Frances Lilley

Frances Lilley has decided to stand down after 5 years as a Trustee of Nystagmus Network.  During this time, she has been performing the role of volunteer education advocate and has provided invaluable advice to countless parents to guide them through the complex and, quite often, challenging world of EHC plans and the support that … Continue reading Frances Lilley

Our #GivingTuesday Appeal

Nystagmus Network joins #GivingTuesday 2019, the global day of generosity on 3 December Nystagmus Network is pleased to announce that we’re one of the thousands of organisations taking part in this year’s #GivingTuesday campaign on 3 December. #GivingTuesday began in America in 2012, as a way to give back after all the consumerism of Black … Continue reading Our #GivingTuesday Appeal

Join Frances at Open Day

The Nystagmus Network’s volunteer Education Advocate, Frances Lilley has been supporting families with education for many years on behalf of the charity. She became a trustee in May 2016. She has a teenage daughter with congenital idiopathic nystagmus. Trained by IPSEA, Frances gives parents and carers one to one legally-based advice and support on how … Continue reading Join Frances at Open Day

Education information for all

Have you visited our online Education Resource HUB? You’ll find everything you need to know about supporting a child through education, as a parent, carer or teacher, from the early years right through to college and beyond. We also offer an education advocacy service to members. Visit the HUB here.

Our education advocacy service

Members of the Nystagmus Network are entitled to free education advocacy support and information whenever and for as long as they need it. This service is provided free of charge to subscribed members of the charity by our IPSEA trained volunteer education advocate, Frances Lilley. In 2019 we will double our capacity to support families … Continue reading Our education advocacy service