Category: Information and Support

The Nystagmus Network team wearing their charity T-shirts and jeans.

Our Jeans for Genes grant success

We are absolutely thrilled to announce we have received a grant from Jeans for Genes. This incredible support will enable us to create and distribute a vital, parent-friendly resource to … Continue reading Our Jeans for Genes grant success

A screen shot from the interview with Dr Gemma Arblaster.

Discover the World of Nystagmus with Gemma Arblaster

We’re excited to share our recent interview, featuring the insightful Dr Gemma Arblaster, an Orthoptist and lecturer at the University of Sheffield. In this video we dive deep into the … Continue reading Discover the World of Nystagmus with Gemma Arblaster

The official image of the SEND inquiry - a classroom or meeting room full of empty desks and chairs.

SEND inquiry – please take our survey

  Dear Parents and Carers The Education Select Committee is seeking evidence on short term actions to stabilise the SEND system which is currently experiencing increased demand, protracted waiting times … Continue reading SEND inquiry – please take our survey

Marsha wears a floral top and a denim jacket. She is standing in a garden by a hedge.

Marsha’s message for Nystagmus Awareness Day 2024

Thank you to Marsha de Cordova for taking a few moments out of her busy schedule to celebrate with us Nystagmus Awareness Day 2024 in our Ruby Year. Watch Marsha’s … Continue reading Marsha’s message for Nystagmus Awareness Day 2024

A desk with an open laptop, plant and coffee cup.

Understanding your experiences of nystagmus

You are invited to participate in a research study titled “Understanding the Experiences of Individuals with Eye Movement Disorders.” This study aims to explore the lived experiences, challenges, and perspectives … Continue reading Understanding your experiences of nystagmus

A woman supports a child with music and movement exercises.

Stress busting workshop for parents and carers

Parents’ online get together, November 29 2023 7-9pm – guest speaker from CONTACT* At our next online get together for parents and carers we will be joined by a speaker … Continue reading Stress busting workshop for parents and carers