Free iPads or iPhones for children with a vision impairment aged 3-18


Guide Dogs this week launch a new service, Tech for All, to help children with a vision impairment access their own devices at home – to support learning, or simply to have fun and explore the interests and activities they enjoy.  Tech for All will provide iPads to visually impaired children aged 3-18 across the … Continue reading Free iPads or iPhones for children with a vision impairment aged 3-18

Seeing Beyond The Eyes


New CET e-learning enhances skills and accessibility when assisting patients with sight loss A new CET e-learning course for optical professionals to develop practical skills when dealing with patients with a visual impairment has been launched by award-winning social businessman and Nystagmus Network trustee, Dan Williams of Visualise Training and Consultancy. ‘Seeing Beyond the Eyes’ … Continue reading Seeing Beyond The Eyes

New e-learning course enhances skills when assisting people with sight loss


A new e-learning course to develop knowledge, skills and confidence when assisting people with a visual impairment has been launched by award-winning social businessman and Nystagmus Network trustee, Dan Williams of Visualise Training and Consultancy. ‘Visual Impairment Awareness for All’ is ideal for anyone who regularly interacts with people living with visual impairment as it … Continue reading New e-learning course enhances skills when assisting people with sight loss

The Nystagmus Care Pathway


Why we need a pathway Getting a diagnosis of nystagmus for a small baby is an anxious time if you’ve never heard of the condition before. It’s even harder if all the medical information seems a bit bewildering and you don’t know where else to turn for support. That’s why NUKE (the Nystagmus UK research … Continue reading The Nystagmus Care Pathway

Nystagmus Network wins £1,000 Movement for Good award


Nystagmus Network wins £1,000 Movement for Good award The Nystagmus Network has won a £1,000 Movement for Good award from Ecclesiastical Insurance Group thanks to nominations from the public. The Nystagmus Network is one of 500 winners in specialist insurer Ecclesiastical’s Movement for Good awards, which is giving £1million to charities this summer. Although at … Continue reading Nystagmus Network wins £1,000 Movement for Good award

Do you use your local offer?


Since 2014 all UK local authorities are required to put information about services for families with disabled children in a special web page called the Local Offer. Have you found yours? Do you use it? Is the Nystagmus Network listed as a support service? We’re trying to make sure that everyone receiving a diagnosis of … Continue reading Do you use your local offer?

Nystagmus news for eye care professionals


The Nystagmus Network now produces a digital newsletter for Dispensing Opticians and Optometrists. The first edition has just been published, bringing nystagmus news, stories and information directly to high street and community practices. Read the newsletter and subscribe here

Eye Drops and Medication During Ramadan


During the Holy month of Ramadan, the Muslim community take part in fasting. This means that from sunrise to sunset, there is no eating or drinking (not even water). How does Ramadan affect eye medication? During Ramadan people often stop putting in eye drops (such as Glaucoma medication, antibiotic drops and lubricant drops) as it … Continue reading Eye Drops and Medication During Ramadan

Sue’s at VIEW


The annual VIEW conference for QTVIs (Qualified Teachers of Visually Impaired children and young people) is taking place last week and this – virtually. The Nystagmus Network attends every year. In fact this was the last event Sue attended in 2020 before lockdown. Sue’s virtual presentation on nystagmus in the classroom is exciting lots of … Continue reading Sue’s at VIEW

What is nystagmus?


For a back to basics, plain English guide to childhood nystagmus, visit the new Gene Vision website. The Nystagmus Network contributed to the content to make sure that people diagnosed with nystagmus, their families and the people who care for and support them would have a clear understanding of the condition. Visit the ‘nystagmus for … Continue reading What is nystagmus?