On Thursday 20 June, Nystagmus Awareness Day a group of Nystagmus Network trustees met with Marsha de Cordova MP in Parliament.
Earlier that morning, Marsha had tweeted her own Nystagmus Awareness Day video message in which she asked us all to celebrate the amazing achievements of people with nystagmus and support and encourage our children and young people with nystagmus to achieve their potential.
Watch Marsha’s video message here.
Among the many topics discussed at the meeting, trustees were able to tell Marsha about the charity’s brand new National Lottery funded project ‘Parent Power’ designed to provide parents and carers with the knowledge and skills they need to ensure that their children with nystagmus access the special educational support they need in school.
The picture shows Marsha with Nystagmus Network trustees, left to right, Vicky Pitman, Claire Brinn and Tim Cuddeford.
