Parent Power – Nystagmus Network

More Parent Power coming soon

The Nystagmus Network is delighted to be able to offer parents and carers of children and young people with nystagmus the opportunity to attend our periodic Parent Power webinars.

Each webinar, led by Karen, from IPSEA (the Independent Provider of Special Education Advice), supported by the charity’s volunteer education advocate, Claire and Sue from the staff team, introduces parents to the special educational needs support available in schools and early years settings and empower you to access it for your child. We’ll even introduce you to EHC plans.

The one day webinars (10am to 2.45pm) are FREE to attend.

Dates for our next Parent Power workshop will be announced soon.

Members of the Nystagmus Network can request advice from our volunteer education advocate, Claire or ask for a referral to our Education Advocacy Service for one to one support with casework.

Parent Power this February

Thanks to a grant from our friends at the Thomas Pocklington Trust, the Nystagmus Network is delighted to be able to offer parents and carers of children and young people with nystagmus the opportunity to attend one of a brand new series of Parent Power webinars.

The one day webinars (10am to 2.45pm) are FREE.

Places on the next February workshop are open for booking.

Book your place for Parent Power on Friday 11 February here

Members of the Nystagmus Network can request advice from our volunteer education advocate, Claire or ask for a referral to our Education Advocacy Service for one to one support with casework.

Parent Power is back!

Each webinar will introduce parents to the special educational needs support available in schools and early years settings and empower you to access it for your child. We’ll even introduce you to EHC plans.

Each session will be led by Karen, a qualified and experienced trainer from IPSEA (the Independent Provider of Special Education Advice), supported by the charity’s volunteer education advocate, Claire and Sue from the staff team.

The one day webinars (10am to 2.45pm) are FREE and will be held online from November, 2021 through to March 2022, so there’s bound to be one that suits your schedule.

Places on the next two workshops are already open for booking.

Book your place for Parent Power on Friday 14 January here

Book your place for Parent Power on Friday 11 February here

Members of the Nystagmus Network can request advice from our volunteer education advocate, Claire or ask for a referral to our Education Advocacy Service for one to one support with casework.

A group of parents and Nystagmus Network volunteers.

Fingers crossed

Today at the Nystagmus Network we have our fingers firmly crossed. Why? Because we want to say a big THANK YOU to all the lovely national lottery players who helped make our Parent Power project possible.

Thanks to our National Lottery Community Fund grant we’re able to run a series of free workshops for parents at 5 locations across England.

At each workshop, parents and carers of children with nystagmus are learning about the legal rights of their children to support in school and, just a importantly, how to access it.

Want to join one of our workshops? We’re now taking bookings for London and Cambridge. Please click the links to apply.

The picture shows parents and Nystagmus Network volunteers with their fingers crossed at the first Parent Power workshop in Southampton earlier this year.

Parent Power comes to Southampton

Parent Power, funded by the National Lottery Community Fund

PLEASE NOTE – BOOKING IS NOW CLOSED

The Nystagmus Network is now inviting parents and carers to attend the first of our Parent Power education workshops.

Location: Southampton

Date: Saturday 12 October

Time: 10am to 2pm

Lunch will be provided. This is an adults only event.

The aim of the project is to empower parents and carers with legally based information on how to advocate for their children with nystagmus to ensure they receive appropriate support across all stages of education.

Led by our 2 IPSEA trained education advocates, delegates will learn about the rights of their children under law and receive advice on how to access the range of SEN support available to visually impaired children, including an explanation of the EHC plan process.

The workshops will also cover practical information on exam access arrangements, reading resources and transition plans. Content will be tailored to the age and educational stage of your child.

Following the formal input of the day, local parents and carers will have the opportunity to network with each other and also meet local adults living with nystagmus.

There will be more news about 4 future dates and locations across England very soon.

Parent Power – our new project, funded by the Community Fund

The Nystagmus Network is delighted to announce that we have been awarded funding by the Community Fund for a brand new project, called Parent Power.

The aim of the project is to empower parents and carers to advocate for their children with nystagmus to ensure they access appropriate educational support in school or early years settings.

Parents will be recruited from our membership and the wider nystagmus community to receive information on the rights of their children under the SEND Code of Practice, advice on how to access the full range of services available to visually impaired children and an explanation of the EHC plan application process.

At each of 5 regionally based training sessions in the academic year 2019/20 local parents and carers will come together to build a mutually supportive network so that they are able to provide and enjoy peer to peer support whilst working to support their own child.

As a result of parental empowerment, children and young people with nystagmus will receive appropriate, timely support in education to enable them to achieve their expected potential, were they not visually impaired, to follow their chosen career path and make a valid contribution to their local communities.

There will be more news about the dates and locations of our first Parent Power workshops very soon.