When Kim applied to the Nystagmus Network for a place in the TCS London Marathon 2026, we didn’t hesitate to award her our charity ballot place. Kim’s daughter, Maya, has … Continue reading Thank you, Kim!
Tag: amazing nystagmus success stories
Congratulations Ryan!
After unexpectedly winning a place for the TCS London Marathon 2026 in the public ballot, Ryan became a (very) accidental first time marathon trainee. He set himself the ‘couch to … Continue reading Congratulations Ryan!
Nystagmus Network triumphs in UK Charity Governance Awards 2025
The Nystagmus Network has won a top prize at the UK Charity Governance Awards 2025. The charity was one of five big winners and took home a prize of £6,000 … Continue reading Nystagmus Network triumphs in UK Charity Governance Awards 2025
Vivien receives her honours
Following the announcement that Vivien Jones, Founder and Honorary President of the Nystagmus Network, had been awarded an MBE in His Majesty’s New Year Honours, Vivien and her family travelled … Continue reading Vivien receives her honours
Tim Hands – living with nystagmus
Tim has a whole clutch of awards for his work. He says: I ain’t done bad for a lad that can’t see too well. This is Tim’s amazing nystagmus story or … Continue reading Tim Hands – living with nystagmus
How amazing is Edwin?
I was born with CN and for the most part consider myself to be lucky compared to many in our group. Service to others has been a significant part of … Continue reading How amazing is Edwin?
How amazing is Wyatt?
Wyatt has always had this positive outlook. He is determined, smart, and gives EVERYTHING his all! When he was 4 months old he was diagnosed with Nystagmus. We as parents … Continue reading How amazing is Wyatt?
How amazing is Grayson?
I am Grayson and I am 5 on 18 June. I have Ocular Albinism and Nystagmus. When I started school in September, I was very scared and very nervous and was … Continue reading How amazing is Grayson?
How amazing is Poppy?
My name is Poppy. I’m 11 years old. I was diagnosed with nystagmus when I was 2 months old. I never allow my nystagmus to hold me back. I love … Continue reading How amazing is Poppy?
How amazing is Katrina?
Katrina did well at school, has worked hard throughout the pandemic and keeps herself fit with clubbercise. She says: I have had congenital nystagmus all my life and I have … Continue reading How amazing is Katrina?