Parent Power, funded by the National Lottery Community Fund The Nystagmus Network is now inviting parents and carers to attend the first of our Parent Power education workshops. Location: Southampton Date: Saturday 12 October Time: 10am to 2pm Lunch will be provided. This is an adults only event. The aim of the project … Continue reading Parent Power comes to Southampton
On Thursday 20 June, Nystagmus Awareness Day a group of Nystagmus Network trustees met with Marsha de Cordova MP in Parliament. Earlier that morning, Marsha had tweeted her own Nystagmus Awareness Day video message in which she asked us all to celebrate the amazing achievements of people with nystagmus and support and encourage our children … Continue reading Trustees discuss Parent Power with Marsha
The Nystagmus Network’s volunteer Education Advocate, Frances Lilley has been supporting families with education for many years on behalf of the charity. She became a trustee in May 2016. She has a teenage daughter with congenital idiopathic nystagmus. Trained by IPSEA, Frances gives parents and carers one to one legally-based advice and support on how … Continue reading Join Frances at Open Day
A guest post on behalf of Rachel, from the University of Birmingham: I am looking for students with vision impairment in the UK who are currently applying for higher education to evaluate some guidance material we have put together. Vouchers for those who take part! Please contact me at firstname.lastname@example.org Find out more by clicking … Continue reading Calling university applicants
The Nystagmus Network has a free to download lesson plan about nystagmus. Designed for use in schools and preschools on Nystagmus Awareness Day or any other day of the year, the aim is to raise awareness of nystagmus and its wider effects and to help a child with nystagmus feel more included in the classroom. … Continue reading A lesson in nystagmus
A Wandsworth student visited the House of Commons to lobby Parliament this week on behalf of Young Vision Alliance (YVA), according to an article in Your Local Guardian. Katie, who is in Year 13 at Putney High School, represented YVA as part of their “Our Futures Matter” campaign. The alliance are campaigning for children with vision impairment to … Continue reading Katie lobbies MPs
Have you visited our online Education Resource HUB? You’ll find everything you need to know about supporting a child through education, as a parent, carer or teacher, from the early years right through to college and beyond. We also offer an education advocacy service to members. Visit the HUB here.
Members of the Nystagmus Network are entitled to free education advocacy support and information whenever and for as long as they need it. This service is provided free of charge to subscribed members of the charity by our IPSEA trained volunteer education advocate, Frances Lilley. In 2019 we will double our capacity to support families … Continue reading Our education advocacy service
At Open Day 2018 the Nystagmus Network’s volunteer Education Advocate, Frances Lilley, officially launched the charity’s Education Resource HUB. The HUB is the result of years of research and experience and brings together in one place the resources parents and carers need to navigate their way through mainstream education support for a child with nystagmus, … Continue reading Education Resource HUB – launch
Ella is a third year student at Nottingham Trent University. She just happens to have nystagmus. She is full of advice and inspiration for other young people with nystagmus. Hear her interview with RNIB Connect Radio.