The Nystagmus Network provides much needed information for parents of newly diagnosed children and babies . We understand that this is a very difficult time and that there is sometimes not very much information available. Our free to download Parents Booklet provides a clear introduction to the condition and gives parents an idea of what … Continue reading Information for Parents
Whether you’ve had nystagmus all your life or have acquired it more recently, the Nystagmus Network is here to support adults with the condition, with information, research updates, news, meetings, membership and more. Or why not get involved with one of our fundraising activities?
Have you visited our online Education Resource HUB? You’ll find everything you need to know about supporting a child through education, as a parent, carer or teacher, from the early years right through to college and beyond. We also offer an education advocacy service to members. Visit the HUB here.
Information on nystagmus, DLA and PIP is available free of charge directly from our website to anyone who needs it. Download here. Individual support from our volunteer benefits adviser is available to members of the charity.
Members of the Nystagmus Network are entitled to free education advocacy support and information whenever and for as long as they need it. This service is provided free of charge to subscribed members of the charity by our IPSEA trained volunteer education advocate, Frances Lilley. In 2019 we will double our capacity to support families … Continue reading Our education advocacy service
Our information and support line is available 24/7. You can help us keep it open with a donation this Christmas. Thank you. Find out more about Nystagmus is … this Christmas.
Throughout December the Nystagmus Network will be reminding everyone just how many wonderful gifts of support and information the charity has to offer, not just at Christmas, but throughout the year. Each day a new gift will pop up in your nystagmus advent calendar on our blog, on Facebook and on Twitter. Please share these … Continue reading Our advent calendar of Christmas gifts
Merton Vision, London will be holding a patient information day tomorrow, Friday 23 November, from 12 noon to 4pm. Please come along to find out more about nystagmus and albinism. The Nystagmus Network’s Sue will be there to answer all your nystagmus related questions.
The Nystagmus Network is pleased and proud to have played a tiny part in the Seeing Beyond the Eyes project, headed by Dan Williams at Visualise Training. Thanks to Dan, opticians throughout England and Wales now have a handy resource pack and ongoing training programmes to help them signpost patients for condition specific support, including … Continue reading Seeing Beyond the Eyes
Children with vision impairment can receive a letter from Father Christmas in their chosen format, courtesy of our friends at RNIB. Find out more, here.