Please nominate us to win a £1,000 donation


For 12 days this Christmas, as part of Ecclesiastical’s movement for good , the company will be making £120,000 in donations to charities to help them deliver their vital work. Please nominate the Nystagmus Network for a chance to help us win £1,000! With that amount of money we could supply a lot of hospital clinics with … Continue reading Please nominate us to win a £1,000 donation

What do we see?


In answer to the question ‘What does a visually impaired child see?’ the Thomas Pocklington Trust has produced a new video simulating the 5 most commonly seen forms of vision impairment in children and young people, including nystagmus. The film, What do we see? 2, shows what it’s like to have nystagmus, retinitis pigmentosa, infantile … Continue reading What do we see?

Parent Power is back!


Thanks to a grant from our friends at the Thomas Pocklington Trust, the Nystagmus Network is delighted to be able to offer parents and carers of children and young people with nystagmus the opportunity to attend one of a brand new series of Parent Power webinars. Each webinar will introduce parents to the special educational … Continue reading Parent Power is back!

Elections Bill could weaken protections for blind and partially sighted voters


Urgent update from RNIB:  The Government has put forward a draft law – the Elections Bill – which weakens protection for an independent vote for blind and partially sighted people. But there is still time to stop this from happening.  RNIB need to persuade the Government to maintain the existing law, and need your help to do it.  Will you meet … Continue reading Elections Bill could weaken protections for blind and partially sighted voters

The State of the UK’s Eye Health


A NEW report paints a stark picture of the impact the Covid-19 pandemic has had on eye health in Britain – with experts warning of a ‘ticking timebomb’ and significant fallout for years to come. The State of the UK’s Eye Health 2021 report, commissioned by Specsavers in collaboration with leading eye health experts and charities, … Continue reading The State of the UK’s Eye Health

Frances Lilley


Frances Lilley has decided to stand down after 5 years as a Trustee of Nystagmus Network.  During this time, she has been performing the role of volunteer education advocate and has provided invaluable advice to countless parents to guide them through the complex and, quite often, challenging world of EHC plans and the support that … Continue reading Frances Lilley

Register now for Open Day 2021


Nystagmus Network Open Day – Saturday 25 September  We promise a packed programme of presentations, inspirational speakers, research updates, videos, workshops, forums, competitions and so much more – all available wherever you are. Plus, you’re warmly invited to join a fabulous live and interactive networking event. The theme for this year is ‘How amazing are you?‘. We’ll be celebrating … Continue reading Register now for Open Day 2021

Free iPads or iPhones for children with a vision impairment aged 3-18


Guide Dogs this week launch a new service, Tech for All, to help children with a vision impairment access their own devices at home – to support learning, or simply to have fun and explore the interests and activities they enjoy.  Tech for All will provide iPads to visually impaired children aged 3-18 across the … Continue reading Free iPads or iPhones for children with a vision impairment aged 3-18

Seeing Beyond The Eyes


New CET e-learning enhances skills and accessibility when assisting patients with sight loss A new CET e-learning course for optical professionals to develop practical skills when dealing with patients with a visual impairment has been launched by award-winning social businessman and Nystagmus Network trustee, Dan Williams of Visualise Training and Consultancy. ‘Seeing Beyond the Eyes’ … Continue reading Seeing Beyond The Eyes

New e-learning course enhances skills when assisting people with sight loss


A new e-learning course to develop knowledge, skills and confidence when assisting people with a visual impairment has been launched by award-winning social businessman and Nystagmus Network trustee, Dan Williams of Visualise Training and Consultancy. ‘Visual Impairment Awareness for All’ is ideal for anyone who regularly interacts with people living with visual impairment as it … Continue reading New e-learning course enhances skills when assisting people with sight loss