Going to uni with nystagmus


Today’s guest post comes from Ella, author of the blog, Life of Ella. Ella is a First Class Honours graduate and a civil servant. She also happens to have nystagmus. Some people with nystagmus might think that university is not for them, but Ella is here to share her experiences of support and success. I … Continue reading Going to uni with nystagmus

Parent Power and networking lunch in Southampton


Parent Power, funded by the National Lottery Community Fund The Nystagmus Network invites parents and carers to attend the first of our Parent Power education workshops. Venue:      Southampton Sight, 3 Bassett Avenue, Southampton, SO16 7DP Date:          Saturday 12 October Time:         10am to 2pm The aim of the project is to empower parents and carers with legally based information … Continue reading Parent Power and networking lunch in Southampton

The Market-ness of the Market Place – building concepts through everyday experiences


A guest post by Gwyn McCormack, Director of Positive Eye: delivering training, courses and a unique product range to support the educational needs of children and young people with vision impairment Gwyn will deliver a ‘Supporting literacy and learning at home using everyday experiences’ workshop at our Open Day on 28 September. Sighted children develop … Continue reading The Market-ness of the Market Place – building concepts through everyday experiences

Parent Power comes to Southampton


Parent Power, funded by the National Lottery Community Fund The Nystagmus Network is now inviting parents and carers to attend the first of our Parent Power education workshops. Location:      Southampton Date:            Saturday 12 October Time:            10am to 2pm Lunch will be provided. This is an adults only event. The aim of the project … Continue reading Parent Power comes to Southampton

Trustees discuss Parent Power with Marsha


On Thursday 20 June, Nystagmus Awareness Day a group of Nystagmus Network trustees met with Marsha de Cordova MP in Parliament. Earlier that morning, Marsha had tweeted her own Nystagmus Awareness Day video message in which she asked us all to celebrate the amazing achievements of people with nystagmus and support and encourage our children … Continue reading Trustees discuss Parent Power with Marsha

Join Frances at Open Day


The Nystagmus Network’s volunteer Education Advocate, Frances Lilley has been supporting families with education for many years on behalf of the charity. She became a trustee in May 2016. She has a teenage daughter with congenital idiopathic nystagmus. Trained by IPSEA, Frances gives parents and carers one to one legally-based advice and support on how … Continue reading Join Frances at Open Day

Calling university applicants


A guest post on behalf of Rachel, from the University of Birmingham: I am looking for students with vision impairment in the UK who are currently applying for higher education to evaluate some guidance material we have put together. Vouchers for those who take part! Please contact me at r.g.hewett@bham.ac.uk Find out more by clicking … Continue reading Calling university applicants

A lesson in nystagmus


The Nystagmus Network has a free to download lesson plan about nystagmus. Designed for use in schools and preschools on Nystagmus Awareness Day or any other day of the year, the aim is to raise awareness of nystagmus and its wider effects and to help a child with nystagmus feel more included in the classroom. … Continue reading A lesson in nystagmus

Katie lobbies MPs


A Wandsworth student visited the House of Commons to lobby Parliament this week on behalf of Young Vision Alliance (YVA), according to an article in Your Local Guardian. Katie, who is in Year 13 at Putney High School, represented YVA as part of their “Our Futures Matter” campaign. The alliance are campaigning for children with vision impairment to … Continue reading Katie lobbies MPs

Education information for all


Have you visited our online Education Resource HUB? You’ll find everything you need to know about supporting a child through education, as a parent, carer or teacher, from the early years right through to college and beyond. We also offer an education advocacy service to members. Visit the HUB here.