusStars
Phoenix is a #NystagmusStar
Phoenix is 12. He has nystagmus and albinism. At a recent parents’ evening his teachers said he is exceeding most of his targets and they had nothing but praise for … Continue reading Phoenix is a #NystagmusStar