We’re excited to share our recent interview, featuring the insightful Dr Gemma Arblaster, an Orthoptist and lecturer at the University of Sheffield. In this video we dive deep into the … Continue reading Discover the World of Nystagmus with Gemma Arblaster
Please join us for our first in person event of 2025 on Saturday 15 March, 11am to 4pm. An in person event for everyone living with nystagmus or supporting someone … Continue reading The big nystagmus meet up – Maidstone
Dear Parents and Carers The Education Select Committee is seeking evidence on short term actions to stabilise the SEND system which is currently experiencing increased demand, protracted waiting times … Continue reading SEND inquiry – please take our survey
When your child becomes a parent your relationship with them moves into an exciting new phase. Alongside that, you have an entirely new little person to get to know. It’s … Continue reading Our Facebook group for grandparents
Thank you to Marsha de Cordova for taking a few moments out of her busy schedule to celebrate with us Nystagmus Awareness Day 2024 in our Ruby Year. Watch Marsha’s … Continue reading Marsha’s message for Nystagmus Awareness Day 2024
You are invited to participate in a research study titled “Understanding the Experiences of Individuals with Eye Movement Disorders.” This study aims to explore the lived experiences, challenges, and perspectives … Continue reading Understanding your experiences of nystagmus
The Nystagmus Network is proud to launch a new guide to nystagmus and the early years. Written for new parents and carers where a baby is newly diagnosed with nystagmus, … Continue reading Nystagmus and the early years
Parents’ online get together, November 29 2023 7-9pm – guest speaker from CONTACT* At our next online get together for parents and carers we will be joined by a speaker … Continue reading Stress busting workshop for parents and carers
Please take a moment to nominate the Nystagmus Network for the chance to win a £1,000 donation. That’s enough to pay for a year’s supply of nystagmus information leaflets for … Continue reading Please nominate us to win a £1,000 donation
Saturday 23 September, 10am to 3pm You are warmly invited to join Nystagmus Network staff and trustees for our next in person event – the big nystagmus meet up, Manchester. … Continue reading The big ‘nystagmus’ meet up – Manchester
