Lots of you are asking us this question and some of you have received notification letters from the government. We asked for expert clinical advice and received the following statement: “IN (infantile nystagmus) or OA (ocular albinism) in isolation are not associated with compromised immunity. “There are some syndromic forms of albinism that are associated … Continue reading Does nystagmus or ocular albinism affect my immunity?
The Nystagmus Network has put together a handy list of tried and tested online learning resources for parents and carers. It’s a list that’s growing day by day. If you’d like to recommend a resource, please contact us and we’ll be happy to add it to our list. A brilliant ‘how to’ guide for parents … Continue reading A round up of online learning
“Expectations Exceeded” Parent and family workshop run by Friends of Moorfields and Blind in Business Friday 22 May 2020 2pm to 5pm Kemp House (next to Moorfields Eye Hospital) 152-160 City Road, EC1V 2NX The Boardroom, 4th Floor Parents, carers, young people, friends and family are all welcome to attend! Learn and speak with blind … Continue reading Blind in Business event
Free digital skills, information and well-being event for families with visually impaired children Saturday 28th March 1.30-4pm Swansea University Health and Wellbeing Centre To book a place contact Sue Neale Eye Clinic Liaison Officer Tel 01792 200390 Mobile 0790 852 7522
Parent carer voices are essential to help shape the services they need for their children and young people. The East Sussex Parent Carer Forum would like you to get involved.
The Nystagmus Network has launched 3 brand new official Facebook groups this week to help members of the nystagmus community come together to share their experiences, their problems and their successes and offer each other help and encouragement when it’s needed. All three groups have Nystagmus Network staff members Sue, Sara and Debbie as admins … Continue reading Our new Facebook groups
The next meeting of our north west regional Nystagmus Network support group is on Saturday, 25 April from 1 to 3pm in central Manchester Adults with nystagmus, parents of children with nystagmus and anyone supporting someone with nystagmus are all welcome to come along. The meeting is hosted by Nystagmus Network trustee, Marie Turnbull (pictured). … Continue reading Join us at the Manchester meet up
Parent Power, funded by the National Lottery Community Fund The Nystagmus Network invites parents and carers to attend our final Parent Power education workshop. Venue: DoubleTree by Hilton, Leeds City Centre Date: Saturday 14 March Time: 9.30am to 3pm The aim of the project is to empower parents and carers with legally based information on … Continue reading Parent Power comes to Leeds
Although glasses cannot stop nystagmus they can correct refractive errors, such as long or short sight and astigmatism, to make the sight as clear as it can be. Do you understand what all the numbers and words actually mean on your prescription? Specsavers have made a handy video explaining everything. Watch here to find out … Continue reading Reading an optician’s prescription
Orthoptists are trained specialists in diagnosing and providing non-surgical management of disorders of eye movements and associated vision defects. BIOS, the British and Irish Orthoptic Society, has produced a series of guides to talk you through a typical visit to an Orthoptist. Please click the links below to see your chosen guide. For children For … Continue reading What to expect from a visit to an Orthoptist