Take part in sight services research


You can take part in a new study of services for people with impaired vision. Commissioned by major sight loss charities, the research aims to drive improvements to services. Phone interviews last 40 minutes and anyone anywhere in the UK can take part. Participants will receive £30 as a thank you. Please click here to … Continue reading Take part in sight services research

Parent Power comes to Bristol


Parent Power, funded by the National Lottery Community Fund The Nystagmus Network invites parents and carers to attend our next Parent Power education workshop. Venue:      TBC, Bristol Date:          Saturday 29 February Time:         10am to 2pm The aim of the project is to empower parents and carers with legally based information on how to advocate for … Continue reading Parent Power comes to Bristol

Parent Power comes to Cambridge


Parent Power, funded by the National Lottery Community Fund SORRY – BOOKINGS NOW CLOSED. The Nystagmus Network invites parents and carers to attend our next Parent Power education workshop. Venue:      DoubleTree by Hilton, Cambridge City Centre Date:          Saturday 25 January Time:         9.30am to 3pm The aim of the project is to empower parents and carers … Continue reading Parent Power comes to Cambridge

Fingers crossed


Today at the Nystagmus Network we have our fingers firmly crossed. Why? Because we want to say a big THANK YOU to all the lovely national lottery players who helped make our Parent Power project possible. Thanks to our National Lottery Community Fund grant we’re able to run a series of free workshops for parents … Continue reading Fingers crossed

#YouMadeItHappen – Delilah


This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Delilah and her family offered the perfect story for our Jeans for Nystagmus Genes Day campaign, helping us raise awareness of nystagmus as a genetic disorder. Thank you, Delilah You can read Delilah’s … Continue reading #YouMadeItHappen – Delilah

#YouMadeItHappen – Roger


This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Roger inspired us to write a brand new guide to nystagmus – for adults. He generously shared his own thoughts on the subject to start us off and members of our community chipped … Continue reading #YouMadeItHappen – Roger

#YouMadeItHappen – Nadine


This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Nadine decided she didn’t want her little daughter to grow up in a world where people didn’t know about nystagmus, so she wrote her book ‘Can I tell you about Nystagmus?’ which explains … Continue reading #YouMadeItHappen – Nadine

#YouMadeItHappen – Mike


This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Mike is a professional benefits expert who also happens to have nystagmus. He is always ready with advice and guidance which he offers freely to Nystagmus Network members. He also writes our guide … Continue reading #YouMadeItHappen – Mike

#YouMadeItHappen – Patsy


This year on #YouMadeItHappen Day we’re celebrating the nystagmus heroes of 2019 who’ve really helped make a difference for the nystagmus community. Patsy is one of our newest volunteers. It’s thanks to her that we were able to start up our virtual support group for people diagnosed with Acquired Nystagmus. Living with AN herself, Patsy … Continue reading #YouMadeItHappen – Patsy