In the run up to Nystagmus Awareness Day on 20 June, we’re celebrating all your success stories in our campaign “How amazing are you?”
Today Phebe tells her own nystagmus story.
“My name is Phebe and I am graduating tomorrow from the 5th grade. I love to play soccer, lacrosse, tennis and ski. I also love to hang out with my friends, sing and act. I am going to be a famous actor one day.
‘I have nystagmus. Sometimes it’s hard for me to see the smart board, recognise people’s faces, see when the sun is shining bright, but I don’t let that stop me from doing what I want to do. I am my own advocate at school. I just tell the teacher when I need to take a break and rest my eyes or I need to move my seat to see better.
‘Nystagmus doesn’t hold me back.”
If you’d like to share your amazing nystagmus story, please contact us today. To help the Nystagmus Network support even more people to reach their amazing potential, please consider making a donation. Thank you.