The Nystagmus Network is delighted to announce that we have been awarded funding by the Community Fund for a brand new project, called Parent Power.
The aim of the project is to empower parents and carers to advocate for their children with nystagmus to ensure they access appropriate educational support in school or early years settings.
Parents will be recruited from our membership and the wider nystagmus community to receive information on the rights of their children under the SEND Code of Practice, advice on how to access the full range of services available to visually impaired children and an explanation of the EHC plan application process.
At each of 5 regionally based training sessions in the academic year 2019/20 local parents and carers will come together to build a mutually supportive network so that they are able to provide and enjoy peer to peer support whilst working to support their own child.
As a result of parental empowerment, children and young people with nystagmus will receive appropriate, timely support in education to enable them to achieve their expected potential, were they not visually impaired, to follow their chosen career path and make a valid contribution to their local communities.
There will be more news about the dates and locations of our first Parent Power workshops very soon.